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Long-term psychosocial impact of venous thromboembolism: a qualitative study in the community

Rachael Hunter, Simon Noble, Sarah Lewis, Paul Bennett

BMJ Open, Volume: 9, Issue: 2, Start page: e024805

Swansea University Authors: Rachael Hunter, Paul Bennett

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Abstract

Objectives: Venous thromboembolism is a serious, potentially traumatic, life-threatening condition and a major cause of mortality and morbidity. The aim of this study was to obtain detailed understandings of the impact of VTE and examine individual’s experiences over the first year since a first tim...

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Published in: BMJ Open
ISSN: 2044-6055 2044-6055
Published: 2019
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URI: https://cronfa.swan.ac.uk/Record/cronfa48252
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spelling 2020-07-31T09:14:18.3248305 v2 48252 2019-01-15 Long-term psychosocial impact of venous thromboembolism: a qualitative study in the community 677f0b38990c50c0cc8496382b2e44fc Rachael Hunter Rachael Hunter true false 20803717bf274c582f30f80916c596d3 Paul Bennett Paul Bennett true false 2019-01-15 HPS Objectives: Venous thromboembolism is a serious, potentially traumatic, life-threatening condition and a major cause of mortality and morbidity. The aim of this study was to obtain detailed understandings of the impact of VTE and examine individual’s experiences over the first year since a first time VTE.Design: A longitudinal qualitative interview study using inductive thematic analysis. This study presents follow-up data for eleven participants, first interviewed six months following a first-time VTE.Setting: Outpatients recruited a community haematology clinic in a one UK District General Hospital.Intervention: Audio-recorded semi-structured interviews with a sample of eleven participants who experienced a first-time DVT or PE within the previous year and completed similar interviews three months previously. Interviews were transcribed and analysed using inductive thematic analysis.Results: Four over-arching themes were identified: life changing and forever changed, the trauma of care, ‘thrombo-neuroses’ and through adversity comes growth. Theme content varied according to age and developmental stage, presence of VTE symptoms and the experience of diagnosis.Conclusions: The data demonstrates the psychosocial impact of VTE and its diagnosis as physically and psychologically challenging, and individuals reported being forever changed by the experience. Participants’ reported continued high levels of trauma and anxietysymptoms, triggered by physical (e.g. symptoms) and psychological (e.g. health anxiety,negative emotions) reminders of VTE. Wider primary care service issues includingmisdiagnosis maintained negative emotions and health anxiety with implications fo relationships with professionals. Targeted clinical interventions to better identify and supportindividuals at risk of distress and enhance psychological well-being and reduce distress arediscussed Journal Article BMJ Open 9 2 e024805 2044-6055 2044-6055 5 2 2019 2019-02-05 10.1136/bmjopen-2018-024805 COLLEGE NANME Psychology COLLEGE CODE HPS Swansea University 2020-07-31T09:14:18.3248305 2019-01-15T16:06:01.0832456 Faculty of Medicine, Health and Life Sciences School of Psychology Rachael Hunter 1 Simon Noble 2 Sarah Lewis 3 Paul Bennett 4 0048252-04032019103146.pdf 48252v2.pdf 2019-03-04T10:31:46.7770000 Output 532979 application/pdf Version of Record true 2019-03-03T00:00:00.0000000 Released under the terms of a Creative Commons Attribution Non Commercial License (CC-BY-NC). true eng
title Long-term psychosocial impact of venous thromboembolism: a qualitative study in the community
spellingShingle Long-term psychosocial impact of venous thromboembolism: a qualitative study in the community
Rachael Hunter
Paul Bennett
title_short Long-term psychosocial impact of venous thromboembolism: a qualitative study in the community
title_full Long-term psychosocial impact of venous thromboembolism: a qualitative study in the community
title_fullStr Long-term psychosocial impact of venous thromboembolism: a qualitative study in the community
title_full_unstemmed Long-term psychosocial impact of venous thromboembolism: a qualitative study in the community
title_sort Long-term psychosocial impact of venous thromboembolism: a qualitative study in the community
author_id_str_mv 677f0b38990c50c0cc8496382b2e44fc
20803717bf274c582f30f80916c596d3
author_id_fullname_str_mv 677f0b38990c50c0cc8496382b2e44fc_***_Rachael Hunter
20803717bf274c582f30f80916c596d3_***_Paul Bennett
author Rachael Hunter
Paul Bennett
author2 Rachael Hunter
Simon Noble
Sarah Lewis
Paul Bennett
format Journal article
container_title BMJ Open
container_volume 9
container_issue 2
container_start_page e024805
publishDate 2019
institution Swansea University
issn 2044-6055
2044-6055
doi_str_mv 10.1136/bmjopen-2018-024805
college_str Faculty of Medicine, Health and Life Sciences
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hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str School of Psychology{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}School of Psychology
document_store_str 1
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description Objectives: Venous thromboembolism is a serious, potentially traumatic, life-threatening condition and a major cause of mortality and morbidity. The aim of this study was to obtain detailed understandings of the impact of VTE and examine individual’s experiences over the first year since a first time VTE.Design: A longitudinal qualitative interview study using inductive thematic analysis. This study presents follow-up data for eleven participants, first interviewed six months following a first-time VTE.Setting: Outpatients recruited a community haematology clinic in a one UK District General Hospital.Intervention: Audio-recorded semi-structured interviews with a sample of eleven participants who experienced a first-time DVT or PE within the previous year and completed similar interviews three months previously. Interviews were transcribed and analysed using inductive thematic analysis.Results: Four over-arching themes were identified: life changing and forever changed, the trauma of care, ‘thrombo-neuroses’ and through adversity comes growth. Theme content varied according to age and developmental stage, presence of VTE symptoms and the experience of diagnosis.Conclusions: The data demonstrates the psychosocial impact of VTE and its diagnosis as physically and psychologically challenging, and individuals reported being forever changed by the experience. Participants’ reported continued high levels of trauma and anxietysymptoms, triggered by physical (e.g. symptoms) and psychological (e.g. health anxiety,negative emotions) reminders of VTE. Wider primary care service issues includingmisdiagnosis maintained negative emotions and health anxiety with implications fo relationships with professionals. Targeted clinical interventions to better identify and supportindividuals at risk of distress and enhance psychological well-being and reduce distress arediscussed
published_date 2019-02-05T03:58:37Z
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