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Educational achievements of children aged 10-11 years with cystic fibrosis. A data linkage study in Wales

Daniela K Schlüter Orcid Logo, Rowena Griffiths, Ashley Akbari Orcid Logo, David Taylor-Robinson

International Journal of Population Data Science, Volume: 7, Issue: 1

Swansea University Authors: Rowena Griffiths, Ashley Akbari Orcid Logo

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DOI (Published version): 10.23889/ijpds.v7i1.1725

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IntroductionAs people with cystic fibrosis (CF) lead longer, healthier lives, educational qualifications and employment prospects are increasingly important. However, little is known about the social consequences of CF, in particular, any impact on educational achievements and the support children w...

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Published in: International Journal of Population Data Science
ISSN: 2399-4908
Published: Swansea University 2022
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URI: https://cronfa.swan.ac.uk/Record/cronfa60327
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However, little is known about the social consequences of CF, in particular, any impact on educational achievements and the support children with CF receive in schools.ObjectivesTo assess the educational achievements of children with CF in Wales compared to the general Welsh population, and the additional learning support children with CF receive in schools.MethodsWe conducted a population-scale data linkage study of all children born in Wales using the Secure Anonymised Information Linkage (SAIL) Databank. We used anonymised individual-level population-scale health and administrative data sources to identify children with CF born between 2000 -- 2015, linked to educational attainment records. We calculated the percentage of children that reached expected levels in statutory assessment at age 10-11, Key Stage2 (KS2), and compared this to educational outcomes in the general population. We also assessed the percentage of children with CF that received extra learning support.ResultsOut of 150 eligible children, 119 had KS2 results. 77% (95% CI: 69%-84%) of children achieved expected levels in English, 81% (95% CI: 73% -87%) in Mathematics and 82% (95% CI: 75% - 88%) in Science. In the comparable general Welsh population, 83.4% to 91.1% achieved the expected level in English, 84.9% to 91.6% in Maths, and 87.1% to 92.2% in Science across the years of the study. 70% of children with CF received extra learning support.ConclusionsChildren with CF in Wales may have worse educational achievements than the general population. More research is needed to inform policies and interventions to better support children with CF to reach their full educational potential and employment opportunities.</abstract><type>Journal Article</type><journal>International Journal of Population Data Science</journal><volume>7</volume><journalNumber>1</journalNumber><paginationStart/><paginationEnd/><publisher>Swansea University</publisher><placeOfPublication/><isbnPrint/><isbnElectronic/><issnPrint/><issnElectronic>2399-4908</issnElectronic><keywords>data linkage; cystic fibrosis; education; SAIL Databank</keywords><publishedDay>27</publishedDay><publishedMonth>6</publishedMonth><publishedYear>2022</publishedYear><publishedDate>2022-06-27</publishedDate><doi>10.23889/ijpds.v7i1.1725</doi><url/><notes/><college>COLLEGE NANME</college><department>Health Data Science</department><CollegeCode>COLLEGE CODE</CollegeCode><DepartmentCode>HDAT</DepartmentCode><institution>Swansea University</institution><apcterm/><funders>This work was supported by the Strategic Research Centre 4&#x201C;CF-EpiNet: Harnessing data to improve lives&#x201D; funded by theCystic Fibrosis Trust and by Health Data Research UK, whichreceives its funding from HDR UK Ltd (HDR-9006) funded bythe UK Medical Research Council, Engineering and PhysicalSciences Research Council, Economic and Social ResearchCouncil, Department of Health and Social Care (England),Chief Scientist Office of the Scottish Government Health andSocial Care Directorates, Health and Social Care Researchand Development Division (Welsh Government), Public HealthAgency (Northern Ireland), British Heart Foundation (BHF)and the Wellcome Trust. 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spelling 2022-07-14T17:22:52.1111607 v2 60327 2022-06-27 Educational achievements of children aged 10-11 years with cystic fibrosis. A data linkage study in Wales 381464f639f98bd388c29326ca7f862c Rowena Griffiths Rowena Griffiths true false aa1b025ec0243f708bb5eb0a93d6fb52 0000-0003-0814-0801 Ashley Akbari Ashley Akbari true false 2022-06-27 HDAT IntroductionAs people with cystic fibrosis (CF) lead longer, healthier lives, educational qualifications and employment prospects are increasingly important. However, little is known about the social consequences of CF, in particular, any impact on educational achievements and the support children with CF receive in schools.ObjectivesTo assess the educational achievements of children with CF in Wales compared to the general Welsh population, and the additional learning support children with CF receive in schools.MethodsWe conducted a population-scale data linkage study of all children born in Wales using the Secure Anonymised Information Linkage (SAIL) Databank. We used anonymised individual-level population-scale health and administrative data sources to identify children with CF born between 2000 -- 2015, linked to educational attainment records. We calculated the percentage of children that reached expected levels in statutory assessment at age 10-11, Key Stage2 (KS2), and compared this to educational outcomes in the general population. We also assessed the percentage of children with CF that received extra learning support.ResultsOut of 150 eligible children, 119 had KS2 results. 