E-Thesis 858 views 99 downloads
Informed Consent and Trisomy Screening: Delineating Parent and Professional Interests / EMYR WILE
Swansea University Author: EMYR WILE
DOI (Published version): 10.23889/SUthesis.63877
Abstract
The landmark decision of Montgomery established that patients’ right to self-determination and autonomy underpins the doctrine of informed consent. However, a growing body of medical research routinely conclude that consent for trisomy screening is less than informed. Consent for trisomy screening i...
| Published: |
Swansea, Wales, UK
2023
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| Institution: | Swansea University |
| Degree level: | Doctoral |
| Degree name: | Ph.D |
| Supervisor: | Morrow, Karen., Einion-Waller, Alys. and Rees, Trish. |
| URI: | https://cronfa.swan.ac.uk/Record/cronfa63877 |
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| Abstract: |
The landmark decision of Montgomery established that patients’ right to self-determination and autonomy underpins the doctrine of informed consent. However, a growing body of medical research routinely conclude that consent for trisomy screening is less than informed. Consent for trisomy screening is not a ‘one-off event’: it is a multistage and multifaceted process, requiring the involvement and integration of interprofessional practices across the pathway. However, Mordel exposed systemic frailties and disconnects in terms of the processes for securing parent consent for trisomy screening: a dimension often missed by medico-legal studies in this field. With the recent introduction of non-invasive prenatal testing (NIPT) and additional trisomies (Edwards’ and Patau’s Syndrome) to the traditional Down’s Syndrome screening programme, this has exacerbated existing concerns around parent decision-making and consent for screening. Using empirical methods, this study seeks to delineate parent and professional interests for providing and securing consent for trisomy screening. |
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| Item Description: |
A selection of content is redacted or is partially redacted from this thesis to protect sensitive and personal information. |
| Keywords: |
Informed Consent, Trisomy, Law, Medical Ethics, Bioethics, Empirical Research |
| College: |
Faculty of Humanities and Social Sciences |