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Embedding an illustrator in the process of co-producing resources to enhance communication and shared decision-making for patients prescribed high-risk medication

Amelia Huw Morgan, Delyth James Orcid Logo

Patient Education and Counseling, Volume: 132, Start page: 108589

Swansea University Author: Delyth James Orcid Logo

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Abstract

ObjectivesTo examine how embedding an illustrator in the process of co-producing resources to support shared decision-making (SDM) can enhance communication between patients and healthcare professionals (HCPs).MethodsThree case studies were identified involving high-risk medications where the utilit...

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Published in: Patient Education and Counseling
ISSN: 0738-3991
Published: Elsevier BV 2025
Online Access: Check full text

URI: https://cronfa.swan.ac.uk/Record/cronfa69682
Abstract: ObjectivesTo examine how embedding an illustrator in the process of co-producing resources to support shared decision-making (SDM) can enhance communication between patients and healthcare professionals (HCPs).MethodsThree case studies were identified involving high-risk medications where the utility of effective visual communication resources is key to SDM due to the risk of information being misinterpreted leading to potential serious adverse effects. An iterative approach was adopted to the phases of co-production, where the Illustrator acted as a conduit between patients and specialist knowledge of the clinical team. The expertise of the Illustrator was harnessed to balance the use of visual and written information, working with the HCPs in co-creating the messaging.ResultsCase Study 1 relates to the urgent administration of hydrocortisone injection for adrenal crisis in adults and children. Case Study 2 relates to self-management of the need to adjust oral corticosteroid dosing during periods of adrenal insufficiency to prevent adrenal crisis. Case Study 3 focused on women with reproductive potential prescribed or considering sodium valproate for the management of epilepsy. The benefits of involving an Illustrator were evident across all case studies, invoking supportive, empowering and empathic visual communication throughout, leading to removal of some text by the clinical team.ConclusionsHarnessing the expertise of Illustrators as part of a multi-disciplinary team with patients was seen as an enabler for authentic co-production to support an empathic approach to SDM in these three case studies. Further evaluation is needed to assess the impact of the use of visual communication resources of this nature in healthcare, and the impact on patient behaviours and clinical outcomes.
Keywords: Shared decision-making; Illustrator; Coproduction; Empathy; Visual communication; Patient preference; Patient perspectives; Healthcare professional; High-risk medicines
College: Faculty of Medicine, Health and Life Sciences
Funders: Welsh Government (Grant no. MA/EM/0137/23)
Start Page: 108589