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Cancer diagnosis, treatment and care: A qualitative study of the experiences and health service use of Roma, Gypsies and Travellers

Louise Condon, Jolana Curejova, Donna Leeanne Morgan, Deborah Fenlon

European Journal of Cancer Care, Volume: 30, Issue: 5

Swansea University Authors: Louise Condon, Deborah Fenlon

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DOI (Published version): 10.1111/ecc.13439

Abstract

BackgroundEarly diagnosis and treatment are key to reducing deaths from cancer, but people from Black and Minority Ethnic (BME) groups are more likely to encounter delays in entering the cancer care system. Roma, Gypsies and Travellers are ethnic minorities who experience extreme health inequalities...

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Published in: European Journal of Cancer Care
ISSN: 0961-5423 1365-2354
Published: Wiley 2021
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URI: https://cronfa.swan.ac.uk/Record/cronfa58150
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first_indexed 2021-10-25T15:03:38Z
last_indexed 2021-10-26T03:24:21Z
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fullrecord <?xml version="1.0" encoding="utf-8"?><rfc1807 xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xmlns:xsd="http://www.w3.org/2001/XMLSchema"><bib-version>v2</bib-version><id>58150</id><entry>2021-09-29</entry><title>Cancer diagnosis, treatment and care: A qualitative study of the experiences and health service use of Roma, Gypsies and Travellers</title><swanseaauthors><author><sid>6e94805454a9baebe13c15c17f09f3ab</sid><firstname>Louise</firstname><surname>Condon</surname><name>Louise Condon</name><active>true</active><ethesisStudent>false</ethesisStudent></author><author><sid>efa6c181fe0a6e5c923b1126ce469186</sid><firstname>Deborah</firstname><surname>Fenlon</surname><name>Deborah Fenlon</name><active>true</active><ethesisStudent>false</ethesisStudent></author></swanseaauthors><date>2021-09-29</date><deptcode>FGMHL</deptcode><abstract>BackgroundEarly diagnosis and treatment are key to reducing deaths from cancer, but people from Black and Minority Ethnic (BME) groups are more likely to encounter delays in entering the cancer care system. Roma, Gypsies and Travellers are ethnic minorities who experience extreme health inequalities.ObjectiveTo explore the experiences of cancer diagnosis, treatment and care among people who self-identify as Roma or Gypsies and Travellers.MethodsA participatory qualitative approach was taken. Peer researchers conducted semi-structured interviews (n = 37) and one focus group (n = 4) with community members in Wales and England, UK.ResultsCancer fatalism is declining, but Roma, Gypsies and Travellers experience barriers to cancer healthcare at service user, service provider and organisational levels. Communication was problematic for all groups, and Roma participants reported lack of access to interpreters within primary care. Clear communication and trusting relationships with health professionals are highly valued and most frequently found in tertiary care.ConclusionThis study suggests that Roma, Gypsies and Travellers are motivated to access health care for cancer diagnosis and treatment, but barriers experienced in primary care can prevent or delay access to diagnostic and treatment services. Organisational changes, plus increased cultural competence among health professionals, have the potential to reduce inequalities in early detection of cancer.</abstract><type>Journal Article</type><journal>European Journal of Cancer Care</journal><volume>30</volume><journalNumber>5</journalNumber><paginationStart/><paginationEnd/><publisher>Wiley</publisher><placeOfPublication/><isbnPrint/><isbnElectronic/><issnPrint>0961-5423</issnPrint><issnElectronic>1365-2354</issnElectronic><keywords>cancer care; cancer diagnosis; cancer treatment; early detection; health services; Roma; Gypsies and Travellers: qualitative</keywords><publishedDay>20</publishedDay><publishedMonth>9</publishedMonth><publishedYear>2021</publishedYear><publishedDate>2021-09-20</publishedDate><doi>10.1111/ecc.13439</doi><url/><notes/><college>COLLEGE NANME</college><department>Medicine, Health and Life Science - Faculty</department><CollegeCode>COLLEGE CODE</CollegeCode><DepartmentCode>FGMHL</DepartmentCode><institution>Swansea University</institution><apcterm/><funders>Tenovus Cancer Care iGrant</funders><projectreference/><lastEdited>2023-06-28T15:45:13.9881612</lastEdited><Created>2021-09-29T15:37:51.1324887</Created><path><level id="1">Faculty of Medicine, Health and Life Sciences</level><level id="2">School of Health and Social Care - Nursing</level></path><authors><author><firstname>Louise</firstname><surname>Condon</surname><order>1</order></author><author><firstname>Jolana</firstname><surname>Curejova</surname><order>2</order></author><author><firstname>Donna Leeanne</firstname><surname>Morgan</surname><order>3</order></author><author><firstname>Deborah</firstname><surname>Fenlon</surname><order>4</order></author></authors><documents><document><filename>58150__21294__99ee9b03fc934fad9366f434afdda372.pdf</filename><originalFilename>58150.pdf</originalFilename><uploaded>2021-10-25T16:04:44.6480396</uploaded><type>Output</type><contentLength>384337</contentLength><contentType>application/pdf</contentType><version>Version of Record</version><cronfaStatus>true</cronfaStatus><documentNotes>© 2021 The Authors. This is an open access article under the terms of the Creative Commons Attribution-NonCommercial License</documentNotes><copyrightCorrect>true</copyrightCorrect><language>eng</language><licence>http://creativecommons.org/licenses/by-nc/4.0/</licence></document></documents><OutputDurs/></rfc1807>
