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The Exeter Activity Unlimited statement on physical activity and exercise for cystic fibrosis: methodology and results of an international, multidisciplinary, evidence-driven expert consensus

Craig A Williams, Alan R Barker, Sarah Denford, Samantha B van Beurden, Mayara S Bianchim, Jessica E Caterini, Narelle S Cox, Kelly Mackintosh Orcid Logo, Melitta McNarry Orcid Logo, Sarah Rand, Jane E Schneiderman Orcid Logo, Greg D Wells, Peter Anderson, Daniel Beever, Z Beverley, Ronan Buckley, Brenda Button, Adam J Causer, Máire Curran, Tiffany J Dwyer Orcid Logo, Warren Gordon, Mathieu Gruet, Ryan A Harris Orcid Logo, Elpis Hatziagorou, HJ (Erik) Hulzebos, Asterios Kampouras, Lisa Morrison, Marietta N Cámara, Clare M Reilly, Abbey Sawyer, Zoe L Saynor, James Shelley, Grace Spencer, Gemma E Stanford, Don S Urquhart, Rachel Young, Owen W Tomlinson Orcid Logo, (on behalf of the Youth Activity Unlimited – A Strategic Research Centre of the UK Cystic Fibrosis Trust)

Chronic Respiratory Disease, Volume: 19, Start page: 147997312211216

Swansea University Authors: Kelly Mackintosh Orcid Logo, Melitta McNarry Orcid Logo

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Abstract

Background: The roles of physical activity (PA) and exercise within the management of cystic fibrosis (CF) are recognised by their inclusion in numerous standards of care and treatment guidelines. However, information is brief, and both PA and exercise as multi-faceted behaviours require extensive s...

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Published in: Chronic Respiratory Disease
ISSN: 1479-9731 1479-9731
Published: SAGE Publications 2022
Online Access: Check full text

URI: https://cronfa.swan.ac.uk/Record/cronfa60706
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Abstract: Background: The roles of physical activity (PA) and exercise within the management of cystic fibrosis (CF) are recognised by their inclusion in numerous standards of care and treatment guidelines. However, information is brief, and both PA and exercise as multi-faceted behaviours require extensive stakeholder input when developing and promoting such guidelines. Method: On 30th June and 1st July 2021, 39 stakeholders from 11 countries, including researchers, healthcare professionals and patients participated in a virtual conference to agree an evidence-based and informed expert consensus about PA and exercise for people with CF. This consensus presents the agreement across six themes: i) patient and system centred outcomes, ii) health benefits, iii) measurement, iv) prescription, v) clinical considerations, and vi) future directions. The consensus was achieved by a stepwise process, involving: i) written evidence-based synopses; ii) peer critique of synopses; iii) oral presentation to consensus group and peer challenge of revised synopses; and iv) anonymous voting on final proposed synopses for adoption to the consensus statement. Results: The final consensus document includes 24 statements which surpassed the consensus threshold (>80% agreement) out of 30 proposed statements. Conclusion: This consensus can be used to support health promotion by relevant stakeholders for people with CF.
Keywords: Respiratory disease, lifestyle, health, clinical practice
College: Faculty of Science and Engineering
Funders: This work is part of the ‘Youth Activity Unlimited’ Strategic Research Centre, funded by the Cystic Fibrosis Trust (SRC#008).
Start Page: 147997312211216