Journal article 10 views
PHIRI: lessons for an extensive reuse of sensitive data in federated health research
Juan González-García 
,
Javier González-Galindo,
Francisco Estupiñán-Romero ,
Martin Thißen ,
Ronan Lyons ,
Carlos Telleria-Orriols,
Enrique Bernal-Delgado
,
Javier González-Galindo,
Francisco Estupiñán-Romero ,
Martin Thißen ,
Ronan Lyons ,
Carlos Telleria-Orriols,
Enrique Bernal-Delgado
European Journal of Public Health, Volume: 34, Issue: Supplement_1, Pages: i43 - i49
Swansea University Author:
Ronan Lyons
Full text not available from this repository: check for access using links below.
DOI (Published version): 10.1093/eurpub/ckae036
Abstract
Background: The extensive and continuous reuse of sensitive health data could enhance the role of population health research on public decisions. This paper describes the design principles and the different building blocks that have supported the implementation and deployment of Population Health In...
| Published in: | European Journal of Public Health |
|---|---|
| ISSN: | 1101-1262 1464-360X |
| Published: |
Oxford University Press (OUP)
2024
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| Online Access: |
Check full text
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| URI: | https://cronfa.swan.ac.uk/Record/cronfa68530 |
| first_indexed |
2025-01-09T20:33:48Z |
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| last_indexed |
2025-01-09T20:33:48Z |
| id |
cronfa68530 |
| recordtype |
SURis |
| fullrecord |
<?xml version="1.0"?><rfc1807><datestamp>2024-12-11T15:31:32.7477533</datestamp><bib-version>v2</bib-version><id>68530</id><entry>2024-12-11</entry><title>PHIRI: lessons for an extensive reuse of sensitive data in federated health research</title><swanseaauthors><author><sid>83efcf2a9dfcf8b55586999d3d152ac6</sid><ORCID>0000-0001-5225-000X</ORCID><firstname>Ronan</firstname><surname>Lyons</surname><name>Ronan Lyons</name><active>true</active><ethesisStudent>false</ethesisStudent></author></swanseaauthors><date>2024-12-11</date><deptcode>MEDS</deptcode><abstract>Background: The extensive and continuous reuse of sensitive health data could enhance the role of population health research on public decisions. This paper describes the design principles and the different building blocks that have supported the implementation and deployment of Population Health Information Research Infrastructure (PHIRI), the strengths and challenges of the approach and some future developments. Methods: The design and implementation of PHIRI have been developed upon: (i) the data visiting principle—data does not move but code moves; (ii) the orchestration of the research question throughout a workflow that ensured legal, organizational, semantic and technological interoperability and (iii) a ‘master–worker’ federated computational architecture that supported the development of four uses cases. Results: Nine participants nodes and 28 Euro-Peristat members completed the deployment of the infrastructure according to the expected outputs. As a consequence, each use case produced and published their own common data model, the analytical pipeline and the corresponding research outputs. All the digital objects were developed and published according to Open Science and FAIR principles. Conclusion: PHIRI has successfully supported the development of four use cases in a federated manner, overcoming limitations for the reuse of sensitive health data and providing a methodology to achieve interoperability in multiple research nodes.</abstract><type>Journal Article</type><journal>European Journal of Public Health</journal><volume>34</volume><journalNumber>Supplement_1</journalNumber><paginationStart>i43</paginationStart><paginationEnd>i49</paginationEnd><publisher>Oxford University Press (OUP)</publisher><placeOfPublication/><isbnPrint/><isbnElectronic/><issnPrint>1101-1262</issnPrint><issnElectronic>1464-360X</issnElectronic><keywords/><publishedDay>1</publishedDay><publishedMonth>7</publishedMonth><publishedYear>2024</publishedYear><publishedDate>2024-07-01</publishedDate><doi>10.1093/eurpub/ckae036</doi><url/><notes/><college>COLLEGE NANME</college><department>Medical School</department><CollegeCode>COLLEGE CODE</CollegeCode><DepartmentCode>MEDS</DepartmentCode><institution>Swansea University</institution><apcterm>Another institution paid the OA fee</apcterm><funders>This project was received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement number 101018317.</funders><projectreference/><lastEdited>2024-12-11T15:31:32.7477533</lastEdited><Created>2024-12-11T15:27:11.4655204</Created><path><level id="1">Faculty of Medicine, Health and Life Sciences</level><level id="2">Swansea University Medical School - Health Data Science</level></path><authors><author><firstname>Juan</firstname><surname>González-García</surname><orcid>0000-0003-3109-5586</orcid><order>1</order></author><author><firstname>Javier</firstname><surname>González-Galindo</surname><order>2</order></author><author><firstname>Francisco</firstname><surname>Estupiñán-Romero</surname><orcid>0000-0002-6285-8120</orcid><order>3</order></author><author><firstname>Martin</firstname><surname>Thißen</surname><orcid>0000-0002-5710-5650</orcid><order>4</order></author><author><firstname>Ronan</firstname><surname>Lyons</surname><orcid>0000-0001-5225-000X</orcid><order>5</order></author><author><firstname>Carlos</firstname><surname>Telleria-Orriols</surname><order>6</order></author><author><firstname>Enrique</firstname><surname>Bernal-Delgado</surname><orcid>0000-0002-0961-3298</orcid><order>7</order></author></authors><documents/><OutputDurs/></rfc1807> |
| spelling |
