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Informed Consent and Trisomy Screening: Delineating Parent and Professional Interests / EMYR WILE

Swansea University Author: EMYR WILE

DOI (Published version): 10.23889/SUthesis.63877

Abstract

The landmark decision of Montgomery established that patients’ right to self-determination and autonomy underpins the doctrine of informed consent. However, a growing body of medical research routinely conclude that consent for trisomy screening is less than informed. Consent for trisomy screening i...

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Published: Swansea, Wales, UK 2023
Institution: Swansea University
Degree level: Doctoral
Degree name: Ph.D
Supervisor: Morrow, Karen., Einion-Waller, Alys. and Rees, Trish.
URI: https://cronfa.swan.ac.uk/Record/cronfa63877
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first_indexed 2023-07-13T09:57:33Z
last_indexed 2023-07-13T09:57:33Z
id cronfa63877
recordtype RisThesis
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spelling v2 63877 2023-07-13 Informed Consent and Trisomy Screening: Delineating Parent and Professional Interests 4e7a44bfce53bbe7b4e57434fdd4c2f3 EMYR WILE EMYR WILE true false 2023-07-13 The landmark decision of Montgomery established that patients’ right to self-determination and autonomy underpins the doctrine of informed consent. However, a growing body of medical research routinely conclude that consent for trisomy screening is less than informed. Consent for trisomy screening is not a ‘one-off event’: it is a multistage and multifaceted process, requiring the involvement and integration of interprofessional practices across the pathway. However, Mordel exposed systemic frailties and disconnects in terms of the processes for securing parent consent for trisomy screening: a dimension often missed by medico-legal studies in this field. With the recent introduction of non-invasive prenatal testing (NIPT) and additional trisomies (Edwards’ and Patau’s Syndrome) to the traditional Down’s Syndrome screening programme, this has exacerbated existing concerns around parent decision-making and consent for screening. Using empirical methods, this study seeks to delineate parent and professional interests for providing and securing consent for trisomy screening. E-Thesis Swansea, Wales, UK Informed Consent, Trisomy, Law, Medical Ethics, Bioethics, Empirical Research 7 7 2023 2023-07-07 10.23889/SUthesis.63877 A selection of content is redacted or is partially redacted from this thesis to protect sensitive and personal information. COLLEGE NANME COLLEGE CODE Swansea University Morrow, Karen., Einion-Waller, Alys. and Rees, Trish. Doctoral Ph.D ESRC DTP 2023-10-05T14:57:31.2473891 2023-07-13T10:53:25.6868374 Faculty of Humanities and Social Sciences Hilary Rodham Clinton School of Law EMYR WILE 1 63877__28112__e1eecf6dc8214de7b3129a85132c3502.pdf 2023_Wile_EO.final.63877.pdf 2023-07-13T10:59:50.8209960 Output 3537331 application/pdf E-Thesis – open access true Copyright: The Author, Emyr O. Wile, 2023. true eng
title Informed Consent and Trisomy Screening: Delineating Parent and Professional Interests
spellingShingle Informed Consent and Trisomy Screening: Delineating Parent and Professional Interests
EMYR WILE
title_short Informed Consent and Trisomy Screening: Delineating Parent and Professional Interests
title_full Informed Consent and Trisomy Screening: Delineating Parent and Professional Interests
title_fullStr Informed Consent and Trisomy Screening: Delineating Parent and Professional Interests
title_full_unstemmed Informed Consent and Trisomy Screening: Delineating Parent and Professional Interests
title_sort Informed Consent and Trisomy Screening: Delineating Parent and Professional Interests
author_id_str_mv 4e7a44bfce53bbe7b4e57434fdd4c2f3
author_id_fullname_str_mv 4e7a44bfce53bbe7b4e57434fdd4c2f3_***_EMYR WILE
author EMYR WILE
author2 EMYR WILE
format E-Thesis
publishDate 2023
institution Swansea University
doi_str_mv 10.23889/SUthesis.63877
college_str Faculty of Humanities and Social Sciences
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hierarchy_top_id facultyofhumanitiesandsocialsciences
hierarchy_top_title Faculty of Humanities and Social Sciences
hierarchy_parent_id facultyofhumanitiesandsocialsciences
hierarchy_parent_title Faculty of Humanities and Social Sciences
department_str Hilary Rodham Clinton School of Law{{{_:::_}}}Faculty of Humanities and Social Sciences{{{_:::_}}}Hilary Rodham Clinton School of Law
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description The landmark decision of Montgomery established that patients’ right to self-determination and autonomy underpins the doctrine of informed consent. However, a growing body of medical research routinely conclude that consent for trisomy screening is less than informed. Consent for trisomy screening is not a ‘one-off event’: it is a multistage and multifaceted process, requiring the involvement and integration of interprofessional practices across the pathway. However, Mordel exposed systemic frailties and disconnects in terms of the processes for securing parent consent for trisomy screening: a dimension often missed by medico-legal studies in this field. With the recent introduction of non-invasive prenatal testing (NIPT) and additional trisomies (Edwards’ and Patau’s Syndrome) to the traditional Down’s Syndrome screening programme, this has exacerbated existing concerns around parent decision-making and consent for screening. Using empirical methods, this study seeks to delineate parent and professional interests for providing and securing consent for trisomy screening.
published_date 2023-07-07T14:57:32Z
_version_ 1778924129163935744
score 11.01753

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