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Promotion of physical activity for adolescents with cystic fibrosis: A qualitative study of UK multi-disciplinary cystic fibrosis teams

S. Denford, K. Mackintosh, M. McNarry, A.R. Barker, C.A. Williams, Melitta McNarry Orcid Logo, Kelly Mackintosh Orcid Logo

Physiotherapy

Swansea University Authors: Melitta McNarry Orcid Logo, Kelly Mackintosh Orcid Logo

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DOI (Published version): 10.1016/j.physio.2019.01.012

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BackgroundThe Cystic Fibrosis Trust recently published a standards of care document which stated that patients should be given a physical activity (PA) programme based on their motivations, fitness, and willingness to be active. However, there remains much debate regarding the roles and responsibili...

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Published in: Physiotherapy
ISSN: 00319406
Published: 2019
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URI: https://cronfa.swan.ac.uk/Record/cronfa48388
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fullrecord <?xml version="1.0"?><rfc1807><datestamp>2019-03-11T12:34:09.7090683</datestamp><bib-version>v2</bib-version><id>48388</id><entry>2019-01-23</entry><title>Promotion of physical activity for adolescents with cystic fibrosis: A qualitative study of UK multi-disciplinary cystic fibrosis teams</title><swanseaauthors><author><sid>062f5697ff59f004bc8c713955988398</sid><ORCID>0000-0003-0813-7477</ORCID><firstname>Melitta</firstname><surname>McNarry</surname><name>Melitta McNarry</name><active>true</active><ethesisStudent>false</ethesisStudent></author><author><sid>bdb20e3f31bcccf95c7bc116070c4214</sid><ORCID>0000-0003-0355-6357</ORCID><firstname>Kelly</firstname><surname>Mackintosh</surname><name>Kelly Mackintosh</name><active>true</active><ethesisStudent>false</ethesisStudent></author></swanseaauthors><date>2019-01-23</date><deptcode>STSC</deptcode><abstract>BackgroundThe Cystic Fibrosis Trust recently published a standards of care document which stated that patients should be given a physical activity (PA) programme based on their motivations, fitness, and willingness to be active. However, there remains much debate regarding the roles and responsibilities for PA promotion, as well as &#x201C;optimal&#x201D; recommendations and advice. This study aimed to qualitatively explore cystic fibrosis (CF) multidisciplinary teams (MDTs) advice, recommendations and practices relating to PA promotion for adolescents with CF.MethodSemi-structured interviews were conducted with fifteen members of CF MDTs (11 physiotherapists, two dieticians and two paediatricians). Thematic analysis was used to analyse the data.ResultsMajor themes identified were: 1) structure of MDTs, 2) recommendations relating to intensities, durations and types of PA, and 3) use of exercise testing. Participants reported variation between MDTs in terms of who is responsible for promoting and supporting PA, the nature of advice given to patients, and the use of exercise testing. Participants consistently lacked confidence in their own or others&#x2019; knowledge to provide standardised recommendations to patients and highlighted that PA promotion and support was often overlooked during busy periods.ConclusionsDespite its importance, PA support and promotion is not always prioritised. MDTs lack confidence in their ability to promote PA. Standardised advice and training relating to optimal intensities, durations and types of PA would provide a baseline from which to individualise advice to each patient and could increase confidence in PA promotion among MDTs.</abstract><type>Journal Article</type><journal>Physiotherapy</journal><publisher/><issnPrint>00319406</issnPrint><keywords>Cystic fibrosis, respiratory, youth, qualitative, physical activity, exercise</keywords><publishedDay>31</publishedDay><publishedMonth>12</publishedMonth><publishedYear>2019</publishedYear><publishedDate>2019-12-31</publishedDate><doi>10.1016/j.physio.2019.01.012</doi><url/><notes/><college>COLLEGE NANME</college><department>Sport and Exercise Sciences</department><CollegeCode>COLLEGE CODE</CollegeCode><DepartmentCode>STSC</DepartmentCode><institution>Swansea University</institution><apcterm/><lastEdited>2019-03-11T12:34:09.7090683</lastEdited><Created>2019-01-23T10:37:44.0028527</Created><path><level id="1">Faculty of Science and Engineering</level><level id="2">School of Aerospace, Civil, Electrical, General and Mechanical Engineering - Sport and Exercise Sciences</level></path><authors><author><firstname>S.