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Living with vaccine-induced immune thrombocytopenia and thrombosis: a qualitative study

Paul Bennett, Filiz Celik, Jenna Winstanley, Beverley J Hunt, Sue Pavord

BMJ Open, Volume: 13, Issue: 7, Start page: e072658

Swansea University Authors: Paul Bennett, Filiz Celik

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DOI (Published version): 10.1136/bmjopen-2023-072658

Abstract

Objectives: To explore the experiences of people up to 18 months after being diagnosed with vaccine-induced immune thrombocytopenia and thrombosis (VITT). Design: A semistructured qualitative study, conducted via Zoom, of a cohort of people with VITT. Setting: Participants discussed their experience...

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Published in: BMJ Open
ISSN: 2044-6055 2044-6055
Published: BMJ 2023
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URI: https://cronfa.swan.ac.uk/Record/cronfa63896
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spelling v2 63896 2023-07-17 Living with vaccine-induced immune thrombocytopenia and thrombosis: a qualitative study 20803717bf274c582f30f80916c596d3 Paul Bennett Paul Bennett true false fa3b66a6d140d7ead7907869ee9448e7 Filiz Celik Filiz Celik true false 2023-07-17 FGMHL Objectives: To explore the experiences of people up to 18 months after being diagnosed with vaccine-induced immune thrombocytopenia and thrombosis (VITT). Design: A semistructured qualitative study, conducted via Zoom, of a cohort of people with VITT. Setting: Participants discussed their experiences of hospitalisation and following discharge. Participants: 14 individuals diagnosed with VITT, recruited via a Facebook support group and advertising on Twitter. Results: Thematic analysis identified challenges of obtaining medical care and diagnosis; fear of the severity of symptoms and unclear prognosis; and lack of family support due to isolation imposed by the COVID-19 pandemic. Once home, participants experienced continued significant symptoms; fear of recurrence; inadequate medical knowledge of their condition; and difficulties coping with residual physical disabilities and psychosocial losses. Also reported were feelings of isolation and abandonment due to lack of government support. Conclusions: This is a significantly challenged group of people, with multiple health, financial, social and psychological losses. These losses have been compounded by experiences of limited governmental and societal recognition of the problems they face. Journal Article BMJ Open 13 7 e072658 BMJ 2044-6055 2044-6055 Vaccine-induced immune thrombocytopenia and thrombosis, VITT, qualitative study, public health, psychology 9 7 2023 2023-07-09 10.1136/bmjopen-2023-072658 http://dx.doi.org/10.1136/bmjopen-2023-072658 COLLEGE NANME Medicine, Health and Life Science - Faculty COLLEGE CODE FGMHL Swansea University SU Library paid the OA fee (TA Institutional Deal) Swansea University 2023-08-23T12:06:00.1809664 2023-07-17T12:06:52.5680860 Faculty of Medicine, Health and Life Sciences School of Psychology Paul Bennett 1 Filiz Celik 2 Jenna Winstanley 3 Beverley J Hunt 4 Sue Pavord 5 63896__28130__bccc61fed0c24ae98dbb0ecf4265c574.pdf 63896.VOR.pdf 2023-07-17T12:12:46.3441876 Output 261386 application/pdf Version of Record true © Author(s) 2023. Distributed under the terms of a Creative Commons Attribution Non Commercial 4.0 Licence (CC BY-NC 4.0). true eng https://creativecommons.org/licenses/by-nc/4.0/
title Living with vaccine-induced immune thrombocytopenia and thrombosis: a qualitative study
spellingShingle Living with vaccine-induced immune thrombocytopenia and thrombosis: a qualitative study
Paul Bennett
Filiz Celik
title_short Living with vaccine-induced immune thrombocytopenia and thrombosis: a qualitative study
title_full Living with vaccine-induced immune thrombocytopenia and thrombosis: a qualitative study
title_fullStr Living with vaccine-induced immune thrombocytopenia and thrombosis: a qualitative study
title_full_unstemmed Living with vaccine-induced immune thrombocytopenia and thrombosis: a qualitative study
title_sort Living with vaccine-induced immune thrombocytopenia and thrombosis: a qualitative study
author_id_str_mv 20803717bf274c582f30f80916c596d3
fa3b66a6d140d7ead7907869ee9448e7
author_id_fullname_str_mv 20803717bf274c582f30f80916c596d3_***_Paul Bennett
fa3b66a6d140d7ead7907869ee9448e7_***_Filiz Celik
author Paul Bennett
Filiz Celik
author2 Paul Bennett
Filiz Celik
Jenna Winstanley
Beverley J Hunt
Sue Pavord
format Journal article
container_title BMJ Open
container_volume 13
container_issue 7
container_start_page e072658
publishDate 2023
institution Swansea University
issn 2044-6055
2044-6055
doi_str_mv 10.1136/bmjopen-2023-072658
publisher BMJ
college_str Faculty of Medicine, Health and Life Sciences
hierarchytype
hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str School of Psychology{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}School of Psychology
url http://dx.doi.org/10.1136/bmjopen-2023-072658
document_store_str 1
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description Objectives: To explore the experiences of people up to 18 months after being diagnosed with vaccine-induced immune thrombocytopenia and thrombosis (VITT). Design: A semistructured qualitative study, conducted via Zoom, of a cohort of people with VITT. Setting: Participants discussed their experiences of hospitalisation and following discharge. Participants: 14 individuals diagnosed with VITT, recruited via a Facebook support group and advertising on Twitter. Results: Thematic analysis identified challenges of obtaining medical care and diagnosis; fear of the severity of symptoms and unclear prognosis; and lack of family support due to isolation imposed by the COVID-19 pandemic. Once home, participants experienced continued significant symptoms; fear of recurrence; inadequate medical knowledge of their condition; and difficulties coping with residual physical disabilities and psychosocial losses. Also reported were feelings of isolation and abandonment due to lack of government support. Conclusions: This is a significantly challenged group of people, with multiple health, financial, social and psychological losses. These losses have been compounded by experiences of limited governmental and societal recognition of the problems they face.
published_date 2023-07-09T12:06:01Z
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score 11.012924

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