Journal article 514 views 64 downloads
Living with vaccine-induced immune thrombocytopenia and thrombosis: a qualitative study
BMJ Open, Volume: 13, Issue: 7, Start page: e072658
Swansea University Authors: Paul Bennett, Filiz Celik
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© Author(s) 2023. Distributed under the terms of a Creative Commons Attribution Non Commercial 4.0 Licence (CC BY-NC 4.0).
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DOI (Published version): 10.1136/bmjopen-2023-072658
Abstract
Objectives: To explore the experiences of people up to 18 months after being diagnosed with vaccine-induced immune thrombocytopenia and thrombosis (VITT). Design: A semistructured qualitative study, conducted via Zoom, of a cohort of people with VITT. Setting: Participants discussed their experience...
| Published in: | BMJ Open |
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| ISSN: | 2044-6055 2044-6055 |
| Published: |
BMJ
2023
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| Online Access: |
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| URI: | https://cronfa.swan.ac.uk/Record/cronfa63896 |
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| Abstract: |
Objectives: To explore the experiences of people up to 18 months after being diagnosed with vaccine-induced immune thrombocytopenia and thrombosis (VITT). Design: A semistructured qualitative study, conducted via Zoom, of a cohort of people with VITT. Setting: Participants discussed their experiences of hospitalisation and following discharge. Participants: 14 individuals diagnosed with VITT, recruited via a Facebook support group and advertising on Twitter. Results: Thematic analysis identified challenges of obtaining medical care and diagnosis; fear of the severity of symptoms and unclear prognosis; and lack of family support due to isolation imposed by the COVID-19 pandemic. Once home, participants experienced continued significant symptoms; fear of recurrence; inadequate medical knowledge of their condition; and difficulties coping with residual physical disabilities and psychosocial losses. Also reported were feelings of isolation and abandonment due to lack of government support. Conclusions: This is a significantly challenged group of people, with multiple health, financial, social and psychological losses. These losses have been compounded by experiences of limited governmental and societal recognition of the problems they face. |
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| Keywords: |
Vaccine-induced immune thrombocytopenia and thrombosis, VITT, qualitative study, public health, psychology |
| College: |
Faculty of Medicine, Health and Life Sciences |
| Funders: |
Swansea University |
| Issue: |
7 |
| Start Page: |
e072658 |