No Cover Image

Journal article 245 views 26 downloads

#BeSeen: understanding young people’s views of the motivation and impacts of sharing self-harm imagery online and use of their social media data for research—a UK participatory arts-led qualitative study

Dana Dekel Orcid Logo, AMANDA MARCHANT, Todd Smith, Harley Morgan, Sarah Tombs, Ashra Khanom Orcid Logo, Karen Ingham, Ann John Orcid Logo

BMJ Open, Volume: 14, Issue: 7, Start page: e076981

Swansea University Authors: Dana Dekel Orcid Logo, AMANDA MARCHANT, Todd Smith, Ashra Khanom Orcid Logo, Karen Ingham, Ann John Orcid Logo

  • 66901.VoR.pdf

    PDF | Version of Record

    Copyright: Author(s) (or their employer(s)) 2024. This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license.

    Download (354.37KB)

Check full text

DOI (Published version): 10.1136/bmjopen-2023-076981

Abstract

Objectives: This study explored the views of young people from diverse backgrounds, with or without a history of self-harm, on the motivation and impacts of sharing self-harm imagery online and use of their social media data for mental health research. Design: Thematic analysis of 27 semi-structured...

Full description

Published in: BMJ Open
ISSN: 2044-6055 2044-6055
Published: BMJ 2024
Online Access: Check full text

