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Dementia Early-Stage Cognitive Aids New Trial (DESCANT) of memory aids and guidance for people with dementia: randomised controlled trial
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Rosa Pitts,
Saiful Islam ,
Julie Peconi,
Ian Russell ,
Greg Fegan,
Rebecca Beresford,
Charlotte Entwistle,
Vincent Gillan,
Martin Orrell,
David Challis ,
Helen Chester,
Jane Hughes,
Narinder Kapur,
Brenda Roe,
Baber Malik,
Catherine Robinson
Journal of Neurology, Neurosurgery & Psychiatry, Volume: 93, Issue: 9, Pages: 1001 - 1009
Swansea University Authors:
Saiful Islam , Julie Peconi, Ian Russell , Greg Fegan
DOI (Published version): 10.1136/jnnp-2021-326748
Abstract
Common memory aids for people with dementia at home are recommended. However, rigorous evaluation is lacking, particularly what guidance or support is valued. To investigate effects of memory aids and guidance by dementia support practitioners (DSPs) for people in early-stage dementia through a prag...
| Published in: | Journal of Neurology, Neurosurgery & Psychiatry |
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| ISSN: | 0022-3050 1468-330X |
| Published: |
BMJ
2022
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| Online Access: |
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| URI: | https://cronfa.swan.ac.uk/Record/cronfa58545 |
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| Abstract: |
Common memory aids for people with dementia at home are recommended. However, rigorous evaluation is lacking, particularly what guidance or support is valued. To investigate effects of memory aids and guidance by dementia support practitioners (DSPs) for people in early-stage dementia through a pragmatic, randomised controlled trial. Of 469 people with mild-to-moderate dementia and their informal carers, 468 were randomised to a DSP with memory aids or to usual care plus existing dementia guide. Allocation was stratified by Trust/Health Board; time since first attendance at memory service; gender; age; and living with primary carer or not. Primary outcome was Bristol Activities of Daily Living Scale (BADLS) Score at 3 and 6 months (primary end-point). Secondary outcomes for people with dementia: quality of life (CASP-19; DEMQOL); cognition and functioning (Clinical Dementia Rating Scale; S-MMSE); capability (ICECAP-O); social networks (LSNS-R); and instrumental daily living activities (R-IDDD). Secondary outcomes for carers: psychological health (GHQ-12); sense of competence (SSCQ). DSPs were successfully trained, compliance was good and welcomed by participants. Mean 6 months BADLS Score increased to 14.6 (SD: 10.4) in intervention and 12.6 (SD: 8.1) in comparator, indicative of greater dependence in the activities of daily living. Adjusted between-group difference was 0.38 (95% CI: -0.89 to 1.65, p=0.56). Though this suggests greater dependency in the intervention group the difference was not significant. No differences were found in secondary outcomes. This intervention did not maintain independence in the activities of daily living with no improvement in other outcomes for people with dementia or carers. Current Controlled Trials ISRCTN12591717. [Abstract copyright: © Author(s) (or their employer(s)) 2021. No commercial re-use. See rights and permissions. Published by BMJ.] |
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| Keywords: |
AIDS, dementia, memory |
| College: |
Faculty of Medicine, Health and Life Sciences |
| Issue: |
9 |
| Start Page: |
1001 |
| End Page: |
1009 |