spelling v2 58150 2021-09-29 Cancer diagnosis, treatment and care: A qualitative study of the experiences and health service use of Roma, Gypsies and Travellers 6e94805454a9baebe13c15c17f09f3ab Louise Condon Louise Condon true false efa6c181fe0a6e5c923b1126ce469186 Deborah Fenlon Deborah Fenlon true false 2021-09-29 FGMHL BackgroundEarly diagnosis and treatment are key to reducing deaths from cancer, but people from Black and Minority Ethnic (BME) groups are more likely to encounter delays in entering the cancer care system. Roma, Gypsies and Travellers are ethnic minorities who experience extreme health inequalities.ObjectiveTo explore the experiences of cancer diagnosis, treatment and care among people who self-identify as Roma or Gypsies and Travellers.MethodsA participatory qualitative approach was taken. Peer researchers conducted semi-structured interviews (n = 37) and one focus group (n = 4) with community members in Wales and England, UK.ResultsCancer fatalism is declining, but Roma, Gypsies and Travellers experience barriers to cancer healthcare at service user, service provider and organisational levels. Communication was problematic for all groups, and Roma participants reported lack of access to interpreters within primary care. Clear communication and trusting relationships with health professionals are highly valued and most frequently found in tertiary care.ConclusionThis study suggests that Roma, Gypsies and Travellers are motivated to access health care for cancer diagnosis and treatment, but barriers experienced in primary care can prevent or delay access to diagnostic and treatment services. Organisational changes, plus increased cultural competence among health professionals, have the potential to reduce inequalities in early detection of cancer. Journal Article European Journal of Cancer Care 30 5 Wiley 0961-5423 1365-2354 cancer care; cancer diagnosis; cancer treatment; early detection; health services; Roma; Gypsies and Travellers: qualitative 20 9 2021 2021-09-20 10.1111/ecc.13439 COLLEGE NANME Medicine, Health and Life Science - Faculty COLLEGE CODE FGMHL Swansea University Tenovus Cancer Care iGrant 2023-06-28T15:45:13.9881612 2021-09-29T15:37:51.1324887 Faculty of Medicine, Health and Life Sciences School of Health and Social Care - Nursing Louise Condon 1 Jolana Curejova 2 Donna Leeanne Morgan 3 Deborah Fenlon 4 58150__21294__99ee9b03fc934fad9366f434afdda372.pdf 58150.pdf 2021-10-25T16:04:44.6480396 Output 384337 application/pdf Version of Record true © 2021 The Authors. This is an open access article under the terms of the Creative Commons Attribution-NonCommercial License true eng http://creativecommons.org/licenses/by-nc/4.0/
title Cancer diagnosis, treatment and care: A qualitative study of the experiences and health service use of Roma, Gypsies and Travellers
spellingShingle Cancer diagnosis, treatment and care: A qualitative study of the experiences and health service use of Roma, Gypsies and Travellers
Louise Condon
Deborah Fenlon
title_short Cancer diagnosis, treatment and care: A qualitative study of the experiences and health service use of Roma, Gypsies and Travellers
title_full Cancer diagnosis, treatment and care: A qualitative study of the experiences and health service use of Roma, Gypsies and Travellers
title_fullStr Cancer diagnosis, treatment and care: A qualitative study of the experiences and health service use of Roma, Gypsies and Travellers
title_full_unstemmed Cancer diagnosis, treatment and care: A qualitative study of the experiences and health service use of Roma, Gypsies and Travellers
title_sort Cancer diagnosis, treatment and care: A qualitative study of the experiences and health service use of Roma, Gypsies and Travellers
author_id_str_mv 6e94805454a9baebe13c15c17f09f3ab
efa6c181fe0a6e5c923b1126ce469186
author_id_fullname_str_mv 6e94805454a9baebe13c15c17f09f3ab_***_Louise Condon
efa6c181fe0a6e5c923b1126ce469186_***_Deborah Fenlon
author Louise Condon
Deborah Fenlon
author2 Louise Condon
Jolana Curejova
Donna Leeanne Morgan
Deborah Fenlon
format Journal article
container_title European Journal of Cancer Care
container_volume 30
container_issue 5
publishDate 2021
institution Swansea University
issn 0961-5423
1365-2354
doi_str_mv 10.1111/ecc.13439
publisher Wiley
college_str Faculty of Medicine, Health and Life Sciences
hierarchytype
hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str School of Health and Social Care - Nursing{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}School of Health and Social Care - Nursing
document_store_str 1
active_str 0
description BackgroundEarly diagnosis and treatment are key to reducing deaths from cancer, but people from Black and Minority Ethnic (BME) groups are more likely to encounter delays in entering the cancer care system. Roma, Gypsies and Travellers are ethnic minorities who experience extreme health inequalities.ObjectiveTo explore the experiences of cancer diagnosis, treatment and care among people who self-identify as Roma or Gypsies and Travellers.MethodsA participatory qualitative approach was taken. Peer researchers conducted semi-structured interviews (n = 37) and one focus group (n = 4) with community members in Wales and England, UK.ResultsCancer fatalism is declining, but Roma, Gypsies and Travellers experience barriers to cancer healthcare at service user, service provider and organisational levels. Communication was problematic for all groups, and Roma participants reported lack of access to interpreters within primary care. Clear communication and trusting relationships with health professionals are highly valued and most frequently found in tertiary care.ConclusionThis study suggests that Roma, Gypsies and Travellers are motivated to access health care for cancer diagnosis and treatment, but barriers experienced in primary care can prevent or delay access to diagnostic and treatment services. Organisational changes, plus increased cultural competence among health professionals, have the potential to reduce inequalities in early detection of cancer.
published_date 2021-09-20T15:45:09Z
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