77% (95% CI: 69%-84%) of children achieved expected levels in English, 81% (95% CI: 73% -87%) in Mathematics and 82% (95% CI: 75% - 88%) in Science. In the comparable general Welsh population, 83.4% to 91.1% achieved the expected level in English, 84.9% to 91.6% in Maths, and 87.1% to 92.2% in Science across the years of the study. 70% of children with CF received extra learning support.ConclusionsChildren with CF in Wales may have worse educational achievements than the general population. More research is needed to inform policies and interventions to better support children with CF to reach their full educational potential and employment opportunities. Journal Article International Journal of Population Data Science 7 1 Swansea University 2399-4908 data linkage; cystic fibrosis; education; SAIL Databank 27 6 2022 2022-06-27 10.23889/ijpds.v7i1.1725 COLLEGE NANME Health Data Science COLLEGE CODE HDAT Swansea University This work was supported by the Strategic Research Centre 4“CF-EpiNet: Harnessing data to improve lives” funded by theCystic Fibrosis Trust and by Health Data Research UK, whichreceives its funding from HDR UK Ltd (HDR-9006) funded bythe UK Medical Research Council, Engineering and PhysicalSciences Research Council, Economic and Social ResearchCouncil, Department of Health and Social Care (England),Chief Scientist Office of the Scottish Government Health andSocial Care Directorates, Health and Social Care Researchand Development Division (Welsh Government), Public HealthAgency (Northern Ireland), British Heart Foundation (BHF)and the Wellcome Trust. DTR is funded by the MRC on aClinician Scientist Fellowship (MR/P008577/1). 2022-07-14T17:22:52.1111607 2022-06-27T14:33:48.3473797 Faculty of Medicine, Health and Life Sciences Swansea University Medical School - Medicine Daniela K Schlüter 0000-0001-9018-0022 1 Rowena Griffiths 2 Ashley Akbari 0000-0003-0814-0801 3 David Taylor-Robinson 4 60327__24606__d3d5ce5a21e049a985afa4a2a32f0f76.pdf 60327.pdf 2022-07-14T17:21:34.6537655 Output 727505 application/pdf Version of Record true 2022 © The Authors. Open Access under CC BY 4.0 true eng https://creativecommons.org/licenses/by/4.0/deed.en
title Educational achievements of children aged 10-11 years with cystic fibrosis. A data linkage study in Wales
spellingShingle Educational achievements of children aged 10-11 years with cystic fibrosis. A data linkage study in Wales
Rowena Griffiths
Ashley Akbari
title_short Educational achievements of children aged 10-11 years with cystic fibrosis. A data linkage study in Wales
title_full Educational achievements of children aged 10-11 years with cystic fibrosis. A data linkage study in Wales
title_fullStr Educational achievements of children aged 10-11 years with cystic fibrosis. A data linkage study in Wales
title_full_unstemmed Educational achievements of children aged 10-11 years with cystic fibrosis. A data linkage study in Wales
title_sort Educational achievements of children aged 10-11 years with cystic fibrosis. A data linkage study in Wales
author_id_str_mv 381464f639f98bd388c29326ca7f862c
aa1b025ec0243f708bb5eb0a93d6fb52
author_id_fullname_str_mv 381464f639f98bd388c29326ca7f862c_***_Rowena Griffiths
aa1b025ec0243f708bb5eb0a93d6fb52_***_Ashley Akbari
author Rowena Griffiths
Ashley Akbari
author2 Daniela K Schlüter
Rowena Griffiths
Ashley Akbari
David Taylor-Robinson
format Journal article
container_title International Journal of Population Data Science
container_volume 7
container_issue 1
publishDate 2022
institution Swansea University
issn 2399-4908
doi_str_mv 10.23889/ijpds.v7i1.1725
publisher Swansea University
college_str Faculty of Medicine, Health and Life Sciences
hierarchytype
hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str Swansea University Medical School - Medicine{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}Swansea University Medical School - Medicine
document_store_str 1
active_str 0
description IntroductionAs people with cystic fibrosis (CF) lead longer, healthier lives, educational qualifications and employment prospects are increasingly important. However, little is known about the social consequences of CF, in particular, any impact on educational achievements and the support children with CF receive in schools.ObjectivesTo assess the educational achievements of children with CF in Wales compared to the general Welsh population, and the additional learning support children with CF receive in schools.MethodsWe conducted a population-scale data linkage study of all children born in Wales using the Secure Anonymised Information Linkage (SAIL) Databank. We used anonymised individual-level population-scale health and administrative data sources to identify children with CF born between 2000 -- 2015, linked to educational attainment records. We calculated the percentage of children that reached expected levels in statutory assessment at age 10-11, Key Stage2 (KS2), and compared this to educational outcomes in the general population. We also assessed the percentage of children with CF that received extra learning support.ResultsOut of 150 eligible children, 119 had KS2 results. 77% (95% CI: 69%-84%) of children achieved expected levels in English, 81% (95% CI: 73% -87%) in Mathematics and 82% (95% CI: 75% - 88%) in Science. In the comparable general Welsh population, 83.4% to 91.1% achieved the expected level in English, 84.9% to 91.6% in Maths, and 87.1% to 92.2% in Science across the years of the study. 70% of children with CF received extra learning support.ConclusionsChildren with CF in Wales may have worse educational achievements than the general population. More research is needed to inform policies and interventions to better support children with CF to reach their full educational potential and employment opportunities.
published_date 2022-06-27T04:18:21Z
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score 11.014067

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