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People from ethnic minorities seeking help for long COVID: a qualitative study

Nina Smyth Orcid Logo, Damien Ridge Orcid Logo, Tom Kingstone Orcid Logo, Dipesh P Gopal Orcid Logo, Nisreen A Alwan Orcid Logo, Alexa Wright, Ashish Chaudhry, Sophie Clark, Becky Band Orcid Logo, Carolyn A Chew-Graham Orcid Logo

British Journal of General Practice, Volume: 74, Issue: 749, Pages: e814 - e822

Swansea University Author: Becky Band Orcid Logo

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DOI (Published version): 10.3399/bjgp.2023.0631

Abstract

Background: People from ethnic minority groups are disproportionately affected by COVID-19, less likely to access primary health care, and have reported dissatisfaction with health care. Although the prevalence of long COVID in ethnic minority groups is unclear, such populations are underrepresented...

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Published in: British Journal of General Practice
ISSN: 0960-1643 1478-5242
Published: Royal College of General Practitioners 2024
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URI: https://cronfa.swan.ac.uk/Record/cronfa67968
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Although the prevalence of long COVID in ethnic minority groups is unclear, such populations are underrepresented in long-COVID specialist clinics and long-COVID lived-experience research, which informed the original long-COVID healthcare guidelines. Aim: To understand the lived experiences of long COVID in people from ethnic minority groups. Design and setting: Qualitative study of people living with long COVID in the UK. Method: Semi-structured interviews with people who self-disclosed long COVID were conducted between June 2022 and June 2023 via telephone or video call. Thematic analysis of the data was conducted. People who were living with long COVID, or caring for someone with long COVID, advised on all stages of the research. Results: Interviews were conducted with 31 participants representing diverse socioeconomic demographics. Help-seeking barriers included little awareness of long COVID or available support, and not feeling worthy of receiving care. Negative healthcare encounters were reported in primary health care; however, these services were crucial for accessing secondary or specialist care. There were further access difficulties and dissatisfaction with specialist care. Experiences of stigma and discrimination contributed to delays in seeking care and unsatisfactory experiences, resulting in feelings of mistrust in health care. 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The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care. 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spelling 2025-02-11T13:27:46.8435591 v2 67968 2024-10-11 People from ethnic minorities seeking help for long COVID: a qualitative study 06b53a31f254b004de8649a376ce2fbd 0000-0001-5403-1708 Becky Band Becky Band true false 2024-10-11 HSOC Background: People from ethnic minority groups are disproportionately affected by COVID-19, less likely to access primary health care, and have reported dissatisfaction with health care. Although the prevalence of long COVID in ethnic minority groups is unclear, such populations are underrepresented in long-COVID specialist clinics and long-COVID lived-experience research, which informed the original long-COVID healthcare guidelines. Aim: To understand the lived experiences of long COVID in people from ethnic minority groups. Design and setting: Qualitative study of people living with long COVID in the UK. Method: Semi-structured interviews with people who self-disclosed long COVID were conducted between June 2022 and June 2023 via telephone or video call. Thematic analysis of the data was conducted. People who were living with long COVID, or caring for someone with long COVID, advised on all stages of the research. Results: Interviews were conducted with 31 participants representing diverse socioeconomic demographics. Help-seeking barriers included little awareness of long COVID or available support, and not feeling worthy of receiving care. Negative healthcare encounters were reported in primary health care; however, these services were crucial for accessing secondary or specialist care. There were further access difficulties and dissatisfaction with specialist care. Experiences of stigma and discrimination contributed to delays in seeking care and unsatisfactory experiences, resulting in feelings of mistrust in health care. Conclusion: Empathy, validation of experiences, and fairness in recognition and support of healthcare needs are required to restore trust in health care and improve the experiences of people with long COVID. Journal Article British Journal of General Practice 74 749 e814 e822 Royal College of General Practitioners 0960-1643 1478-5242 ethnic minorities; long COVID; primary health care 28 11 2024 2024-11-28 10.3399/bjgp.2023.0631 COLLEGE NANME Health and Social Care School COLLEGE CODE HSOC Swansea University Another institution paid the OA fee This project was funded by the National Institute for Health and Care Research (NIHR) under its Research for Patient Benefit (RfPB) Programme (grant reference number: NIHR203106). The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care. Thanks also to West Midlands Applied Research Collaboration, which part-funds Carolyn Chew-Graham. 