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End of life care for people with severe mental illness: Mixed methods systematic review and thematic synthesis (the MENLOC study)

Deborah Edwards Orcid Logo, Sally Anstey, Michael Coffey Orcid Logo, Paul Gill, Mala Mann Orcid Logo, Alan Meudell, Ben Hannigan Orcid Logo

Palliative Medicine, Volume: 35, Issue: 10, Pages: 1747 - 1760

Swansea University Author: Michael Coffey Orcid Logo

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DOI (Published version): 10.1177/02692163211037480

Abstract

Background:Parity of esteem means that end-of-life care for people with severe mental illness should be of equal quality to that experienced by all.Aim:To synthesise international, English language, research and UK policy and guidance relating to the organisation, provision, and receipt of end-of-li...

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Published in: Palliative Medicine
ISSN: 0269-2163 1477-030X
Published: SAGE Publications 2021
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URI: https://cronfa.swan.ac.uk/Record/cronfa59189
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We employed thematic synthesis to bring together data from both qualitative and quantitative studies, and from non-research material. We assessed the strength of synthesised findings using the Confidence in the Evidence from Reviews of Qualitative Research (CERQual) and Grading of Recommendations, Assessment, Development and Evaluation (GRADE) approaches.Data sources:Ten electronic databases were searched from inception to December 2019, along with 62 organisational websites. Quality appraisal was conducted using Critical Appraisal Skills Programme checklists or other study design-specific alternatives as necessary.Results:Of the 11,904 citations retrieved, 34 research publications were included plus 28 non-research items. The majority of research was of high or acceptable quality. An overarching synthesis including 52 summary statements, with assessments of confidence in the underpinning evidence, was produced using four themes: Structure of the system; Professional issues; Contexts of care; and Living with severe mental illness.Conclusions:Implications for services and practice reflect evidence in which there is a high degree of confidence. Partnership should be developed across the mental health and end-of-life systems, and ways found to support people to die where they choose. Staff caring for people with severe mental illness at the end-of-life need education, support and supervision. End-of-life care for people with severe mental illness requires a team approach, including advocacy. 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spelling 2022-10-27T15:39:38.9504474 v2 59189 2022-01-16 End of life care for people with severe mental illness: Mixed methods systematic review and thematic synthesis (the MENLOC study) 12112bd2ce15561464c98607f3a8eb0b 0000-0002-0380-4704 Michael Coffey Michael Coffey true false 2022-01-16 PHAC Background:Parity of esteem means that end-of-life care for people with severe mental illness should be of equal quality to that experienced by all.Aim:To synthesise international, English language, research and UK policy and guidance relating to the organisation, provision, and receipt of end-of-life care for people with severe mental illness.Design:A mixed methods systematic review was conducted following the Evidence for Policy and Practice Information and Co-ordinating Centre approach and informed by a stakeholder group. We employed thematic synthesis to bring together data from both qualitative and quantitative studies, and from non-research material. We assessed the strength of synthesised findings using the Confidence in the Evidence from Reviews of Qualitative Research (CERQual) and Grading of Recommendations, Assessment, Development and Evaluation (GRADE) approaches.Data sources:Ten electronic databases were searched from inception to December 2019, along with 62 organisational websites. Quality appraisal was conducted using Critical Appraisal Skills Programme checklists or other study design-specific alternatives as necessary.Results:Of the 11,904 citations retrieved, 34 research publications were included plus 28 non-research items. The majority of research was of high or acceptable quality. An overarching synthesis including 52 summary statements, with assessments of confidence in the underpinning evidence, was produced using four themes: Structure of the system; Professional issues; Contexts of care; and Living with severe mental illness.Conclusions:Implications for services and practice reflect evidence in which there is a high degree of confidence. Partnership should be developed across the mental health and end-of-life systems, and ways found to support people to die where they choose. Staff caring for people with severe mental illness at the end-of-life need education, support and supervision. End-of-life care for people with severe mental illness requires a team approach, including advocacy. Proactive physical health care for people with severe mental illness is needed to tackle problems of delayed diagnosis. Journal Article Palliative Medicine 35 10 1747 1760 SAGE Publications 0269-2163 1477-030X Diseases, health services administration, intersectoral collaboration, mental disorders, neoplasms, systematic review, thematic synthesis 1 12 2021 2021-12-01 10.1177/02692163211037480 COLLEGE NANME Public Health COLLEGE CODE PHAC Swansea University Another institution paid the OA fee The MENLOC study was funded by the National Institute for Health Research (NIHR) Health Services and Delivery Research programme (project number 17/100/15). 