URI: https://cronfa.swan.ac.uk/Record/cronfa66901
first_indexed 2024-06-27T09:35:26Z
last_indexed 2024-11-25T14:19:07Z
id cronfa66901
recordtype SURis
fullrecord <?xml version="1.0"?><rfc1807><datestamp>2024-07-25T12:28:16.9211045</datestamp><bib-version>v2</bib-version><id>66901</id><entry>2024-06-27</entry><title>#BeSeen: understanding young people&#x2019;s views of the motivation and impacts of sharing self-harm imagery online and use of their social media data for research&#x2014;a UK participatory arts-led qualitative study</title><swanseaauthors><author><sid>7904c581b4da2217c348434c9f04f165</sid><ORCID>0000-0003-0137-5149</ORCID><firstname>Dana</firstname><surname>Dekel</surname><name>Dana Dekel</name><active>true</active><ethesisStudent>false</ethesisStudent></author><author><sid>73185085caa93af2991ed0e6dc9613a4</sid><firstname>AMANDA</firstname><surname>MARCHANT</surname><name>AMANDA MARCHANT</name><active>true</active><ethesisStudent>false</ethesisStudent></author><author><sid>49afb8c5b08c052a87dc0f13a4b4f1bb</sid><firstname>Todd</firstname><surname>Smith</surname><name>Todd Smith</name><active>true</active><ethesisStudent>false</ethesisStudent></author><author><sid>1f0f14742e3a36e8fd6d29f59374a009</sid><ORCID>0000-0002-5735-6601</ORCID><firstname>Ashra</firstname><surname>Khanom</surname><name>Ashra Khanom</name><active>true</active><ethesisStudent>false</ethesisStudent></author><author><sid>640f6cabd226bf9552395a38023ff2c4</sid><firstname>Karen</firstname><surname>Ingham</surname><name>Karen Ingham</name><active>true</active><ethesisStudent>false</ethesisStudent></author><author><sid>ed8a9c37bd7b7235b762d941ef18ee55</sid><ORCID>0000-0002-5657-6995</ORCID><firstname>Ann</firstname><surname>John</surname><name>Ann John</name><active>true</active><ethesisStudent>false</ethesisStudent></author></swanseaauthors><date>2024-06-27</date><deptcode>PSYS</deptcode><abstract>Objectives: This study explored the views of young people from diverse backgrounds, with or without a history of self-harm, on the motivation and impacts of sharing self-harm imagery online and use of their social media data for mental health research. Design: Thematic analysis of 27 semi-structured one-to-one interviews.Setting: Two workshops were conducted in 2021 Participants: We recruited 27 study participants aged 16-24 (60% male). Sixteen (59%) participants were refugee and asylum seekers (RAS). Results: Two main themes were generated: 1. Online imagery of self-harm captured perceived motivations for sharing such images, the potential impacts on others, and possible need of censorship. This theme was characterised by mixed attitudes toward motivations for sharing, with some perceiving this as attention seeking while others thought of it as help seeking or sharing of pain. Overall participants agreed that images of self-harm can be triggering and should include trigger warnings. 2. Data sharing for mental health and self-harm research captured views on use of social media posts and images for research purposes, and levels of trust in public and private organisations. It outlined positive views on their data being shared for research for public benefit, but highlighted issues of consent. The two most trusted organizations to hold and conduct research were the National Health Service and Universities. Participants from the RAS group were more inclined to agree to their data being used and had higher levels of trust in government. Conclusion: Young people care about their privacy and use of their data even when it is publicly available. Co-production with young people of resources to support understanding and develop innovative solutions to gaining informed consent for data sharing and research for public benefit is required. Young people from excluded communities, post-immigration RAS and males should be purposively involved in future social media research.</abstract><type>Journal Article</type><journal>BMJ Open</journal><volume>14</volume><journalNumber>7</journalNumber><paginationStart>e076981</paginationStart><paginationEnd/><publisher>BMJ</publisher><placeOfPublication/><isbnPrint/><isbnElectronic/><issnPrint>2044-6055</issnPrint><issnElectronic>2044-6055</issnElectronic><keywords/><publishedDay>23</publishedDay><publishedMonth>7</publishedMonth><publishedYear>2024</publishedYear><publishedDate>2024-07-23</publishedDate><doi>10.1136/bmjopen-2023-076981</doi><url/><notes/><college>COLLEGE NANME</college><department>Psychology School</department><CollegeCode>COLLEGE CODE</CollegeCode><DepartmentCode>PSYS</DepartmentCode><institution>Swansea University</institution><apcterm>SU Library paid the OA fee (TA Institutional Deal)</apcterm><funders>This work was funded by the MRC (MR/T046597/1; MR/W014386/1) and the Wolfson Centre for Young Peoples Mental Health (Grant Reference 517483). The funding bodies played no role in the design, analysis, and interpretation of the data nor in the writing of the manuscript.