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Sonic bombardment, noise hypersensitivity and ethics: A response to Fodstad and colleagues: ‘Assessment and treatment of noise hypersensitivity in a teenager with autism Spectrum Disorder’

Monique Botha, Aimee Grant Orcid Logo, Damian Milton, Ann Memmott, Gemma Williams Orcid Logo, Amy Pearson, Richard Woods

The Participatory Autism Research Collective

Swansea University Authors: Aimee Grant Orcid Logo, Gemma Williams Orcid Logo

Abstract

This commentary – provided by a group of Autistic researchers – reflects on a case study trialling a ‘modified Cognitive Behavioural Therapy intervention’ to address the ‘noise hypersensitivity’ and associated behaviours of an Autistic teenager, ‘Aaron’. We identify serious flaws in the evidence bas...

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Published in: The Participatory Autism Research Collective
Published: The Participatory Autism Research Collective 2021
Online Access: https://participatoryautismresearch.wordpress.com/2021/10/27/sonic-bombardment-noise-hypersensitivity-and-ethics-a-response-to-fodstad-and-colleagues/
URI: https://cronfa.swan.ac.uk/Record/cronfa63301
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first_indexed 2023-06-09T15:11:26Z
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spelling v2 63301 2023-05-02 Sonic bombardment, noise hypersensitivity and ethics: A response to Fodstad and colleagues: ‘Assessment and treatment of noise hypersensitivity in a teenager with autism Spectrum Disorder’ 6a1ce3bc54c692c804e858b70d2e4bd2 0000-0001-7205-5869 Aimee Grant Aimee Grant true false c457f01f621c5274656e591f782f52a8 0000-0002-5162-0440 Gemma Williams Gemma Williams true false 2023-05-02 PHAC This commentary – provided by a group of Autistic researchers – reflects on a case study trialling a ‘modified Cognitive Behavioural Therapy intervention’ to address the ‘noise hypersensitivity’ and associated behaviours of an Autistic teenager, ‘Aaron’. We identify serious flaws in the evidence base behind the ‘therapy’: including failing to account for divergent Autistic sensory reactivity, aiming to remove ‘stimming’ behaviours and promoting masking. We challenge the lack of informed consent reported as given by either Aaron or a proxy and the absence of any reported ethical approval for this case study. We also strongly condemn the methods of sonic bombardment delivered upon Aaron under the guise of ‘therapy’. We conclude with three questions around the processes that led to the original article’s publication. Website Content The Participatory Autism Research Collective The Participatory Autism Research Collective 27 10 2021 2021-10-27 https://participatoryautismresearch.wordpress.com/2021/10/27/sonic-bombardment-noise-hypersensitivity-and-ethics-a-response-to-fodstad-and-colleagues/ COLLEGE NANME Public Health COLLEGE CODE PHAC Swansea University 2023-06-20T16:57:25.9140764 2023-05-02T12:46:58.3218060 Faculty of Medicine, Health and Life Sciences School of Health and Social Care - Public Health Monique Botha 1 Aimee Grant 0000-0001-7205-5869 2 Damian Milton 3 Ann Memmott 4 Gemma Williams 0000-0002-5162-0440 5 Amy Pearson 6 Richard Woods 7
title Sonic bombardment, noise hypersensitivity and ethics: A response to Fodstad and colleagues: ‘Assessment and treatment of noise hypersensitivity in a teenager with autism Spectrum Disorder’
spellingShingle Sonic bombardment, noise hypersensitivity and ethics: A response to Fodstad and colleagues: ‘Assessment and treatment of noise hypersensitivity in a teenager with autism Spectrum Disorder’
Aimee Grant
Gemma Williams
title_short Sonic bombardment, noise hypersensitivity and ethics: A response to Fodstad and colleagues: ‘Assessment and treatment of noise hypersensitivity in a teenager with autism Spectrum Disorder’
title_full Sonic bombardment, noise hypersensitivity and ethics: A response to Fodstad and colleagues: ‘Assessment and treatment of noise hypersensitivity in a teenager with autism Spectrum Disorder’
title_fullStr Sonic bombardment, noise hypersensitivity and ethics: A response to Fodstad and colleagues: ‘Assessment and treatment of noise hypersensitivity in a teenager with autism Spectrum Disorder’
title_full_unstemmed Sonic bombardment, noise hypersensitivity and ethics: A response to Fodstad and colleagues: ‘Assessment and treatment of noise hypersensitivity in a teenager with autism Spectrum Disorder’
title_sort Sonic bombardment, noise hypersensitivity and ethics: A response to Fodstad and colleagues: ‘Assessment and treatment of noise hypersensitivity in a teenager with autism Spectrum Disorder’
author_id_str_mv 6a1ce3bc54c692c804e858b70d2e4bd2
c457f01f621c5274656e591f782f52a8
author_id_fullname_str_mv 6a1ce3bc54c692c804e858b70d2e4bd2_***_Aimee Grant
c457f01f621c5274656e591f782f52a8_***_Gemma Williams
author Aimee Grant
Gemma Williams
author2 Monique Botha
Aimee Grant
Damian Milton
Ann Memmott
Gemma Williams
Amy Pearson
Richard Woods
format Website Content
container_title The Participatory Autism Research Collective
publishDate 2021
institution Swansea University
publisher The Participatory Autism Research Collective
college_str Faculty of Medicine, Health and Life Sciences
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hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str School of Health and Social Care - Public Health{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}School of Health and Social Care - Public Health
url https://participatoryautismresearch.wordpress.com/2021/10/27/sonic-bombardment-noise-hypersensitivity-and-ethics-a-response-to-fodstad-and-colleagues/
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description This commentary – provided by a group of Autistic researchers – reflects on a case study trialling a ‘modified Cognitive Behavioural Therapy intervention’ to address the ‘noise hypersensitivity’ and associated behaviours of an Autistic teenager, ‘Aaron’. We identify serious flaws in the evidence base behind the ‘therapy’: including failing to account for divergent Autistic sensory reactivity, aiming to remove ‘stimming’ behaviours and promoting masking. We challenge the lack of informed consent reported as given by either Aaron or a proxy and the absence of any reported ethical approval for this case study. We also strongly condemn the methods of sonic bombardment delivered upon Aaron under the guise of ‘therapy’. We conclude with three questions around the processes that led to the original article’s publication.
published_date 2021-10-27T16:57:23Z
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