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Battling the unknown: Using composite vignettes to portray lived experiences of COVID-19 and long-COVID

Rachel Knight Orcid Logo, Kelly Mackintosh Orcid Logo, Joanne Hudson Orcid Logo, James Shelley, Zoe L. Saynor Orcid Logo, Melitta McNarry Orcid Logo

PLOS ONE, Volume: 18, Issue: 4, Start page: e0284710

Swansea University Authors: Rachel Knight Orcid Logo, Kelly Mackintosh Orcid Logo, Joanne Hudson Orcid Logo, James Shelley, Melitta McNarry Orcid Logo

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DOI (Published version): 10.1371/journal.pone.0284710

Abstract

Understanding the day-to-day lived experiences of individuals who have had or are still recovering from Coronavirus Disease-19 (COVID-19), whilst a complex challenge, presents the opportunity to listen and learn. Composite vignettes provide a novel approach to explore and present descriptive portray...

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ISSN: 1932-6203
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spelling v2 63123 2023-04-12 Battling the unknown: Using composite vignettes to portray lived experiences of COVID-19 and long-COVID c9c8a7cb0a508f8a063162f751323097 0000-0002-9181-2615 Rachel Knight Rachel Knight true false bdb20e3f31bcccf95c7bc116070c4214 0000-0003-0355-6357 Kelly Mackintosh Kelly Mackintosh true false 304341cf2cd1bdb99d7d6ccf0f030d99 0000-0003-4732-8356 Joanne Hudson Joanne Hudson true false 120b09997c79f9494ca91b8a7706efe4 James Shelley James Shelley true false 062f5697ff59f004bc8c713955988398 0000-0003-0813-7477 Melitta McNarry Melitta McNarry true false 2023-04-12 STSC Understanding the day-to-day lived experiences of individuals who have had or are still recovering from Coronavirus Disease-19 (COVID-19), whilst a complex challenge, presents the opportunity to listen and learn. Composite vignettes provide a novel approach to explore and present descriptive portrayals of the most commonly derived experiences and recovery journeys. The thematic analysis of 47 shared accounts (semi-structured interviews with adults aged ≥18 years; 40 females; 6-11 months post-COVID-19 infection) produced a series of four intricate character stories written through the lens of a single individual. Each vignette gives a voice to and captures a different experience trajectory. From the point of initial symptom development onwards, the vignettes depict how COVID-19 has affected everyday lives, focusing on the secondary non-biological socio-psychological effects and implications. The vignettes highlight in participants’ own words: i) the potential negative implications of not addressing the psychological effects of COVID-19; ii) the lack of symptom and recovery linearity; iii) the ongoing ‘lottery’ of access to healthcare services; and iv) the highly variable, yet generally devastating, impacts that COVID-19 and consequent long-COVID has had across multiple facets of daily living. Journal Article PLOS ONE 18 4 e0284710 Public Library of Science (PLoS) 1932-6203 COVID 19, Pandemics, Physical Activity, Critical care and emergency medicine, mental health and psychiatry, virus testing, learning, medical services. 0 0 0 0001-01-01 10.1371/journal.pone.0284710 http://dx.doi.org/10.1371/journal.pone.0284710 COLLEGE NANME Sport and Exercise Sciences COLLEGE CODE STSC Swansea University SU Library paid the OA fee (TA Institutional Deal) The author(s) disclose receipt of the following financial support for the research, authorship, and/or publication of this article: This research was funded by the Welsh Government Ser Cymru III Tackling COVID-19 grant scheme, https://gov.wales/ser-cymru [Reference MA/KW1457/20] and The Higher Education Funding for Wales Research Innovation Fund (Collaboration Booster Facility Fund), https://gov.wales/highereducation-funding-council-wales [grant number FF4]. The funders had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript Reference MA/ KW1457/20 2024-03-10T09:31:08.8020948 2023-04-12T11:29:05.7739465 Faculty of Science and Engineering School of Engineering and Applied Sciences - Sport and Exercise Sciences Rachel Knight 0000-0002-9181-2615 1 Kelly Mackintosh 0000-0003-0355-6357 2 Joanne Hudson 0000-0003-4732-8356 3 James Shelley 4 Zoe L. Saynor 0000-0003-0674-8477 5 Melitta McNarry 0000-0003-0813-7477 6 63123__27418__9299a7da3f8e4d4aba203fc28c902156.pdf 63123VOR.pdf 2023-05-10T16:17:15.6383195 Output 1158099 application/pdf Version of Record true © 2023 Knight et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. true eng http://creativecommons.org/licenses/by/4.0/