2025-02-11T13:27:46.8435591 2024-10-11T15:51:48.4378404 Faculty of Medicine, Health and Life Sciences The Centre for Innovative Ageing Nina Smyth 0000-0001-9047-6958 1 Damien Ridge 0000-0001-9245-5958 2 Tom Kingstone 0000-0001-9179-2303 3 Dipesh P Gopal 0000-0002-1787-7963 4 Nisreen A Alwan 0000-0002-4134-8463 5 Alexa Wright 6 Ashish Chaudhry 7 Sophie Clark 8 Becky Band 0000-0001-5403-1708 9 Carolyn A Chew-Graham 0000-0002-9722-9981 10 67968__33181__6e0a904a92ef4729a20faaf38a145a72.pdf 67968.VoR.pdf 2024-12-18T17:12:38.5883886 Output 134685 application/pdf Version of Record true © The Authors. This article is Open Access: CC BY 4.0 licence. true eng http://creativecommons.org/licences/by/4.0/
title People from ethnic minorities seeking help for long COVID: a qualitative study
spellingShingle People from ethnic minorities seeking help for long COVID: a qualitative study
Becky Band
title_short People from ethnic minorities seeking help for long COVID: a qualitative study
title_full People from ethnic minorities seeking help for long COVID: a qualitative study
title_fullStr People from ethnic minorities seeking help for long COVID: a qualitative study
title_full_unstemmed People from ethnic minorities seeking help for long COVID: a qualitative study
title_sort People from ethnic minorities seeking help for long COVID: a qualitative study
author_id_str_mv 06b53a31f254b004de8649a376ce2fbd
author_id_fullname_str_mv 06b53a31f254b004de8649a376ce2fbd_***_Becky Band
author Becky Band
author2 Nina Smyth
Damien Ridge
Tom Kingstone
Dipesh P Gopal
Nisreen A Alwan
Alexa Wright
Ashish Chaudhry
Sophie Clark
Becky Band
Carolyn A Chew-Graham
format Journal article
container_title British Journal of General Practice
container_volume 74
container_issue 749
container_start_page e814
publishDate 2024
institution Swansea University
issn 0960-1643
1478-5242
doi_str_mv 10.3399/bjgp.2023.0631
publisher Royal College of General Practitioners
college_str Faculty of Medicine, Health and Life Sciences
hierarchytype
hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str The Centre for Innovative Ageing{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}The Centre for Innovative Ageing
document_store_str 1
active_str 0
description Background: People from ethnic minority groups are disproportionately affected by COVID-19, less likely to access primary health care, and have reported dissatisfaction with health care. Although the prevalence of long COVID in ethnic minority groups is unclear, such populations are underrepresented in long-COVID specialist clinics and long-COVID lived-experience research, which informed the original long-COVID healthcare guidelines. Aim: To understand the lived experiences of long COVID in people from ethnic minority groups. Design and setting: Qualitative study of people living with long COVID in the UK. Method: Semi-structured interviews with people who self-disclosed long COVID were conducted between June 2022 and June 2023 via telephone or video call. Thematic analysis of the data was conducted. People who were living with long COVID, or caring for someone with long COVID, advised on all stages of the research. Results: Interviews were conducted with 31 participants representing diverse socioeconomic demographics. Help-seeking barriers included little awareness of long COVID or available support, and not feeling worthy of receiving care. Negative healthcare encounters were reported in primary health care; however, these services were crucial for accessing secondary or specialist care. There were further access difficulties and dissatisfaction with specialist care. Experiences of stigma and discrimination contributed to delays in seeking care and unsatisfactory experiences, resulting in feelings of mistrust in health care. Conclusion: Empathy, validation of experiences, and fairness in recognition and support of healthcare needs are required to restore trust in health care and improve the experiences of people with long COVID.
published_date 2024-11-28T08:16:08Z
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score 11.058331

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