No Cover Image

Journal article 54 views 1 download

Wales’ participation in the OECD PaRIS survey: exploring the logistics of a large-scale patient-reported outcome survey

Michal Pruski Orcid Logo, Sarah Puntoni Orcid Logo, Kathleen Withers Orcid Logo, Sally Lewis Orcid Logo

IJQHC Communications, Volume: 6, Issue: 1, Start page: lyag025

Swansea University Author: Sally Lewis Orcid Logo

  • 71961.VOR.pdf

    PDF | Version of Record

    © The Author(s) 2026. Published by Oxford University Press on behalf of International Society for Quality in Health Care. This is an Open Access article distributed under the terms of the Creative Commons Attribution License.

    Download (2.03MB)

Check full text

DOI (Published version): 10.1093/ijcoms/lyag025

Abstract

Background: The Organisation for the Economic Co-operation and Development (OECD) undertook the Patient-Reported Indicator Survey (PaRIS) to understand if current healthcare delivery and policy were meeting people’s needs. Although the UK as a whole is an OECD member, Wales participated in the PaRIS...

Full description

Published in: IJQHC Communications
ISSN: 2634-5293
Published: Oxford University Press (OUP) 2026
Online Access: Check full text

URI: https://cronfa.swan.ac.uk/Record/cronfa71961
first_indexed 2026-05-21T22:02:17Z
last_indexed 2026-06-20T05:02:38Z
id cronfa71961
recordtype SURis
fullrecord <?xml version="1.0"?><rfc1807><datestamp>2026-06-19T15:14:46.1969721</datestamp><bib-version>v2</bib-version><id>71961</id><entry>2026-05-21</entry><title>Wales&#x2019; participation in the OECD PaRIS survey: exploring the logistics of a large-scale patient-reported outcome survey</title><swanseaauthors><author><sid>f800f55db95f30d9a4ebb0ed6e24fe8a</sid><ORCID>0000-0002-2369-2308</ORCID><firstname>Sally</firstname><surname>Lewis</surname><name>Sally Lewis</name><active>true</active><ethesisStudent>false</ethesisStudent></author></swanseaauthors><date>2026-05-21</date><deptcode>CBAE</deptcode><abstract>Background: The Organisation for the Economic Co-operation and Development (OECD) undertook the Patient-Reported Indicator Survey (PaRIS) to understand if current healthcare delivery and policy were meeting people&#x2019;s needs. Although the UK as a whole is an OECD member, Wales participated in the PaRIS study independently of the rest of the UK since healthcare is a devolved matter to the Welsh Government and Wales is internationally acknowledged for its work implementing Patient Reported Outcome Measures. Methods: Here, we describe and reflect on how PaRIS was implemented, discussing both the initial field trial and the final survey, which targeted GP practices and patients over the age of 45. We detail the governance structure used for the project, the various parties that cooperated to implement the project, and the stakeholder engagement approach utilized. We also provide descriptive statistics of the sampled GP practices and patients. Results: Out of 199 surveyed GP practices, 75 responded to the survey. Out of 109 600 sampled patients, 25 839 responded to the survey, out of which 7 706 patients were from the 75 recruited practices and met the PaRIS inclusion criteria. Participants were representative of the population of Wales with respect to urbanization levels, sex, as well as ethnicity. GP practices were provided with infographics, giving them insight into their patients&#x2019; health compared to patients&#x2019; health across Wales. While the OECD flagship PaRIS report has now been published, further work is being undertaken in Wales to utilize the available data. Conclusion: Wales achieved one of the most comprehensive datasets of all PaRIS nations, despite its small size. The data offered the participating GP practices an opportunity to understand how they and their patients compared to other practices across Wales. The data are now being employed to understand population health and drive policy change and healthcare improvement initiatives across the nation.</abstract><type>Journal Article</type><journal>IJQHC Communications</journal><volume>6</volume><journalNumber>1</journalNumber><paginationStart>lyag025</paginationStart><paginationEnd/><publisher>Oxford University Press (OUP)</publisher><placeOfPublication/><isbnPrint/><isbnElectronic/><issnPrint/><issnElectronic>2634-5293</issnElectronic><keywords>PROMs, PREMs, Surveys, Value-Based Healthcare</keywords><publishedDay>20</publishedDay><publishedMonth>5</publishedMonth><publishedYear>2026</publishedYear><publishedDate>2026-05-20</publishedDate><doi>10.1093/ijcoms/lyag025</doi><url/><notes/><college>COLLEGE NANME</college><department>Management School</department><CollegeCode>COLLEGE CODE</CollegeCode><DepartmentCode>CBAE</DepartmentCode><institution>Swansea University</institution><apcterm>Another institution paid the OA fee</apcterm><funders>This work was supported by the Welsh Value in Health Centre.