Journal article 61 views 14 downloads
The National Institutes of Health Patient-Reported Outcomes Measurement Information System (PROMIS): a view from the UK
,
Alexander Smith ,
Chris Gibbons,
Jordi Alonso,
Jose Valderas
Patient Related Outcome Measures, Volume: Volume 9, Pages: 345 - 352
Swansea University Author:
Alexander Smith
-
PDF | Version of Record
© 2018 The Author(s). This work is licensed under the terms of a Creative Commons Attribution - Non Commercial (unported, v3.0) License.
Download (1.12MB)
DOI (Published version): 10.2147/prom.s141378
Abstract
The interest in patient-reported outcome measures (PROMs) continues to increase as recognition of their potential utility rises in an effort to make health systems more patient-centered. The US National Institutes of Health (NIH) Patient-Reported Outcomes Measurement Information System® (PROMIS®) ha...
| Published in: | Patient Related Outcome Measures |
|---|---|
| ISSN: | 1179-271X |
| Published: |
Informa UK Limited
2018
|
| Online Access: |
Check full text
|
| URI: | https://cronfa.swan.ac.uk/Record/cronfa67748 |
| Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
| Abstract: |
The interest in patient-reported outcome measures (PROMs) continues to increase as recognition of their potential utility rises in an effort to make health systems more patient-centered. The US National Institutes of Health (NIH) Patient-Reported Outcomes Measurement Information System® (PROMIS®) has used state of the art psychometric and statistical techniques to create a universal PROMs language, with potential application across the whole spectrum of health conditions, languages, and geographic locations. PROMIS offers a versatile platform where specific health domains are assessed using both standardized short forms and computerized adaptive tests, which are automatically tailored to individual patients. The scores of each health domain or a standardized profile of multiple domains are all scored on a common metric scale. PROMIS is increasingly recognized as the international gold standard for patient-centered assessment, although the use of these tools in the UK is limited. In this review, the developmental methodology of the PROMIS is described with discussion of its relevant strengths and limitations for use in the UK. We provide a case study of the largest application of the PROMIS tools in the UK as an example of straightforward integration into health-care research. Barriers to the uptake of PROMIS in the UK include the technology requirement, measurement tradition, and lack of a clear understanding of its benefits, and although potential stakeholders should cautiously consider its use, its impressive potential and increasing international utilization should be recognized. |
|---|---|
| Keywords: |
outcomes, patient reported outcomes, quality of life, health-related quality of life, PROMIS |
| College: |
Faculty of Medicine, Health and Life Sciences |
| Start Page: |
345 |
| End Page: |
352 |