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Caring for the Child at the End-of Life

Ruth Davies

Palliative Care for Children and Families: An Interdisciplinary Approach, Pages: 172 - 191

Swansea University Author: Ruth Davies

Abstract

Despite all our best efforts children and young people still die from Life-Limiting conditions. The aim of this chapter is to discuss current service provision in relation to their end-of–life care and identify the best of evidence-based practice. The focus at this stage must be on meeting the needs...

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Published in: Palliative Care for Children and Families: An Interdisciplinary Approach
Published: 2009
URI: https://cronfa.swan.ac.uk/Record/cronfa14056
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first_indexed 2013-07-23T12:11:36Z
last_indexed 2018-02-09T04:45:13Z
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spelling 2013-05-01T13:14:45.1228678 v2 14056 2013-01-25 Caring for the Child at the End-of Life f8b96236900b6b922a6be63037854d2c Ruth Davies Ruth Davies true false 2013-01-25 HNU Despite all our best efforts children and young people still die from Life-Limiting conditions. The aim of this chapter is to discuss current service provision in relation to their end-of–life care and identify the best of evidence-based practice. The focus at this stage must be on meeting the needs and wishes of the dying child or young person and their family and for this reason it will be shown how the ACT (2004) Care Pathway can facilitate this in practice. Having lost a much-loved teenage son to cancer, I write with personal as well as professional conviction about the importance of a ‘good death’, that is, one that is dignified and pain free. I believe this is the goal of high quality of end-of-life care, and an achievable on, but only if professionals commit to this ideal and apply a systematic evidence-based approach to care in practice. Meeting the needs and wishes of the dying child or young person as well as their family is essential if we are to achieve ‘good death’. This, in my estimation, is the Alpha and Omega of high quality end-of–life care. Book chapter Palliative Care for Children and Families: An Interdisciplinary Approach 172 191 End- of - life care for the dying child evidence-based systematic approach 31 12 2009 2009-12-31 Edited by Jayne Price and Partricia McNeilly COLLEGE NANME Nursing COLLEGE CODE HNU Swansea University 2013-05-01T13:14:45.1228678 2013-01-25T09:44:54.3861241 Faculty of Medicine, Health and Life Sciences School of Health and Social Care - Nursing Ruth Davies 1
title Caring for the Child at the End-of Life
spellingShingle Caring for the Child at the End-of Life
Ruth Davies
title_short Caring for the Child at the End-of Life
title_full Caring for the Child at the End-of Life
title_fullStr Caring for the Child at the End-of Life
title_full_unstemmed Caring for the Child at the End-of Life
title_sort Caring for the Child at the End-of Life
author_id_str_mv f8b96236900b6b922a6be63037854d2c
author_id_fullname_str_mv f8b96236900b6b922a6be63037854d2c_***_Ruth Davies
author Ruth Davies
author2 Ruth Davies
format Book chapter
container_title Palliative Care for Children and Families: An Interdisciplinary Approach
container_start_page 172
publishDate 2009
institution Swansea University
college_str Faculty of Medicine, Health and Life Sciences
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hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str School of Health and Social Care - Nursing{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}School of Health and Social Care - Nursing
document_store_str 0
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description Despite all our best efforts children and young people still die from Life-Limiting conditions. The aim of this chapter is to discuss current service provision in relation to their end-of–life care and identify the best of evidence-based practice. The focus at this stage must be on meeting the needs and wishes of the dying child or young person and their family and for this reason it will be shown how the ACT (2004) Care Pathway can facilitate this in practice. Having lost a much-loved teenage son to cancer, I write with personal as well as professional conviction about the importance of a ‘good death’, that is, one that is dignified and pain free. I believe this is the goal of high quality of end-of-life care, and an achievable on, but only if professionals commit to this ideal and apply a systematic evidence-based approach to care in practice. Meeting the needs and wishes of the dying child or young person as well as their family is essential if we are to achieve ‘good death’. This, in my estimation, is the Alpha and Omega of high quality end-of–life care.
published_date 2009-12-31T03:16:06Z
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score 11.012924

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