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Qualitative study of the consequences of vaccine-induced immune thrombocytopenia and thrombosis: the experiences of family members

Paul Bennett, Filiz Celik, Jenna Winstanley, Beverley J Hunt, Sue Pavord

BMJ Open, Volume: 13, Issue: 12, Start page: e080363

Swansea University Authors: Paul Bennett, Filiz Celik

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DOI (Published version): 10.1136/bmjopen-2023-080363

Abstract

Objectives : To explore the experiences of family members of patients who died or survived following a diagnosis of vaccine-induced immune thrombocytopenia and thrombosis (VITT). Design; A semistructured qualitative study, conducted via Zoom. Setting: Participants discussed their experiences during...

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Published in: BMJ Open
ISSN: 2044-6055 2044-6055
Published: BMJ 2023
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URI: https://cronfa.swan.ac.uk/Record/cronfa65866
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last_indexed 2024-11-25T14:17:02Z
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spelling 2024-04-17T16:25:24.2987152 v2 65866 2024-03-19 Qualitative study of the consequences of vaccine-induced immune thrombocytopenia and thrombosis: the experiences of family members 20803717bf274c582f30f80916c596d3 Paul Bennett Paul Bennett true false fa3b66a6d140d7ead7907869ee9448e7 Filiz Celik Filiz Celik true false 2024-03-19 Objectives : To explore the experiences of family members of patients who died or survived following a diagnosis of vaccine-induced immune thrombocytopenia and thrombosis (VITT). Design; A semistructured qualitative study, conducted via Zoom. Setting: Participants discussed their experiences during hospitalisation and following discharge. Participants: Sixteen family members of patients with VITT (survivors=11; bereaved=5), recruited via a Facebook support group and advertising on Twitter. Results: Analysis identified two themes common to both groups of participants: the stress of hospitalisation and the experience of multiple losses. A third theme, living with VITT, was unique to the survivor group and a fourth, battling against the system, was predominantly reported by bereaved participants. Conclusion: This is a significantly challenged group of people, with multiple emotional, financial, social and psychological losses. These losses have been compounded by experiences of limited governmental and societal recognition of the problems they face. Journal Article BMJ Open 13 12 e080363 BMJ 2044-6055 2044-6055 9 12 2023 2023-12-09 10.1136/bmjopen-2023-080363 COLLEGE NANME COLLEGE CODE Swansea University SU Library paid the OA fee (TA Institutional Deal) Swansea University 2024-04-17T16:25:24.2987152 2024-03-19T13:13:16.2040470 Faculty of Medicine, Health and Life Sciences Swansea University Medical School - Medicine Paul Bennett 1 Filiz Celik 2 Jenna Winstanley 3 Beverley J Hunt 4 Sue Pavord 5 65866__29753__6ab295ac670e417788b397ccf16691e3.pdf 65866.VOR.pdf 2024-03-19T13:19:17.1640812 Output 248673 application/pdf Version of Record true This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license, which permits others to copy, redistribute, remix, transform and build upon this work for any purpose, provided the original work is properly cited. true eng https://creativecommons.org/licenses/by/4.0/
title Qualitative study of the consequences of vaccine-induced immune thrombocytopenia and thrombosis: the experiences of family members
spellingShingle Qualitative study of the consequences of vaccine-induced immune thrombocytopenia and thrombosis: the experiences of family members
Paul Bennett
Filiz Celik
title_short Qualitative study of the consequences of vaccine-induced immune thrombocytopenia and thrombosis: the experiences of family members
title_full Qualitative study of the consequences of vaccine-induced immune thrombocytopenia and thrombosis: the experiences of family members
title_fullStr Qualitative study of the consequences of vaccine-induced immune thrombocytopenia and thrombosis: the experiences of family members
title_full_unstemmed Qualitative study of the consequences of vaccine-induced immune thrombocytopenia and thrombosis: the experiences of family members
title_sort Qualitative study of the consequences of vaccine-induced immune thrombocytopenia and thrombosis: the experiences of family members
author_id_str_mv 20803717bf274c582f30f80916c596d3
fa3b66a6d140d7ead7907869ee9448e7
author_id_fullname_str_mv 20803717bf274c582f30f80916c596d3_***_Paul Bennett
fa3b66a6d140d7ead7907869ee9448e7_***_Filiz Celik
author Paul Bennett
Filiz Celik
author2 Paul Bennett
Filiz Celik
Jenna Winstanley
Beverley J Hunt
Sue Pavord
format Journal article
container_title BMJ Open
container_volume 13
container_issue 12
container_start_page e080363
publishDate 2023
institution Swansea University
issn 2044-6055
2044-6055
doi_str_mv 10.1136/bmjopen-2023-080363
publisher BMJ
college_str Faculty of Medicine, Health and Life Sciences
hierarchytype
hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str Swansea University Medical School - Medicine{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}Swansea University Medical School - Medicine
document_store_str 1
active_str 0
description Objectives : To explore the experiences of family members of patients who died or survived following a diagnosis of vaccine-induced immune thrombocytopenia and thrombosis (VITT). Design; A semistructured qualitative study, conducted via Zoom. Setting: Participants discussed their experiences during hospitalisation and following discharge. Participants: Sixteen family members of patients with VITT (survivors=11; bereaved=5), recruited via a Facebook support group and advertising on Twitter. Results: Analysis identified two themes common to both groups of participants: the stress of hospitalisation and the experience of multiple losses. A third theme, living with VITT, was unique to the survivor group and a fourth, battling against the system, was predominantly reported by bereaved participants. Conclusion: This is a significantly challenged group of people, with multiple emotional, financial, social and psychological losses. These losses have been compounded by experiences of limited governmental and societal recognition of the problems they face.
published_date 2023-12-09T20:29:15Z
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