No Cover Image

Journal article 361 views 84 downloads

The Validation of the ‘CARe Burn Scale: Parent/Caregiver Form’—A Patient Reported Outcome Measure (PROM) Using Rasch Measurement Theory (RMT) to Assess Quality of Life for Parents or Caregivers Supporting a Child with a Burn Injur...

Catrin Griffiths Orcid Logo, Timothy Pickles Orcid Logo, Ella Guest Orcid Logo, Diana Harcourt Orcid Logo

European Burn Journal, Volume: 6, Issue: 2, Pages: 22 - 22

Swansea University Author: Catrin Griffiths Orcid Logo

  • 69615.VoR.pdf

    PDF | Version of Record

    © 2025 by the authors. This is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license.

    Download (942.58KB)

Check full text

DOI (Published version): 10.3390/ebj6020022

Abstract

A PROM is a measure of patient needs and therapeutic progress. This paper outlines the validation of the CARe Burn Scale: Parent/Caregiver Form, a PROM that measures quality of life in parents/caregivers supporting a child with a burn injury. A literature review and interviews with sixteen parents a...

Full description

Published in: European Burn Journal
ISSN: 2673-1991 2673-1991
Published: MDPI AG 2025
Online Access: Check full text

URI: https://cronfa.swan.ac.uk/Record/cronfa69615
first_indexed 2025-06-02T11:38:13Z
last_indexed 2025-06-03T04:47:29Z
id cronfa69615
recordtype SURis
fullrecord <?xml version="1.0"?><rfc1807><datestamp>2025-06-02T12:42:06.9086819</datestamp><bib-version>v2</bib-version><id>69615</id><entry>2025-06-02</entry><title>The Validation of the &#x2018;CARe Burn Scale: Parent/Caregiver Form&#x2019;&#x2014;A Patient Reported Outcome Measure (PROM) Using Rasch Measurement Theory (RMT) to Assess Quality of Life for Parents or Caregivers Supporting a Child with a Burn Injury</title><swanseaauthors><author><sid>2d49e9db71928b3c4e564063c2b8b06e</sid><ORCID>0000-0002-6581-0536</ORCID><firstname>Catrin</firstname><surname>Griffiths</surname><name>Catrin Griffiths</name><active>true</active><ethesisStudent>false</ethesisStudent></author></swanseaauthors><date>2025-06-02</date><deptcode>HSOC</deptcode><abstract>A PROM is a measure of patient needs and therapeutic progress. This paper outlines the validation of the CARe Burn Scale: Parent/Caregiver Form, a PROM that measures quality of life in parents/caregivers supporting a child with a burn injury. A literature review and interviews with sixteen parents and six burns health professionals informed the development of the PROM conceptual framework/draft form. Cognitive debriefing interviews with five parents and seven burns-specialist health professionals provided feedback to ascertain content validity, and two-hundred and four parents/caregivers took part in the field testing. Rasch measurement theory (RMT) analyses and internal consistency tests were conducted to create a shortened version and for psychometric validation. The final conceptual framework included eight domains/individual scales: Physical Well-being, Confidence with Managing Burn Wound/Scar Treatments, Social Situations, Partner Relationship, Self-worth, Negative Mood, Parent Concerns about the Appearance of their Child's Burn Wounds/Scars, and Positive Growth. Seven scales had solutions from RMT analyses and passed internal consistency criteria. Confidence with Managing Burn Wound/Scar Treatments did not fit the Rasch model but was retained as a checklist based on theoretical insight. The CARe Burn Scale: Parent/Caregiver Form is the first and only burn-specific PROM that assesses parents' own health needs when caring for a child with a burn.</abstract><type>Journal Article</type><journal>European Burn Journal</journal><volume>6</volume><journalNumber>2</journalNumber><paginationStart>22</paginationStart><paginationEnd>22</paginationEnd><publisher>MDPI AG</publisher><placeOfPublication/><isbnPrint/><isbnElectronic/><issnPrint>2673-1991</issnPrint><issnElectronic>2673-1991</issnElectronic><keywords>burn injuries; scars; patient-reported outcome measures; PROMs; scar management; quality of life; well-being; coping; parents; caregivers</keywords><publishedDay>7</publishedDay><publishedMonth>5</publishedMonth><publishedYear>2025</publishedYear><publishedDate>2025-05-07</publishedDate><doi>10.3390/ebj6020022</doi><url/><notes/><college>COLLEGE NANME</college><department>Health and Social Care School</department><CollegeCode>COLLEGE CODE</CollegeCode><DepartmentCode>HSOC</DepartmentCode><institution>Swansea University</institution><apcterm>Other</apcterm><funders>This work is part of a program of research that has been funded by the Scar Free Foundation, Restore Burn and Wound Research and Dan&#x2019;s Fund for Burns.