2024-12-11T15:31:32.7477533 v2 68530 2024-12-11 PHIRI: lessons for an extensive reuse of sensitive data in federated health research 83efcf2a9dfcf8b55586999d3d152ac6 0000-0001-5225-000X Ronan Lyons Ronan Lyons true false 2024-12-11 MEDS Background: The extensive and continuous reuse of sensitive health data could enhance the role of population health research on public decisions. This paper describes the design principles and the different building blocks that have supported the implementation and deployment of Population Health Information Research Infrastructure (PHIRI), the strengths and challenges of the approach and some future developments. Methods: The design and implementation of PHIRI have been developed upon: (i) the data visiting principle—data does not move but code moves; (ii) the orchestration of the research question throughout a workflow that ensured legal, organizational, semantic and technological interoperability and (iii) a ‘master–worker’ federated computational architecture that supported the development of four uses cases. Results: Nine participants nodes and 28 Euro-Peristat members completed the deployment of the infrastructure according to the expected outputs. As a consequence, each use case produced and published their own common data model, the analytical pipeline and the corresponding research outputs. All the digital objects were developed and published according to Open Science and FAIR principles. Conclusion: PHIRI has successfully supported the development of four use cases in a federated manner, overcoming limitations for the reuse of sensitive health data and providing a methodology to achieve interoperability in multiple research nodes. Journal Article European Journal of Public Health 34 Supplement_1 i43 i49 Oxford University Press (OUP) 1101-1262 1464-360X 1 7 2024 2024-07-01 10.1093/eurpub/ckae036 COLLEGE NANME Medical School COLLEGE CODE MEDS Swansea University Another institution paid the OA fee This project was received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement number 101018317. 2024-12-11T15:31:32.7477533 2024-12-11T15:27:11.4655204 Faculty of Medicine, Health and Life Sciences Swansea University Medical School - Health Data Science Juan González-García 0000-0003-3109-5586 1 Javier González-Galindo 2 Francisco Estupiñán-Romero 0000-0002-6285-8120 3 Martin Thißen 0000-0002-5710-5650 4 Ronan Lyons 0000-0001-5225-000X 5 Carlos Telleria-Orriols 6 Enrique Bernal-Delgado 0000-0002-0961-3298 7 |
| title |
PHIRI: lessons for an extensive reuse of sensitive data in federated health research |
| spellingShingle |
PHIRI: lessons for an extensive reuse of sensitive data in federated health research Ronan Lyons |
| title_short |
PHIRI: lessons for an extensive reuse of sensitive data in federated health research |
| title_full |
PHIRI: lessons for an extensive reuse of sensitive data in federated health research |
| title_fullStr |
PHIRI: lessons for an extensive reuse of sensitive data in federated health research |
| title_full_unstemmed |
PHIRI: lessons for an extensive reuse of sensitive data in federated health research |
| title_sort |
PHIRI: lessons for an extensive reuse of sensitive data in federated health research |
| author_id_str_mv |
83efcf2a9dfcf8b55586999d3d152ac6 |
| author_id_fullname_str_mv |
83efcf2a9dfcf8b55586999d3d152ac6_***_Ronan Lyons |
| author |
Ronan Lyons |
| author2 |
Juan González-García Javier González-Galindo Francisco Estupiñán-Romero Martin Thißen Ronan Lyons Carlos Telleria-Orriols Enrique Bernal-Delgado |
| format |
Journal article |
| container_title |
European Journal of Public Health |
| container_volume |
34 |
| container_issue |
Supplement_1 |
| container_start_page |
i43 |
| publishDate |
2024 |
| institution |
Swansea University |
| issn |
1101-1262 1464-360X |
| doi_str_mv |
10.1093/eurpub/ckae036 |
| publisher |
Oxford University Press (OUP) |
| college_str |
Faculty of Medicine, Health and Life Sciences |
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|
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facultyofmedicinehealthandlifesciences |
| hierarchy_top_title |
Faculty of Medicine, Health and Life Sciences |
| hierarchy_parent_id |
facultyofmedicinehealthandlifesciences |
| hierarchy_parent_title |
Faculty of Medicine, Health and Life Sciences |
| department_str |
Swansea University Medical School - Health Data Science{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}Swansea University Medical School - Health Data Science |
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| description |
Background: The extensive and continuous reuse of sensitive health data could enhance the role of population health research on public decisions. This paper describes the design principles and the different building blocks that have supported the implementation and deployment of Population Health Information Research Infrastructure (PHIRI), the strengths and challenges of the approach and some future developments. Methods: The design and implementation of PHIRI have been developed upon: (i) the data visiting principle—data does not move but code moves; (ii) the orchestration of the research question throughout a workflow that ensured legal, organizational, semantic and technological interoperability and (iii) a ‘master–worker’ federated computational architecture that supported the development of four uses cases. Results: Nine participants nodes and 28 Euro-Peristat members completed the deployment of the infrastructure according to the expected outputs. As a consequence, each use case produced and published their own common data model, the analytical pipeline and the corresponding research outputs. All the digital objects were developed and published according to Open Science and FAIR principles. Conclusion: PHIRI has successfully supported the development of four use cases in a federated manner, overcoming limitations for the reuse of sensitive health data and providing a methodology to achieve interoperability in multiple research nodes. |
| published_date |
2024-07-01T20:36:50Z |
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1821348631221895168 |
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11.04748 |