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Exploring the cultural perceptions of autism spectrum disorders (ASD) / KANEEZ MUSTARY

Swansea University Author: KANEEZ MUSTARY

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DOI (Published version): 10.23889/SUthesis.69927

Abstract

The aim of this thesis was to explore the impact of cultural constructions, generational perspectives, social stigma, daily living experiences, and patterns of help-seeking and access to ASD-related services across different global communities, by employing qualitative and quantitative research.The...

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Published: Swansea, Wales, UK 2025
Institution: Swansea University
Degree level: Doctoral
Degree name: Ph.D
Supervisor: Reed, Phil
URI: https://cronfa.swan.ac.uk/Record/cronfa69927
first_indexed 2025-07-09T09:45:38Z
last_indexed 2025-07-10T04:59:50Z
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recordtype RisThesis
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spelling 2025-07-09T11:04:11.9716472 v2 69927 2025-07-09 Exploring the cultural perceptions of autism spectrum disorders (ASD) df5e97d8f198c78eeb28fcbf64375d27 KANEEZ MUSTARY KANEEZ MUSTARY true false 2025-07-09 The aim of this thesis was to explore the impact of cultural constructions, generational perspectives, social stigma, daily living experiences, and patterns of help-seeking and access to ASD-related services across different global communities, by employing qualitative and quantitative research.The first qualitative study encompassed the first cross-country exploration of professionals’ views of a range of key areas related to ASD provision in Bangladesh, Indonesia and the UK. Professionals from each country expressed common concerns regarding the insufficiency of specialised support and training in effectively managing populations with ASD.The second qualitative study explored the parental perceptions of diagnosis, understanding of ASD, its associated behaviours, and experience of familial reactions to ASD, in Bangladesh, Indonesia, and the UK. The results suggest similarity across countries, and that different beliefs may be related to different cultural concerns, rather than differences in knowledge. It also highlights the need for more support for families, mental and financial, more training regarding ASD and interventions available, and support with inclusion into the society.The first quantitative study examined parent perceptions of ASD and its diagnosis, school provision, and predictors of satisfaction of school provision in Bangladesh, Zambia, Kenya, Greece and the UK. The results indicate significant cross-cultural variations in responding to research questions.The second quantitative study investigated parenting stress and coping to provide some exploratory data across five different countries: the UK, and Greece in Europe; Kenya, and Zambia, in Africa; and Bangladesh in Asia. The aim was to allow levels of parenting stress, the adoption of coping styles, and the impact of coping style on parenting stress for parents of children with ASD to be compared across the countries.This study could mark a starting point of developing understanding of ASD and their care needs and supporting professionals and parents to empower themselves, within their cultural contexts. E-Thesis Swansea, Wales, UK Culture, Perceptions, ASD 17 6 2025 2025-06-17 10.23889/SUthesis.69927 COLLEGE NANME COLLEGE CODE Swansea University Reed, Phil Doctoral Ph.D 2025-07-09T11:04:11.9716472 2025-07-09T10:42:39.7261130 Faculty of Medicine, Health and Life Sciences School of Psychology KANEEZ MUSTARY 1 69927__34714__139106e2dced475389a9c51cb78d6c17.pdf Mustary_Kaneez_PhD_Thesis_Final_Cronfa.pdf 2025-07-09T10:57:13.2478312 Output 4160973 application/pdf E-Thesis – open access true Copyright: The Author, Kaneez Mustary, 2025. true eng
title Exploring the cultural perceptions of autism spectrum disorders (ASD)
spellingShingle Exploring the cultural perceptions of autism spectrum disorders (ASD)
KANEEZ MUSTARY
title_short Exploring the cultural perceptions of autism spectrum disorders (ASD)
title_full Exploring the cultural perceptions of autism spectrum disorders (ASD)
title_fullStr Exploring the cultural perceptions of autism spectrum disorders (ASD)
title_full_unstemmed Exploring the cultural perceptions of autism spectrum disorders (ASD)
title_sort Exploring the cultural perceptions of autism spectrum disorders (ASD)
author_id_str_mv df5e97d8f198c78eeb28fcbf64375d27
author_id_fullname_str_mv df5e97d8f198c78eeb28fcbf64375d27_***_KANEEZ MUSTARY
author KANEEZ MUSTARY
author2 KANEEZ MUSTARY
format E-Thesis
publishDate 2025
institution Swansea University
doi_str_mv 10.23889/SUthesis.69927
college_str Faculty of Medicine, Health and Life Sciences
hierarchytype
hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str School of Psychology{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}School of Psychology
document_store_str 1
active_str 0
description The aim of this thesis was to explore the impact of cultural constructions, generational perspectives, social stigma, daily living experiences, and patterns of help-seeking and access to ASD-related services across different global communities, by employing qualitative and quantitative research.The first qualitative study encompassed the first cross-country exploration of professionals’ views of a range of key areas related to ASD provision in Bangladesh, Indonesia and the UK. Professionals from each country expressed common concerns regarding the insufficiency of specialised support and training in effectively managing populations with ASD.The second qualitative study explored the parental perceptions of diagnosis, understanding of ASD, its associated behaviours, and experience of familial reactions to ASD, in Bangladesh, Indonesia, and the UK. The results suggest similarity across countries, and that different beliefs may be related to different cultural concerns, rather than differences in knowledge. It also highlights the need for more support for families, mental and financial, more training regarding ASD and interventions available, and support with inclusion into the society.The first quantitative study examined parent perceptions of ASD and its diagnosis, school provision, and predictors of satisfaction of school provision in Bangladesh, Zambia, Kenya, Greece and the UK. The results indicate significant cross-cultural variations in responding to research questions.The second quantitative study investigated parenting stress and coping to provide some exploratory data across five different countries: the UK, and Greece in Europe; Kenya, and Zambia, in Africa; and Bangladesh in Asia. The aim was to allow levels of parenting stress, the adoption of coping styles, and the impact of coping style on parenting stress for parents of children with ASD to be compared across the countries.This study could mark a starting point of developing understanding of ASD and their care needs and supporting professionals and parents to empower themselves, within their cultural contexts.
published_date 2025-06-17T05:29:29Z
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score 11.089386

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