</funders><projectreference/><lastEdited>2024-07-25T12:28:16.9211045</lastEdited><Created>2024-06-27T10:30:52.8412337</Created><path><level id="1">Faculty of Medicine, Health and Life Sciences</level><level id="2">Swansea University Medical School - Health Data Science</level></path><authors><author><firstname>Dana</firstname><surname>Dekel</surname><orcid>0000-0003-0137-5149</orcid><order>1</order></author><author><firstname>AMANDA</firstname><surname>MARCHANT</surname><order>2</order></author><author><firstname>Todd</firstname><surname>Smith</surname><order>3</order></author><author><firstname>Harley</firstname><surname>Morgan</surname><order>4</order></author><author><firstname>Sarah</firstname><surname>Tombs</surname><order>5</order></author><author><firstname>Ashra</firstname><surname>Khanom</surname><orcid>0000-0002-5735-6601</orcid><order>6</order></author><author><firstname>Karen</firstname><surname>Ingham</surname><order>7</order></author><author><firstname>Ann</firstname><surname>John</surname><orcid>0000-0002-5657-6995</orcid><order>8</order></author></authors><documents><document><filename>66901__30978__3212b3721a3046bb90532147528e948b.pdf</filename><originalFilename>66901.VoR.pdf</originalFilename><uploaded>2024-07-25T12:25:31.7732141</uploaded><type>Output</type><contentLength>362875</contentLength><contentType>application/pdf</contentType><version>Version of Record</version><cronfaStatus>true</cronfaStatus><documentNotes>Copyright: Author(s) (or their employer(s)) 2024. This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license.</documentNotes><copyrightCorrect>true</copyrightCorrect><language>eng</language><licence>https://creativecommons.org/licenses/by/4.0/</licence></document></documents><OutputDurs/></rfc1807>
spelling 2024-07-25T12:28:16.9211045 v2 66901 2024-06-27 #BeSeen: understanding young people’s views of the motivation and impacts of sharing self-harm imagery online and use of their social media data for research—a UK participatory arts-led qualitative study 7904c581b4da2217c348434c9f04f165 0000-0003-0137-5149 Dana Dekel Dana Dekel true false 73185085caa93af2991ed0e6dc9613a4 AMANDA MARCHANT AMANDA MARCHANT true false 49afb8c5b08c052a87dc0f13a4b4f1bb Todd Smith Todd Smith true false 1f0f14742e3a36e8fd6d29f59374a009 0000-0002-5735-6601 Ashra Khanom Ashra Khanom true false 640f6cabd226bf9552395a38023ff2c4 Karen Ingham Karen Ingham true false ed8a9c37bd7b7235b762d941ef18ee55 0000-0002-5657-6995 Ann John Ann John true false 2024-06-27 PSYS Objectives: This study explored the views of young people from diverse backgrounds, with or without a history of self-harm, on the motivation and impacts of sharing self-harm imagery online and use of their social media data for mental health research. Design: Thematic analysis of 27 semi-structured one-to-one interviews.Setting: Two workshops were conducted in 2021 Participants: We recruited 27 study participants aged 16-24 (60% male). Sixteen (59%) participants were refugee and asylum seekers (RAS). Results: Two main themes were generated: 1. Online imagery of self-harm captured perceived motivations for sharing such images, the potential impacts on others, and possible need of censorship. This theme was characterised by mixed attitudes toward motivations for sharing, with some perceiving this as attention seeking while others thought of it as help seeking or sharing of pain. Overall participants agreed that images of self-harm can be triggering and should include trigger warnings. 2. Data sharing for mental health and self-harm research captured views on use of social media posts and images for research purposes, and levels of trust in public and private organisations. It outlined positive views on their data being shared for research for public benefit, but highlighted issues of consent. The two most trusted organizations to hold and conduct research were the National Health Service and Universities. Participants from the RAS group were more inclined to agree to their data being used and had higher levels of trust in government. Conclusion: Young people care about their privacy and use of their data even when it is publicly available. Co-production with young people of resources to support understanding and develop innovative solutions to gaining informed consent for data sharing and research for public benefit is required. Young people from excluded communities, post-immigration RAS and males should be purposively involved in future social media research. Journal Article BMJ Open 14 7 e076981 BMJ 2044-6055 2044-6055 23 7 2024 2024-07-23 10.1136/bmjopen-2023-076981 COLLEGE NANME Psychology School COLLEGE CODE PSYS Swansea University SU Library paid the OA fee (TA Institutional Deal) This work was funded by the MRC (MR/T046597/1; MR/W014386/1) and the Wolfson Centre for Young Peoples Mental Health (Grant Reference 517483). The funding bodies played no role in the design, analysis, and interpretation of the data nor in the writing of the manuscript. 2024-07-25T12:28:16.9211045 2024-06-27T10:30:52.8412337 Faculty of Medicine, Health and Life Sciences Swansea University Medical School - Health Data Science Dana Dekel 0000-0003-0137-5149 1 AMANDA MARCHANT 2 Todd Smith 3 Harley Morgan 4 Sarah Tombs 5 Ashra Khanom 0000-0002-5735-6601 6 Karen Ingham 7 Ann John 0000-0002-5657-6995 8 66901__30978__3212b3721a3046bb90532147528e948b.pdf 66901.VoR.pdf 2024-07-25T12:25:31.7732141 Output 362875 application/pdf Version of Record true Copyright: Author(s) (or their employer(s)) 2024. This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license. true eng https://creativecommons.org/licenses/by/4.0/