title Battling the unknown: Using composite vignettes to portray lived experiences of COVID-19 and long-COVID
spellingShingle Battling the unknown: Using composite vignettes to portray lived experiences of COVID-19 and long-COVID
Rachel Knight
Kelly Mackintosh
Joanne Hudson
James Shelley
Melitta McNarry
title_short Battling the unknown: Using composite vignettes to portray lived experiences of COVID-19 and long-COVID
title_full Battling the unknown: Using composite vignettes to portray lived experiences of COVID-19 and long-COVID
title_fullStr Battling the unknown: Using composite vignettes to portray lived experiences of COVID-19 and long-COVID
title_full_unstemmed Battling the unknown: Using composite vignettes to portray lived experiences of COVID-19 and long-COVID
title_sort Battling the unknown: Using composite vignettes to portray lived experiences of COVID-19 and long-COVID
author_id_str_mv c9c8a7cb0a508f8a063162f751323097
bdb20e3f31bcccf95c7bc116070c4214
304341cf2cd1bdb99d7d6ccf0f030d99
120b09997c79f9494ca91b8a7706efe4
062f5697ff59f004bc8c713955988398
author_id_fullname_str_mv c9c8a7cb0a508f8a063162f751323097_***_Rachel Knight
bdb20e3f31bcccf95c7bc116070c4214_***_Kelly Mackintosh
304341cf2cd1bdb99d7d6ccf0f030d99_***_Joanne Hudson
120b09997c79f9494ca91b8a7706efe4_***_James Shelley
062f5697ff59f004bc8c713955988398_***_Melitta McNarry
author Rachel Knight
Kelly Mackintosh
Joanne Hudson
James Shelley
Melitta McNarry
author2 Rachel Knight
Kelly Mackintosh
Joanne Hudson
James Shelley
Zoe L. Saynor
Melitta McNarry
format Journal article
container_title PLOS ONE
container_volume 18
container_issue 4
container_start_page e0284710
institution Swansea University
issn 1932-6203
doi_str_mv 10.1371/journal.pone.0284710
publisher Public Library of Science (PLoS)
college_str Faculty of Science and Engineering
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hierarchy_top_id facultyofscienceandengineering
hierarchy_top_title Faculty of Science and Engineering
hierarchy_parent_id facultyofscienceandengineering
hierarchy_parent_title Faculty of Science and Engineering
department_str School of Engineering and Applied Sciences - Sport and Exercise Sciences{{{_:::_}}}Faculty of Science and Engineering{{{_:::_}}}School of Engineering and Applied Sciences - Sport and Exercise Sciences
url http://dx.doi.org/10.1371/journal.pone.0284710
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description Understanding the day-to-day lived experiences of individuals who have had or are still recovering from Coronavirus Disease-19 (COVID-19), whilst a complex challenge, presents the opportunity to listen and learn. Composite vignettes provide a novel approach to explore and present descriptive portrayals of the most commonly derived experiences and recovery journeys. The thematic analysis of 47 shared accounts (semi-structured interviews with adults aged ≥18 years; 40 females; 6-11 months post-COVID-19 infection) produced a series of four intricate character stories written through the lens of a single individual. Each vignette gives a voice to and captures a different experience trajectory. From the point of initial symptom development onwards, the vignettes depict how COVID-19 has affected everyday lives, focusing on the secondary non-biological socio-psychological effects and implications. The vignettes highlight in participants’ own words: i) the potential negative implications of not addressing the psychological effects of COVID-19; ii) the lack of symptom and recovery linearity; iii) the ongoing ‘lottery’ of access to healthcare services; and iv) the highly variable, yet generally devastating, impacts that COVID-19 and consequent long-COVID has had across multiple facets of daily living.
published_date 0001-01-01T09:31:06Z
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