</funders><projectreference/><lastEdited>2026-06-19T15:14:46.1969721</lastEdited><Created>2026-05-21T09:23:31.9372633</Created><path><level id="1">Faculty of Humanities and Social Sciences</level><level id="2">School of Management - Business Management</level></path><authors><author><firstname>Michal</firstname><surname>Pruski</surname><orcid>0000-0001-7582-1418</orcid><order>1</order></author><author><firstname>Sarah</firstname><surname>Puntoni</surname><orcid>0009-0002-1744-3273</orcid><order>2</order></author><author><firstname>Kathleen</firstname><surname>Withers</surname><orcid>0000-0001-9514-2025</orcid><order>3</order></author><author><firstname>Sally</firstname><surname>Lewis</surname><orcid>0000-0002-2369-2308</orcid><order>4</order></author></authors><documents><document><filename>71961__37020__983471a3ec9e4cfd90bbe98d7142c98e.pdf</filename><originalFilename>71961.VOR.pdf</originalFilename><uploaded>2026-06-19T15:12:12.0104784</uploaded><type>Output</type><contentLength>2130011</contentLength><contentType>application/pdf</contentType><version>Version of Record</version><cronfaStatus>true</cronfaStatus><documentNotes>&#xA9; The Author(s) 2026. Published by Oxford University Press on behalf of International Society for Quality in Health Care. This is an Open Access article distributed under the terms of the Creative Commons Attribution License.</documentNotes><copyrightCorrect>true</copyrightCorrect><language>eng</language><licence>https://creativecommons.org/licenses/by/4.0/</licence></document></documents><OutputDurs/></rfc1807>
spelling 2026-06-19T15:14:46.1969721 v2 71961 2026-05-21 Wales’ participation in the OECD PaRIS survey: exploring the logistics of a large-scale patient-reported outcome survey f800f55db95f30d9a4ebb0ed6e24fe8a 0000-0002-2369-2308 Sally Lewis Sally Lewis true false 2026-05-21 CBAE Background: The Organisation for the Economic Co-operation and Development (OECD) undertook the Patient-Reported Indicator Survey (PaRIS) to understand if current healthcare delivery and policy were meeting people’s needs. Although the UK as a whole is an OECD member, Wales participated in the PaRIS study independently of the rest of the UK since healthcare is a devolved matter to the Welsh Government and Wales is internationally acknowledged for its work implementing Patient Reported Outcome Measures. Methods: Here, we describe and reflect on how PaRIS was implemented, discussing both the initial field trial and the final survey, which targeted GP practices and patients over the age of 45. We detail the governance structure used for the project, the various parties that cooperated to implement the project, and the stakeholder engagement approach utilized. We also provide descriptive statistics of the sampled GP practices and patients. Results: Out of 199 surveyed GP practices, 75 responded to the survey. Out of 109 600 sampled patients, 25 839 responded to the survey, out of which 7 706 patients were from the 75 recruited practices and met the PaRIS inclusion criteria. Participants were representative of the population of Wales with respect to urbanization levels, sex, as well as ethnicity. GP practices were provided with infographics, giving them insight into their patients’ health compared to patients’ health across Wales. While the OECD flagship PaRIS report has now been published, further work is being undertaken in Wales to utilize the available data. Conclusion: Wales achieved one of the most comprehensive datasets of all PaRIS nations, despite its small size. The data offered the participating GP practices an opportunity to understand how they and their patients compared to other practices across Wales. The data are now being employed to understand population health and drive policy change and healthcare improvement initiatives across the nation. Journal Article IJQHC Communications 6 1 lyag025 Oxford University Press (OUP) 2634-5293 PROMs, PREMs, Surveys, Value-Based Healthcare 20 5 2026 2026-05-20 10.1093/ijcoms/lyag025 COLLEGE NANME Management School COLLEGE CODE CBAE Swansea University Another institution paid the OA fee This work was supported by the Welsh Value in Health Centre. 2026-06-19T15:14:46.1969721 2026-05-21T09:23:31.9372633 Faculty of Humanities and Social Sciences School of Management - Business Management Michal Pruski 0000-0001-7582-1418 1 Sarah Puntoni 0009-0002-1744-3273 2 Kathleen Withers 0000-0001-9514-2025 3 Sally Lewis 0000-0002-2369-2308 4 71961__37020__983471a3ec9e4cfd90bbe98d7142c98e.pdf 71961.VOR.pdf 2026-06-19T15:12:12.0104784 Output 2130011 application/pdf Version of Record true © The Author(s) 2026. Published by Oxford University Press on behalf of International Society for Quality in Health Care. This is an Open Access article distributed under the terms of the Creative Commons Attribution License. true eng https://creativecommons.org/licenses/by/4.0/
