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Exploring the lived experience of Long Covid in black and minority ethnic groups in the UK: Protocol for qualitative interviews and art-based methods
,
Nisreen A. Alwan ,
Becky Band ,
Ashish Chaudhry,
Carolyn A. Chew-Graham ,
Dipesh Gopal ,
Monique Jackson,
Tom Kingstone,
Alexa Wright,
Damien Ridge
PLOS ONE, Volume: 17, Issue: 10, Start page: e0275166
Swansea University Author:
Becky Band
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DOI (Published version): 10.1371/journal.pone.0275166
Abstract
Some people experience prolonged symptoms following an acute COVID-19 infection including fatigue, chest pain and breathlessness, headache and cognitive impairment. When symptoms persist for over 12 weeks following the initial infection, and are not explained by an alternative diagnosis, the term po...
| Published in: | PLOS ONE |
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| ISSN: | 1932-6203 |
| Published: |
Public Library of Science (PLoS)
2022
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| Online Access: |
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| URI: | https://cronfa.swan.ac.uk/Record/cronfa67021 |
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| Abstract: |
Some people experience prolonged symptoms following an acute COVID-19 infection including fatigue, chest pain and breathlessness, headache and cognitive impairment. When symptoms persist for over 12 weeks following the initial infection, and are not explained by an alternative diagnosis, the term post-COVID-19 syndrome is used, or the patient-defined term of Long Covid. Understanding the lived experiences of Long Covid is crucial to supporting its management. However, research on patient experiences of Long Covid is currently not ethnically diverse enough. The study aim is to explore the lived experience of Long Covid, using qualitative interviews and art-based methods, among people from ethnically diverse backgrounds (in the UK), to better understand wider systems of support and healthcare support needs. Co-created artwork will be used to build on the interview findings. A purposive sampling strategy will be used to gain diverse experiences of Long Covid, sampling by demographics, geographic locations and experiences of Long Covid. Individuals (aged >18 years) from Black and ethnic minority backgrounds, who self-report Long Covid symptoms, will be invited to take part in a semi-structured interview. Interviews will be analysed thematically. A sub-sample of participants will be invited to co-create visual artwork to further explore shared narratives of Long Covid, enhance storytelling and increase understanding about the condition. A patient advisory group, representing diversity in ethnicity and experiences of Long Covid, will inform all research stages. Stakeholder workshops with healthcare professionals and persons, systems or networks important to people’s management of Long Covid, will advise on the integration of findings to inform management of Long Covid. The study will use patient narratives from people from diverse ethnic backgrounds, to raise awareness of Long Covid and help inform management of Long Covid and how wider social systems and networks may inform better healthcare service access and experiences. |
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| College: |
Faculty of Medicine, Health and Life Sciences |
| Funders: |
This is research supported by the
Department of Health and Social Care and the
National Institute for Health and Care Research
(NIHR) grant NIHR203106 under the Research for
Patient Benefit programme. The views expressed
are those of the author(s) and not necessarily
those of the National Health Service, the NIHR, or
the Department of Health. The funders had no role
in study design, data collection and analysis,
decision to publish, or preparation of the
manuscript. |
| Issue: |
10 |
| Start Page: |
e0275166 |