title #BeSeen: understanding young people’s views of the motivation and impacts of sharing self-harm imagery online and use of their social media data for research—a UK participatory arts-led qualitative study
spellingShingle #BeSeen: understanding young people’s views of the motivation and impacts of sharing self-harm imagery online and use of their social media data for research—a UK participatory arts-led qualitative study
Dana Dekel
AMANDA MARCHANT
Todd Smith
Ashra Khanom
Karen Ingham
Ann John
title_short #BeSeen: understanding young people’s views of the motivation and impacts of sharing self-harm imagery online and use of their social media data for research—a UK participatory arts-led qualitative study
title_full #BeSeen: understanding young people’s views of the motivation and impacts of sharing self-harm imagery online and use of their social media data for research—a UK participatory arts-led qualitative study
title_fullStr #BeSeen: understanding young people’s views of the motivation and impacts of sharing self-harm imagery online and use of their social media data for research—a UK participatory arts-led qualitative study
title_full_unstemmed #BeSeen: understanding young people’s views of the motivation and impacts of sharing self-harm imagery online and use of their social media data for research—a UK participatory arts-led qualitative study
title_sort #BeSeen: understanding young people’s views of the motivation and impacts of sharing self-harm imagery online and use of their social media data for research—a UK participatory arts-led qualitative study
author_id_str_mv 7904c581b4da2217c348434c9f04f165
73185085caa93af2991ed0e6dc9613a4
49afb8c5b08c052a87dc0f13a4b4f1bb
1f0f14742e3a36e8fd6d29f59374a009
640f6cabd226bf9552395a38023ff2c4
ed8a9c37bd7b7235b762d941ef18ee55
author_id_fullname_str_mv 7904c581b4da2217c348434c9f04f165_***_Dana Dekel
73185085caa93af2991ed0e6dc9613a4_***_AMANDA MARCHANT
49afb8c5b08c052a87dc0f13a4b4f1bb_***_Todd Smith
1f0f14742e3a36e8fd6d29f59374a009_***_Ashra Khanom
640f6cabd226bf9552395a38023ff2c4_***_Karen Ingham
ed8a9c37bd7b7235b762d941ef18ee55_***_Ann John
author Dana Dekel
AMANDA MARCHANT
Todd Smith
Ashra Khanom
Karen Ingham
Ann John
author2 Dana Dekel
AMANDA MARCHANT
Todd Smith
Harley Morgan
Sarah Tombs
Ashra Khanom
Karen Ingham
Ann John
format Journal article
container_title BMJ Open
container_volume 14
container_issue 7
container_start_page e076981
publishDate 2024
institution Swansea University
issn 2044-6055
2044-6055
doi_str_mv 10.1136/bmjopen-2023-076981
publisher BMJ
college_str Faculty of Medicine, Health and Life Sciences
hierarchytype
hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str Swansea University Medical School - Health Data Science{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}Swansea University Medical School - Health Data Science
document_store_str 1
active_str 0
description Objectives: This study explored the views of young people from diverse backgrounds, with or without a history of self-harm, on the motivation and impacts of sharing self-harm imagery online and use of their social media data for mental health research. Design: Thematic analysis of 27 semi-structured one-to-one interviews.Setting: Two workshops were conducted in 2021 Participants: We recruited 27 study participants aged 16-24 (60% male). Sixteen (59%) participants were refugee and asylum seekers (RAS). Results: Two main themes were generated: 1. Online imagery of self-harm captured perceived motivations for sharing such images, the potential impacts on others, and possible need of censorship. This theme was characterised by mixed attitudes toward motivations for sharing, with some perceiving this as attention seeking while others thought of it as help seeking or sharing of pain. Overall participants agreed that images of self-harm can be triggering and should include trigger warnings. 2. Data sharing for mental health and self-harm research captured views on use of social media posts and images for research purposes, and levels of trust in public and private organisations. It outlined positive views on their data being shared for research for public benefit, but highlighted issues of consent. The two most trusted organizations to hold and conduct research were the National Health Service and Universities. Participants from the RAS group were more inclined to agree to their data being used and had higher levels of trust in government. Conclusion: Young people care about their privacy and use of their data even when it is publicly available. Co-production with young people of resources to support understanding and develop innovative solutions to gaining informed consent for data sharing and research for public benefit is required. Young people from excluded communities, post-immigration RAS and males should be purposively involved in future social media research.
published_date 2024-07-23T14:34:42Z
_version_ 1821325847043244032
score 11.564073

Similar Items