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Battling the unknown: Using composite vignettes to portray lived experiences of COVID-19 and long-COVID
,
Kelly Mackintosh ,
Joanne Hudson ,
James Shelley,
Zoe L. Saynor ,
Melitta McNarry
PLOS ONE, Volume: 18, Issue: 4, Start page: e0284710
Swansea University Authors:
Rachel Knight , Kelly Mackintosh , Joanne Hudson , James Shelley, Melitta McNarry
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DOI (Published version): 10.1371/journal.pone.0284710
Abstract
Understanding the day-to-day lived experiences of individuals who have had or are still recovering from Coronavirus Disease-19 (COVID-19), whilst a complex challenge, presents the opportunity to listen and learn. Composite vignettes provide a novel approach to explore and present descriptive portray...
| Published in: | PLOS ONE |
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| ISSN: | 1932-6203 |
| Published: |
Public Library of Science (PLoS)
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| Online Access: |
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| URI: | https://cronfa.swan.ac.uk/Record/cronfa63123 |
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| Abstract: |
Understanding the day-to-day lived experiences of individuals who have had or are still recovering from Coronavirus Disease-19 (COVID-19), whilst a complex challenge, presents the opportunity to listen and learn. Composite vignettes provide a novel approach to explore and present descriptive portrayals of the most commonly derived experiences and recovery journeys. The thematic analysis of 47 shared accounts (semi-structured interviews with adults aged ≥18 years; 40 females; 6-11 months post-COVID-19 infection) produced a series of four intricate character stories written through the lens of a single individual. Each vignette gives a voice to and captures a different experience trajectory. From the point of initial symptom development onwards, the vignettes depict how COVID-19 has affected everyday lives, focusing on the secondary non-biological socio-psychological effects and implications. The vignettes highlight in participants’ own words: i) the potential negative implications of not addressing the psychological effects of COVID-19; ii) the lack of symptom and recovery linearity; iii) the ongoing ‘lottery’ of access to healthcare services; and iv) the highly variable, yet generally devastating, impacts that COVID-19 and consequent long-COVID has had across multiple facets of daily living. |
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| Keywords: |
COVID 19, Pandemics, Physical Activity, Critical care and emergency medicine, mental health and psychiatry, virus testing, learning, medical services. |
| College: |
Faculty of Science and Engineering |
| Funders: |
The author(s) disclose receipt of the following financial support for the research, authorship, and/or publication of this article: This research was funded by the Welsh Government Ser Cymru III Tackling COVID-19 grant scheme, https://gov.wales/ser-cymru [Reference MA/KW1457/20] and The Higher Education Funding for Wales Research Innovation Fund (Collaboration Booster Facility Fund), https://gov.wales/highereducation-funding-council-wales [grant number FF4]. The funders had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript |
| Issue: |
4 |
| Start Page: |
e0284710 |