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Quality of internet information to aid patient decision making in locally advanced and recurrent rectal cancer

A. Williams Orcid Logo, Andrew Cunningham, Hayley Hutchings Orcid Logo, Dean Harris Orcid Logo, M.D. Evans, D. Harji Orcid Logo

The Surgeon, Volume: 20, Issue: 6, Pages: 383 - 391

Swansea University Authors: Andrew Cunningham, Hayley Hutchings Orcid Logo, Dean Harris Orcid Logo

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DOI (Published version): 10.1016/j.surge.2021.12.008

Abstract

To review whether online decision aids are available for patients contemplating pelvic exenteration (PE) for locally advanced and recurrent rectal cancer (LARC and LRRC). A grey literature review was carried out using the Google Search™ engine undertaken using a predefined search strategy (PROSPERO...

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Published in: The Surgeon
ISSN: 1479-666X
Published: Elsevier BV 2022
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URI: https://cronfa.swan.ac.uk/Record/cronfa59282
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A grey literature review was carried out using the Google Search&#x2122; engine undertaken using a predefined search strategy (PROSPERO database CRD42019122933). Written health information was assessed using the DISCERN criteria and International Patient Decision Aids Standards (IPDAS) with readability content assessed using the Flesch-Kincaid reading ease test and Flesch-Kincaid grade level score. Google search yielded 27, 782, 200 results for the predefined search criteria. 131 sources were screened resulting in the analysis of 6 sources. No sources were identified as a decision aid according to the IPDAS criteria. All sources provided an acceptable quality of written health information, scoring a global score of 3 for the DISCERN written assessment. The median Flesch-Kincaid reading ease was 50.85 (32.5-80.8) equating to a reading age of 15-18 years and the median Flesch-Kincaid grade level score was 7.65 (range 3-9.7), which equates to a reading age of 13-14. This study has found that there is a paucity of online information for patients contemplating PE. Sources that are available are aimed at a high health literate patient. Given the considerable morbidity associated with PE surgery there is a need for high quality relevant information in this area. A PDA should be developed to improve decision making and ultimately improve patient experience. [Abstract copyright: Copyright &#xA9; 2021 Royal College of Surgeons of Edinburgh (Scottish charity number SC005317) and Royal College of Surgeons in Ireland. Published by Elsevier Ltd. 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spelling 2023-01-05T13:58:03.0103027 v2 59282 2022-01-31 Quality of internet information to aid patient decision making in locally advanced and recurrent rectal cancer 85ba826947f0457916f30b1c4ed8113f Andrew Cunningham Andrew Cunningham true false bdf5d5f154d339dd92bb25884b7c3652 0000-0003-4155-1741 Hayley Hutchings Hayley Hutchings true false 731533890c5123febe4f65dffd369f7b 0000-0003-2673-8946 Dean Harris Dean Harris true false 2022-01-31 BMS To review whether online decision aids are available for patients contemplating pelvic exenteration (PE) for locally advanced and recurrent rectal cancer (LARC and LRRC). A grey literature review was carried out using the Google Search™ engine undertaken using a predefined search strategy (PROSPERO database CRD42019122933). Written health information was assessed using the DISCERN criteria and International Patient Decision Aids Standards (IPDAS) with readability content assessed using the Flesch-Kincaid reading ease test and Flesch-Kincaid grade level score. Google search yielded 27, 782, 200 results for the predefined search criteria. 131 sources were screened resulting in the analysis of 6 sources. No sources were identified as a decision aid according to the IPDAS criteria. All sources provided an acceptable quality of written health information, scoring a global score of 3 for the DISCERN written assessment. The median Flesch-Kincaid reading ease was 50.85 (32.5-80.8) equating to a reading age of 15-18 years and the median Flesch-Kincaid grade level score was 7.65 (range 3-9.7), which equates to a reading age of 13-14. This study has found that there is a paucity of online information for patients contemplating PE. Sources that are available are aimed at a high health literate patient. Given the considerable morbidity associated with PE surgery there is a need for high quality relevant information in this area. A PDA should be developed to improve decision making and ultimately improve patient experience. [Abstract copyright: Copyright © 2021 Royal College of Surgeons of Edinburgh (Scottish charity number SC005317) and Royal College of Surgeons