</firstname><surname>Denford</surname><order>1</order></author><author><firstname>K.</firstname><surname>Mackintosh</surname><order>2</order></author><author><firstname>M.</firstname><surname>McNarry</surname><order>3</order></author><author><firstname>A.R.</firstname><surname>Barker</surname><order>4</order></author><author><firstname>C.A.</firstname><surname>Williams</surname><order>5</order></author><author><firstname>Melitta</firstname><surname>McNarry</surname><orcid>0000-0003-0813-7477</orcid><order>6</order></author><author><firstname>Kelly</firstname><surname>Mackintosh</surname><orcid>0000-0003-0355-6357</orcid><order>7</order></author></authors><documents><document><filename>0048388-23012019104825.pdf</filename><originalFilename>denford2019SupplementaryMaterial.pdf</originalFilename><uploaded>2019-01-23T10:48:25.3030000</uploaded><type>Output</type><contentLength>278360</contentLength><contentType>application/pdf</contentType><version>Accepted Manuscript</version><cronfaStatus>true</cronfaStatus><embargoDate>2020-01-26T00:00:00.0000000</embargoDate><documentNotes>Supplementary material</documentNotes><copyrightCorrect>true</copyrightCorrect><language>eng</language></document><document><filename>0048388-01022019163129.pdf</filename><originalFilename>denford2019(2)v2.pdf</originalFilename><uploaded>2019-02-01T16:31:29.0800000</uploaded><type>Output</type><contentLength>16629022</contentLength><contentType>application/pdf</contentType><version>Accepted Manuscript</version><cronfaStatus>true</cronfaStatus><embargoDate>2020-01-26T00:00:00.0000000</embargoDate><copyrightCorrect>true</copyrightCorrect><language>eng</language></document></documents><OutputDurs/></rfc1807>
spelling 2019-03-11T12:34:09.7090683 v2 48388 2019-01-23 Promotion of physical activity for adolescents with cystic fibrosis: A qualitative study of UK multi-disciplinary cystic fibrosis teams 062f5697ff59f004bc8c713955988398 0000-0003-0813-7477 Melitta McNarry Melitta McNarry true false bdb20e3f31bcccf95c7bc116070c4214 0000-0003-0355-6357 Kelly Mackintosh Kelly Mackintosh true false 2019-01-23 STSC BackgroundThe Cystic Fibrosis Trust recently published a standards of care document which stated that patients should be given a physical activity (PA) programme based on their motivations, fitness, and willingness to be active. However, there remains much debate regarding the roles and responsibilities for PA promotion, as well as “optimal” recommendations and advice. This study aimed to qualitatively explore cystic fibrosis (CF) multidisciplinary teams (MDTs) advice, recommendations and practices relating to PA promotion for adolescents with CF.MethodSemi-structured interviews were conducted with fifteen members of CF MDTs (11 physiotherapists, two dieticians and two paediatricians). Thematic analysis was used to analyse the data.ResultsMajor themes identified were: 1) structure of MDTs, 2) recommendations relating to intensities, durations and types of PA, and 3) use of exercise testing. Participants reported variation between MDTs in terms of who is responsible for promoting and supporting PA, the nature of advice given to patients, and the use of exercise testing. Participants consistently lacked confidence in their own or others’ knowledge to provide standardised recommendations to patients and highlighted that PA promotion and support was often overlooked during busy periods.ConclusionsDespite its importance, PA support and promotion is not always prioritised. MDTs lack confidence in their ability to promote PA. Standardised advice and training relating to optimal intensities, durations and types of PA would provide a baseline from which to individualise advice to each patient and could increase confidence in PA promotion among MDTs. Journal Article Physiotherapy 00319406 Cystic fibrosis, respiratory, youth, qualitative, physical activity, exercise 31 12 2019 2019-12-31 10.1016/j.physio.2019.01.012 COLLEGE NANME Sport and Exercise Sciences COLLEGE CODE STSC Swansea University 2019-03-11T12:34:09.7090683 2019-01-23T10:37:44.0028527 Faculty of Science and Engineering School of Aerospace, Civil, Electrical, General and Mechanical Engineering - Sport and Exercise Sciences S. Denford 1 K. Mackintosh 2 M. McNarry 3 A.R. Barker 4 C.A. Williams 5 Melitta McNarry 0000-0003-0813-7477 6 Kelly Mackintosh 0000-0003-0355-6357 7 0048388-23012019104825.pdf denford2019SupplementaryMaterial.pdf 2019-01-23T10:48:25.3030000 Output 278360 application/pdf Accepted Manuscript true 2020-01-26T00:00:00.0000000 Supplementary material true eng 0048388-01022019163129.pdf denford2019(2)v2.pdf 2019-02-01T16:31:29.0800000 Output 16629022 application/pdf Accepted Manuscript true 2020-01-26T00:00:00.0000000 true eng