</funders><projectreference/><lastEdited>2025-06-02T12:42:06.9086819</lastEdited><Created>2025-06-02T12:35:43.8829566</Created><path><level id="1">Faculty of Medicine, Health and Life Sciences</level><level id="2">School of Health and Social Care - Public Health</level></path><authors><author><firstname>Catrin</firstname><surname>Griffiths</surname><orcid>0000-0002-6581-0536</orcid><order>1</order></author><author><firstname>Timothy</firstname><surname>Pickles</surname><orcid>0000-0001-7743-0234</orcid><order>2</order></author><author><firstname>Ella</firstname><surname>Guest</surname><orcid>0000-0001-8263-0679</orcid><order>3</order></author><author><firstname>Diana</firstname><surname>Harcourt</surname><orcid>0000-0002-4285-5678</orcid><order>4</order></author></authors><documents><document><filename>69615__34374__3634d4f8f90b491eb2a36489d267de6b.pdf</filename><originalFilename>69615.VoR.pdf</originalFilename><uploaded>2025-06-02T12:38:34.0410618</uploaded><type>Output</type><contentLength>965206</contentLength><contentType>application/pdf</contentType><version>Version of Record</version><cronfaStatus>true</cronfaStatus><documentNotes>&#xA9; 2025 by the authors. This is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license.</documentNotes><copyrightCorrect>true</copyrightCorrect><language>eng</language><licence>https://creativecommons.org/licenses/by/4.0/</licence></document></documents><OutputDurs/></rfc1807>
spelling 2025-06-02T12:42:06.9086819 v2 69615 2025-06-02 The Validation of the ‘CARe Burn Scale: Parent/Caregiver Form’—A Patient Reported Outcome Measure (PROM) Using Rasch Measurement Theory (RMT) to Assess Quality of Life for Parents or Caregivers Supporting a Child with a Burn Injury 2d49e9db71928b3c4e564063c2b8b06e 0000-0002-6581-0536 Catrin Griffiths Catrin Griffiths true false 2025-06-02 HSOC A PROM is a measure of patient needs and therapeutic progress. This paper outlines the validation of the CARe Burn Scale: Parent/Caregiver Form, a PROM that measures quality of life in parents/caregivers supporting a child with a burn injury. A literature review and interviews with sixteen parents and six burns health professionals informed the development of the PROM conceptual framework/draft form. Cognitive debriefing interviews with five parents and seven burns-specialist health professionals provided feedback to ascertain content validity, and two-hundred and four parents/caregivers took part in the field testing. Rasch measurement theory (RMT) analyses and internal consistency tests were conducted to create a shortened version and for psychometric validation. The final conceptual framework included eight domains/individual scales: Physical Well-being, Confidence with Managing Burn Wound/Scar Treatments, Social Situations, Partner Relationship, Self-worth, Negative Mood, Parent Concerns about the Appearance of their Child's Burn Wounds/Scars, and Positive Growth. Seven scales had solutions from RMT analyses and passed internal consistency criteria. Confidence with Managing Burn Wound/Scar Treatments did not fit the Rasch model but was retained as a checklist based on theoretical insight. The CARe Burn Scale: Parent/Caregiver Form is the first and only burn-specific PROM that assesses parents' own health needs when caring for a child with a burn. Journal Article European Burn Journal 6 2 22 22 MDPI AG 2673-1991 2673-1991 burn injuries; scars; patient-reported outcome measures; PROMs; scar management; quality of life; well-being; coping; parents; caregivers 7 5 2025 2025-05-07 10.3390/ebj6020022 COLLEGE NANME Health and Social Care School COLLEGE CODE HSOC Swansea University Other This work is part of a program of research that has been funded by the Scar Free Foundation, Restore Burn and Wound Research and Dan’s Fund for Burns. 2025-06-02T12:42:06.9086819 2025-06-02T12:35:43.8829566 Faculty of Medicine, Health and Life Sciences School of Health and Social Care - Public Health Catrin Griffiths 0000-0002-6581-0536 1 Timothy Pickles 0000-0001-7743-0234 2 Ella Guest 0000-0001-8263-0679 3 Diana Harcourt 0000-0002-4285-5678 4 69615__34374__3634d4f8f90b491eb2a36489d267de6b.pdf 69615.VoR.pdf 2025-06-02T12:38:34.0410618 Output 965206 application/pdf Version of Record true © 2025 by the authors. This is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license. true eng https://creativecommons.org/licenses/by/4.0/