in Ireland. Published by Elsevier Ltd. All rights reserved.] Journal Article The Surgeon 20 6 383 391 Elsevier BV 1479-666X Internet based information, Google, Patient decision aid, Pelvic exenteration, Rectal cancer, DISCERN, IPDAS 13 1 2022 2022-01-13 10.1016/j.surge.2021.12.008 COLLEGE NANME Biomedical Sciences COLLEGE CODE BMS Swansea University 2023-01-05T13:58:03.0103027 2022-01-31T16:17:08.2762584 Faculty of Medicine, Health and Life Sciences Swansea University Medical School - Medicine A. Williams 0000-0002-8521-9989 1 Andrew Cunningham 2 Hayley Hutchings 0000-0003-4155-1741 3 Dean Harris 0000-0003-2673-8946 4 M.D. Evans 5 D. Harji 0000-0002-8493-3312 6 59282__22338__7f1397e75d734101a6af3707c63f2e7f.pdf 59282.pdf 2022-02-09T10:02:46.7950849 Output 642688 application/pdf Accepted Manuscript true 2023-01-13T00:00:00.0000000 ©2021 All rights reserved. All article content, except where otherwise noted, is licensed under a Creative Commons Attribution Non-Commercial No Derivatives License (CC-BY-NC-ND) true eng https://creativecommons.org/licenses/by-nc-nd/4.0/
title Quality of internet information to aid patient decision making in locally advanced and recurrent rectal cancer
spellingShingle Quality of internet information to aid patient decision making in locally advanced and recurrent rectal cancer
Andrew Cunningham
Hayley Hutchings
Dean Harris
title_short Quality of internet information to aid patient decision making in locally advanced and recurrent rectal cancer
title_full Quality of internet information to aid patient decision making in locally advanced and recurrent rectal cancer
title_fullStr Quality of internet information to aid patient decision making in locally advanced and recurrent rectal cancer
title_full_unstemmed Quality of internet information to aid patient decision making in locally advanced and recurrent rectal cancer
title_sort Quality of internet information to aid patient decision making in locally advanced and recurrent rectal cancer
author_id_str_mv 85ba826947f0457916f30b1c4ed8113f
bdf5d5f154d339dd92bb25884b7c3652
731533890c5123febe4f65dffd369f7b
author_id_fullname_str_mv 85ba826947f0457916f30b1c4ed8113f_***_Andrew Cunningham
bdf5d5f154d339dd92bb25884b7c3652_***_Hayley Hutchings
731533890c5123febe4f65dffd369f7b_***_Dean Harris
author Andrew Cunningham
Hayley Hutchings
Dean Harris
author2 A. Williams
Andrew Cunningham
Hayley Hutchings
Dean Harris
M.D. Evans
D. Harji
format Journal article
container_title The Surgeon
container_volume 20
container_issue 6
container_start_page 383
publishDate 2022
institution Swansea University
issn 1479-666X
doi_str_mv 10.1016/j.surge.2021.12.008
publisher Elsevier BV
college_str Faculty of Medicine, Health and Life Sciences
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hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str Swansea University Medical School - Medicine{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}Swansea University Medical School - Medicine
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description To review whether online decision aids are available for patients contemplating pelvic exenteration (PE) for locally advanced and recurrent rectal cancer (LARC and LRRC). A grey literature review was carried out using the Google Search™ engine undertaken using a predefined search strategy (PROSPERO database CRD42019122933). Written health information was assessed using the DISCERN criteria and International Patient Decision Aids Standards (IPDAS) with readability content assessed using the Flesch-Kincaid reading ease test and Flesch-Kincaid grade level score. Google search yielded 27, 782, 200 results for the predefined search criteria. 131 sources were screened resulting in the analysis of 6 sources. No sources were identified as a decision aid according to the IPDAS criteria. All sources provided an acceptable quality of written health information, scoring a global score of 3 for the DISCERN written assessment. The median Flesch-Kincaid reading ease was 50.85 (32.5-80.8) equating to a reading age of 15-18 years and the median Flesch-Kincaid grade level score was 7.65 (range 3-9.7), which equates to a reading age of 13-14. This study has found that there is a paucity of online information for patients contemplating PE. Sources that are available are aimed at a high health literate patient. Given the considerable morbidity associated with PE surgery there is a need for high quality relevant information in this area. A PDA should be developed to improve decision making and ultimately improve patient experience. [Abstract copyright: Copyright © 2021 Royal College of Surgeons of Edinburgh (Scottish charity number SC005317) and Royal College of Surgeons in Ireland. Published by Elsevier Ltd. All rights reserved.]
published_date 2022-01-13T04:16:28Z
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