title Promotion of physical activity for adolescents with cystic fibrosis: A qualitative study of UK multi-disciplinary cystic fibrosis teams
spellingShingle Promotion of physical activity for adolescents with cystic fibrosis: A qualitative study of UK multi-disciplinary cystic fibrosis teams
Melitta McNarry
Kelly Mackintosh
title_short Promotion of physical activity for adolescents with cystic fibrosis: A qualitative study of UK multi-disciplinary cystic fibrosis teams
title_full Promotion of physical activity for adolescents with cystic fibrosis: A qualitative study of UK multi-disciplinary cystic fibrosis teams
title_fullStr Promotion of physical activity for adolescents with cystic fibrosis: A qualitative study of UK multi-disciplinary cystic fibrosis teams
title_full_unstemmed Promotion of physical activity for adolescents with cystic fibrosis: A qualitative study of UK multi-disciplinary cystic fibrosis teams
title_sort Promotion of physical activity for adolescents with cystic fibrosis: A qualitative study of UK multi-disciplinary cystic fibrosis teams
author_id_str_mv 062f5697ff59f004bc8c713955988398
bdb20e3f31bcccf95c7bc116070c4214
author_id_fullname_str_mv 062f5697ff59f004bc8c713955988398_***_Melitta McNarry
bdb20e3f31bcccf95c7bc116070c4214_***_Kelly Mackintosh
author Melitta McNarry
Kelly Mackintosh
author2 S. Denford
K. Mackintosh
M. McNarry
A.R. Barker
C.A. Williams
Melitta McNarry
Kelly Mackintosh
format Journal article
container_title Physiotherapy
publishDate 2019
institution Swansea University
issn 00319406
doi_str_mv 10.1016/j.physio.2019.01.012
college_str Faculty of Science and Engineering
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hierarchy_top_id facultyofscienceandengineering
hierarchy_top_title Faculty of Science and Engineering
hierarchy_parent_id facultyofscienceandengineering
hierarchy_parent_title Faculty of Science and Engineering
department_str School of Aerospace, Civil, Electrical, General and Mechanical Engineering - Sport and Exercise Sciences{{{_:::_}}}Faculty of Science and Engineering{{{_:::_}}}School of Aerospace, Civil, Electrical, General and Mechanical Engineering - Sport and Exercise Sciences
document_store_str 1
active_str 0
description BackgroundThe Cystic Fibrosis Trust recently published a standards of care document which stated that patients should be given a physical activity (PA) programme based on their motivations, fitness, and willingness to be active. However, there remains much debate regarding the roles and responsibilities for PA promotion, as well as “optimal” recommendations and advice. This study aimed to qualitatively explore cystic fibrosis (CF) multidisciplinary teams (MDTs) advice, recommendations and practices relating to PA promotion for adolescents with CF.MethodSemi-structured interviews were conducted with fifteen members of CF MDTs (11 physiotherapists, two dieticians and two paediatricians). Thematic analysis was used to analyse the data.ResultsMajor themes identified were: 1) structure of MDTs, 2) recommendations relating to intensities, durations and types of PA, and 3) use of exercise testing. Participants reported variation between MDTs in terms of who is responsible for promoting and supporting PA, the nature of advice given to patients, and the use of exercise testing. Participants consistently lacked confidence in their own or others’ knowledge to provide standardised recommendations to patients and highlighted that PA promotion and support was often overlooked during busy periods.ConclusionsDespite its importance, PA support and promotion is not always prioritised. MDTs lack confidence in their ability to promote PA. Standardised advice and training relating to optimal intensities, durations and types of PA would provide a baseline from which to individualise advice to each patient and could increase confidence in PA promotion among MDTs.
published_date 2019-12-31T03:58:49Z
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