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The Validation of the ‘CARe Burn Scale: Parent/Caregiver Form’—A Patient Reported Outcome Measure (PROM) Using Rasch Measurement Theory (RMT) to Assess Quality of Life for Parents or Caregivers Supporting a Child with a Burn Injur...
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Timothy Pickles ,
Ella Guest ,
Diana Harcourt
European Burn Journal, Volume: 6, Issue: 2, Pages: 22 - 22
Swansea University Author:
Catrin Griffiths
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DOI (Published version): 10.3390/ebj6020022
Abstract
A PROM is a measure of patient needs and therapeutic progress. This paper outlines the validation of the CARe Burn Scale: Parent/Caregiver Form, a PROM that measures quality of life in parents/caregivers supporting a child with a burn injury. A literature review and interviews with sixteen parents a...
| Published in: | European Burn Journal |
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| ISSN: | 2673-1991 2673-1991 |
| Published: |
MDPI AG
2025
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| Online Access: |
Check full text
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| URI: | https://cronfa.swan.ac.uk/Record/cronfa69615 |
| Abstract: |
A PROM is a measure of patient needs and therapeutic progress. This paper outlines the validation of the CARe Burn Scale: Parent/Caregiver Form, a PROM that measures quality of life in parents/caregivers supporting a child with a burn injury. A literature review and interviews with sixteen parents and six burns health professionals informed the development of the PROM conceptual framework/draft form. Cognitive debriefing interviews with five parents and seven burns-specialist health professionals provided feedback to ascertain content validity, and two-hundred and four parents/caregivers took part in the field testing. Rasch measurement theory (RMT) analyses and internal consistency tests were conducted to create a shortened version and for psychometric validation. The final conceptual framework included eight domains/individual scales: Physical Well-being, Confidence with Managing Burn Wound/Scar Treatments, Social Situations, Partner Relationship, Self-worth, Negative Mood, Parent Concerns about the Appearance of their Child's Burn Wounds/Scars, and Positive Growth. Seven scales had solutions from RMT analyses and passed internal consistency criteria. Confidence with Managing Burn Wound/Scar Treatments did not fit the Rasch model but was retained as a checklist based on theoretical insight. The CARe Burn Scale: Parent/Caregiver Form is the first and only burn-specific PROM that assesses parents' own health needs when caring for a child with a burn. |
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| Keywords: |
burn injuries; scars; patient-reported outcome measures; PROMs; scar management; quality of life; well-being; coping; parents; caregivers |
| College: |
Faculty of Medicine, Health and Life Sciences |
| Funders: |
This work is part of a program of research that has been funded by the Scar Free Foundation, Restore Burn and Wound Research and Dan’s Fund for Burns. |
| Issue: |
2 |
| Start Page: |
22 |
| End Page: |
22 |