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The National Institutes of Health Patient-Reported Outcomes Measurement Information System (PROMIS): a view from the UK

Jonathan Evans Orcid Logo, Alexander Smith Orcid Logo, Chris Gibbons, Jordi Alonso, Jose Valderas

Patient Related Outcome Measures, Volume: Volume 9, Pages: 345 - 352

Swansea University Author: Alexander Smith Orcid Logo

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DOI (Published version): 10.2147/prom.s141378

Abstract

The interest in patient-reported outcome measures (PROMs) continues to increase as recognition of their potential utility rises in an effort to make health systems more patient-centered. The US National Institutes of Health (NIH) Patient-Reported Outcomes Measurement Information System® (PROMIS®) ha...

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Published in: Patient Related Outcome Measures
ISSN: 1179-271X
Published: Informa UK Limited 2018
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URI: https://cronfa.swan.ac.uk/Record/cronfa67748
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spelling v2 67748 2024-09-19 The National Institutes of Health Patient-Reported Outcomes Measurement Information System (PROMIS): a view from the UK a7a45e9adb57476de1eb1ae5613d2098 0000-0001-9656-6751 Alexander Smith Alexander Smith true false 2024-09-19 HSOC The interest in patient-reported outcome measures (PROMs) continues to increase as recognition of their potential utility rises in an effort to make health systems more patient-centered. The US National Institutes of Health (NIH) Patient-Reported Outcomes Measurement Information System® (PROMIS®) has used state of the art psychometric and statistical techniques to create a universal PROMs language, with potential application across the whole spectrum of health conditions, languages, and geographic locations. PROMIS offers a versatile platform where specific health domains are assessed using both standardized short forms and computerized adaptive tests, which are automatically tailored to individual patients. The scores of each health domain or a standardized profile of multiple domains are all scored on a common metric scale. PROMIS is increasingly recognized as the international gold standard for patient-centered assessment, although the use of these tools in the UK is limited. In this review, the developmental methodology of the PROMIS is described with discussion of its relevant strengths and limitations for use in the UK. We provide a case study of the largest application of the PROMIS tools in the UK as an example of straightforward integration into health-care research. Barriers to the uptake of PROMIS in the UK include the technology requirement, measurement tradition, and lack of a clear understanding of its benefits, and although potential stakeholders should cautiously consider its use, its impressive potential and increasing international utilization should be recognized. Journal Article Patient Related Outcome Measures Volume 9 345 352 Informa UK Limited 1179-271X outcomes, patient reported outcomes, quality of life, health-related quality of life, PROMIS 24 10 2018 2018-10-24 10.2147/prom.s141378 COLLEGE NANME Health and Social Care School COLLEGE CODE HSOC Swansea University Other 2024-10-21T16:15:22.9664897 2024-09-19T15:19:42.4324707 Faculty of Medicine, Health and Life Sciences School of Health and Social Care - Therapies Jonathan Evans 0000-0003-0090-1012 1 Alexander Smith 0000-0001-9656-6751 2 Chris Gibbons 3 Jordi Alonso 4 Jose Valderas 5 67748__32664__10b2f09612e8447089e211833e254d4b.pdf 67748.VoR.pdf 2024-10-21T16:13:13.5445130 Output 1171822 application/pdf Version of Record true © 2018 The Author(s). This work is licensed under the terms of a Creative Commons Attribution - Non Commercial (unported, v3.0) License. true eng https://creativecommons.org/licenses/by-nc/3.0/
title The National Institutes of Health Patient-Reported Outcomes Measurement Information System (PROMIS): a view from the UK
spellingShingle The National Institutes of Health Patient-Reported Outcomes Measurement Information System (PROMIS): a view from the UK
Alexander Smith
title_short The National Institutes of Health Patient-Reported Outcomes Measurement Information System (PROMIS): a view from the UK
title_full The National Institutes of Health Patient-Reported Outcomes Measurement Information System (PROMIS): a view from the UK
title_fullStr The National Institutes of Health Patient-Reported Outcomes Measurement Information System (PROMIS): a view from the UK
title_full_unstemmed The National Institutes of Health Patient-Reported Outcomes Measurement Information System (PROMIS): a view from the UK
title_sort The National Institutes of Health Patient-Reported Outcomes Measurement Information System (PROMIS): a view from the UK
author_id_str_mv a7a45e9adb57476de1eb1ae5613d2098
author_id_fullname_str_mv a7a45e9adb57476de1eb1ae5613d2098_***_Alexander Smith
author Alexander Smith
author2 Jonathan Evans
Alexander Smith
Chris Gibbons
Jordi Alonso
Jose Valderas
format Journal article
container_title Patient Related Outcome Measures
container_volume Volume 9
container_start_page 345
publishDate 2018
institution Swansea University
issn 1179-271X
doi_str_mv 10.2147/prom.s141378
publisher Informa UK Limited
college_str Faculty of Medicine, Health and Life Sciences
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hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str School of Health and Social Care - Therapies{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}School of Health and Social Care - Therapies
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description The interest in patient-reported outcome measures (PROMs) continues to increase as recognition of their potential utility rises in an effort to make health systems more patient-centered. The US National Institutes of Health (NIH) Patient-Reported Outcomes Measurement Information System® (PROMIS®) has used state of the art psychometric and statistical techniques to create a universal PROMs language, with potential application across the whole spectrum of health conditions, languages, and geographic locations. PROMIS offers a versatile platform where specific health domains are assessed using both standardized short forms and computerized adaptive tests, which are automatically tailored to individual patients. The scores of each health domain or a standardized profile of multiple domains are all scored on a common metric scale. PROMIS is increasingly recognized as the international gold standard for patient-centered assessment, although the use of these tools in the UK is limited. In this review, the developmental methodology of the PROMIS is described with discussion of its relevant strengths and limitations for use in the UK. We provide a case study of the largest application of the PROMIS tools in the UK as an example of straightforward integration into health-care research. Barriers to the uptake of PROMIS in the UK include the technology requirement, measurement tradition, and lack of a clear understanding of its benefits, and although potential stakeholders should cautiously consider its use, its impressive potential and increasing international utilization should be recognized.
published_date 2018-10-24T16:15:21Z
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