title The Validation of the ‘CARe Burn Scale: Parent/Caregiver Form’—A Patient Reported Outcome Measure (PROM) Using Rasch Measurement Theory (RMT) to Assess Quality of Life for Parents or Caregivers Supporting a Child with a Burn Injury
spellingShingle The Validation of the ‘CARe Burn Scale: Parent/Caregiver Form’—A Patient Reported Outcome Measure (PROM) Using Rasch Measurement Theory (RMT) to Assess Quality of Life for Parents or Caregivers Supporting a Child with a Burn Injury
Catrin Griffiths
title_short The Validation of the ‘CARe Burn Scale: Parent/Caregiver Form’—A Patient Reported Outcome Measure (PROM) Using Rasch Measurement Theory (RMT) to Assess Quality of Life for Parents or Caregivers Supporting a Child with a Burn Injury
title_full The Validation of the ‘CARe Burn Scale: Parent/Caregiver Form’—A Patient Reported Outcome Measure (PROM) Using Rasch Measurement Theory (RMT) to Assess Quality of Life for Parents or Caregivers Supporting a Child with a Burn Injury
title_fullStr The Validation of the ‘CARe Burn Scale: Parent/Caregiver Form’—A Patient Reported Outcome Measure (PROM) Using Rasch Measurement Theory (RMT) to Assess Quality of Life for Parents or Caregivers Supporting a Child with a Burn Injury
title_full_unstemmed The Validation of the ‘CARe Burn Scale: Parent/Caregiver Form’—A Patient Reported Outcome Measure (PROM) Using Rasch Measurement Theory (RMT) to Assess Quality of Life for Parents or Caregivers Supporting a Child with a Burn Injury
title_sort The Validation of the ‘CARe Burn Scale: Parent/Caregiver Form’—A Patient Reported Outcome Measure (PROM) Using Rasch Measurement Theory (RMT) to Assess Quality of Life for Parents or Caregivers Supporting a Child with a Burn Injury
author_id_str_mv 2d49e9db71928b3c4e564063c2b8b06e
author_id_fullname_str_mv 2d49e9db71928b3c4e564063c2b8b06e_***_Catrin Griffiths
author Catrin Griffiths
author2 Catrin Griffiths
Timothy Pickles
Ella Guest
Diana Harcourt
format Journal article
container_title European Burn Journal
container_volume 6
container_issue 2
container_start_page 22
publishDate 2025
institution Swansea University
issn 2673-1991
2673-1991
doi_str_mv 10.3390/ebj6020022
publisher MDPI AG
college_str Faculty of Medicine, Health and Life Sciences
hierarchytype
hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str School of Health and Social Care - Public Health{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}School of Health and Social Care - Public Health
document_store_str 1
active_str 0
description A PROM is a measure of patient needs and therapeutic progress. This paper outlines the validation of the CARe Burn Scale: Parent/Caregiver Form, a PROM that measures quality of life in parents/caregivers supporting a child with a burn injury. A literature review and interviews with sixteen parents and six burns health professionals informed the development of the PROM conceptual framework/draft form. Cognitive debriefing interviews with five parents and seven burns-specialist health professionals provided feedback to ascertain content validity, and two-hundred and four parents/caregivers took part in the field testing. Rasch measurement theory (RMT) analyses and internal consistency tests were conducted to create a shortened version and for psychometric validation. The final conceptual framework included eight domains/individual scales: Physical Well-being, Confidence with Managing Burn Wound/Scar Treatments, Social Situations, Partner Relationship, Self-worth, Negative Mood, Parent Concerns about the Appearance of their Child's Burn Wounds/Scars, and Positive Growth. Seven scales had solutions from RMT analyses and passed internal consistency criteria. Confidence with Managing Burn Wound/Scar Treatments did not fit the Rasch model but was retained as a checklist based on theoretical insight. The CARe Burn Scale: Parent/Caregiver Form is the first and only burn-specific PROM that assesses parents' own health needs when caring for a child with a burn.
published_date 2025-05-07T05:30:09Z
_version_ 1856986792470773760
score 11.096212

Similar Items