2022-10-27T15:39:38.9504474 2022-01-16T15:39:10.4363459 Faculty of Medicine, Health and Life Sciences School of Health and Social Care - Public Health Deborah Edwards 0000-0003-1885-9297 1 Sally Anstey 2 Michael Coffey 0000-0002-0380-4704 3 Paul Gill 4 Mala Mann 0000-0002-2554-9265 5 Alan Meudell 6 Ben Hannigan 0000-0002-2512-6721 7 59189__22267__bb87e66e814c44e4a1db05b6ff641b6e.pdf 59189.pdf 2022-02-01T10:34:45.7046714 Output 521648 application/pdf Version of Record true This article is distributed under the terms of the Creative Commons Attribution 4.0 License true eng https://creativecommons.org/licenses/by/4.0/
title End of life care for people with severe mental illness: Mixed methods systematic review and thematic synthesis (the MENLOC study)
spellingShingle End of life care for people with severe mental illness: Mixed methods systematic review and thematic synthesis (the MENLOC study)
Michael Coffey
title_short End of life care for people with severe mental illness: Mixed methods systematic review and thematic synthesis (the MENLOC study)
title_full End of life care for people with severe mental illness: Mixed methods systematic review and thematic synthesis (the MENLOC study)
title_fullStr End of life care for people with severe mental illness: Mixed methods systematic review and thematic synthesis (the MENLOC study)
title_full_unstemmed End of life care for people with severe mental illness: Mixed methods systematic review and thematic synthesis (the MENLOC study)
title_sort End of life care for people with severe mental illness: Mixed methods systematic review and thematic synthesis (the MENLOC study)
author_id_str_mv 12112bd2ce15561464c98607f3a8eb0b
author_id_fullname_str_mv 12112bd2ce15561464c98607f3a8eb0b_***_Michael Coffey
author Michael Coffey
author2 Deborah Edwards
Sally Anstey
Michael Coffey
Paul Gill
Mala Mann
Alan Meudell
Ben Hannigan
format Journal article
container_title Palliative Medicine
container_volume 35
container_issue 10
container_start_page 1747
publishDate 2021
institution Swansea University
issn 0269-2163
1477-030X
doi_str_mv 10.1177/02692163211037480
publisher SAGE Publications
college_str Faculty of Medicine, Health and Life Sciences
hierarchytype
hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str School of Health and Social Care - Public Health{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}School of Health and Social Care - Public Health
document_store_str 1
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description Background:Parity of esteem means that end-of-life care for people with severe mental illness should be of equal quality to that experienced by all.Aim:To synthesise international, English language, research and UK policy and guidance relating to the organisation, provision, and receipt of end-of-life care for people with severe mental illness.Design:A mixed methods systematic review was conducted following the Evidence for Policy and Practice Information and Co-ordinating Centre approach and informed by a stakeholder group. We employed thematic synthesis to bring together data from both qualitative and quantitative studies, and from non-research material. We assessed the strength of synthesised findings using the Confidence in the Evidence from Reviews of Qualitative Research (CERQual) and Grading of Recommendations, Assessment, Development and Evaluation (GRADE) approaches.Data sources:Ten electronic databases were searched from inception to December 2019, along with 62 organisational websites. Quality appraisal was conducted using Critical Appraisal Skills Programme checklists or other study design-specific alternatives as necessary.Results:Of the 11,904 citations retrieved, 34 research publications were included plus 28 non-research items. The majority of research was of high or acceptable quality. An overarching synthesis including 52 summary statements, with assessments of confidence in the underpinning evidence, was produced using four themes: Structure of the system; Professional issues; Contexts of care; and Living with severe mental illness.Conclusions:Implications for services and practice reflect evidence in which there is a high degree of confidence. Partnership should be developed across the mental health and end-of-life systems, and ways found to support people to die where they choose. Staff caring for people with severe mental illness at the end-of-life need education, support and supervision. End-of-life care for people with severe mental illness requires a team approach, including advocacy. Proactive physical health care for people with severe mental illness is needed to tackle problems of delayed diagnosis.
published_date 2021-12-01T04:16:18Z
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score 11.013686

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