title Wales’ participation in the OECD PaRIS survey: exploring the logistics of a large-scale patient-reported outcome survey
spellingShingle Wales’ participation in the OECD PaRIS survey: exploring the logistics of a large-scale patient-reported outcome survey
Sally Lewis
title_short Wales’ participation in the OECD PaRIS survey: exploring the logistics of a large-scale patient-reported outcome survey
title_full Wales’ participation in the OECD PaRIS survey: exploring the logistics of a large-scale patient-reported outcome survey
title_fullStr Wales’ participation in the OECD PaRIS survey: exploring the logistics of a large-scale patient-reported outcome survey
title_full_unstemmed Wales’ participation in the OECD PaRIS survey: exploring the logistics of a large-scale patient-reported outcome survey
title_sort Wales’ participation in the OECD PaRIS survey: exploring the logistics of a large-scale patient-reported outcome survey
author_id_str_mv f800f55db95f30d9a4ebb0ed6e24fe8a
author_id_fullname_str_mv f800f55db95f30d9a4ebb0ed6e24fe8a_***_Sally Lewis
author Sally Lewis
author2 Michal Pruski
Sarah Puntoni
Kathleen Withers
Sally Lewis
format Journal article
container_title IJQHC Communications
container_volume 6
container_issue 1
container_start_page lyag025
publishDate 2026
institution Swansea University
issn 2634-5293
doi_str_mv 10.1093/ijcoms/lyag025
publisher Oxford University Press (OUP)
college_str Faculty of Humanities and Social Sciences
hierarchytype
hierarchy_top_id facultyofhumanitiesandsocialsciences
hierarchy_top_title Faculty of Humanities and Social Sciences
hierarchy_parent_id facultyofhumanitiesandsocialsciences
hierarchy_parent_title Faculty of Humanities and Social Sciences
department_str School of Management - Business Management{{{_:::_}}}Faculty of Humanities and Social Sciences{{{_:::_}}}School of Management - Business Management
document_store_str 1
active_str 0
description Background: The Organisation for the Economic Co-operation and Development (OECD) undertook the Patient-Reported Indicator Survey (PaRIS) to understand if current healthcare delivery and policy were meeting people’s needs. Although the UK as a whole is an OECD member, Wales participated in the PaRIS study independently of the rest of the UK since healthcare is a devolved matter to the Welsh Government and Wales is internationally acknowledged for its work implementing Patient Reported Outcome Measures. Methods: Here, we describe and reflect on how PaRIS was implemented, discussing both the initial field trial and the final survey, which targeted GP practices and patients over the age of 45. We detail the governance structure used for the project, the various parties that cooperated to implement the project, and the stakeholder engagement approach utilized. We also provide descriptive statistics of the sampled GP practices and patients. Results: Out of 199 surveyed GP practices, 75 responded to the survey. Out of 109 600 sampled patients, 25 839 responded to the survey, out of which 7 706 patients were from the 75 recruited practices and met the PaRIS inclusion criteria. Participants were representative of the population of Wales with respect to urbanization levels, sex, as well as ethnicity. GP practices were provided with infographics, giving them insight into their patients’ health compared to patients’ health across Wales. While the OECD flagship PaRIS report has now been published, further work is being undertaken in Wales to utilize the available data. Conclusion: Wales achieved one of the most comprehensive datasets of all PaRIS nations, despite its small size. The data offered the participating GP practices an opportunity to understand how they and their patients compared to other practices across Wales. The data are now being employed to understand population health and drive policy change and healthcare improvement initiatives across the nation.
published_date 2026-05-20T06:02:39Z
_version_ 1868490876157689856
score 11.109323

Similar Items