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A research agenda for promoting continence for people living with dementia in the community: Recommendations based on a critical review and expert‐by‐experience opinion

Vanessa Burholt Orcid Logo, Johanna Davies, Michal Boyd, Jane Mullins, Zoe Shoemark

Journal of Clinical Nursing, Volume: 31, Issue: 13-14, Pages: 1933 - 1946

Swansea University Authors: Vanessa Burholt Orcid Logo, Jane Mullins, Zoe Shoemark

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DOI (Published version): 10.1111/jocn.15537

Abstract

Aims and objectivesTo identify research undertaken in the last decade addressing continence for people living with dementia (PLWD) in the community. To highlight gaps and develop recommendations for future research, taking into account the experiences and priorities of PLWD, caregivers and healthcar...

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Published in: Journal of Clinical Nursing
ISSN: 0962-1067 1365-2702
Published: Wiley 2022
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URI: https://cronfa.swan.ac.uk/Record/cronfa58061
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To highlight gaps and develop recommendations for future research, taking into account the experiences and priorities of PLWD, caregivers and healthcare professionals.MethodsA critical review with an Expert Review Group (ERG) comprising researchers, PLWD and facing continence issues, caregivers and other professional stakeholders. Findings are reported in line with the COREQ and Preferred Reporting Items for Systematic reviews and Meta-Analyses extension for Scoping Reviews checklists.BackgroundCaregivers rate the independent use of the toilet as the most important activity for PLWD to retain. However, in 2009 a review identified shortfalls in knowledge and praxis around promoting continence and managing incontinence for PLWD in the community. As absolute numbers of people with dementia are predicted to increase, it is imperative to examine whether these deficits have been addressed.ResultsOf 3,563 records identified, 57 full-text articles were reviewed. The ERG developed a conceptual model to summarise research evidence according to the extent of the challenge (neuropathology and clinicopathology, prevalence and incidence), gateways to continence services, effectiveness of interventions, outcomes and the potential influences of personal resources, socio-cultural factors and environmental contexts.ConclusionsResearch on (in)continence for PLWD in the community is under-developed and has not increased substantially over the last decade. 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spelling 2022-10-27T15:28:22.3042179 v2 58061 2021-09-23 A research agenda for promoting continence for people living with dementia in the community: Recommendations based on a critical review and expert‐by‐experience opinion cf7fe9863906cd54df5b0a99904d535e 0000-0002-6789-127X Vanessa Burholt Vanessa Burholt true false 8cf6ea7df3c765aab153019617f3e0ad Jane Mullins Jane Mullins true false a1bcb39e38e95369cbe82d026d72b8e9 Zoe Shoemark Zoe Shoemark true false 2021-09-23 PHAC Aims and objectivesTo identify research undertaken in the last decade addressing continence for people living with dementia (PLWD) in the community. To highlight gaps and develop recommendations for future research, taking into account the experiences and priorities of PLWD, caregivers and healthcare professionals.MethodsA critical review with an Expert Review Group (ERG) comprising researchers, PLWD and facing continence issues, caregivers and other professional stakeholders. Findings are reported in line with the COREQ and Preferred Reporting Items for Systematic reviews and Meta-Analyses extension for Scoping Reviews checklists.BackgroundCaregivers rate the independent use of the toilet as the most important activity for PLWD to retain. However, in 2009 a review identified shortfalls in knowledge and praxis around promoting continence and managing incontinence for PLWD in the community. As absolute numbers of people with dementia are predicted to increase, it is imperative to examine whether these deficits have been addressed.ResultsOf 3,563 records identified, 57 full-text articles were reviewed. The ERG developed a conceptual model to summarise research evidence according to the extent of the challenge (neuropathology and clinicopathology, prevalence and incidence), gateways to continence services, effectiveness of interventions, outcomes and the potential influences of personal resources, socio-cultural factors and environmental contexts.ConclusionsResearch on (in)continence for PLWD in the community is under-developed and has not increased substantially over the last decade. ERG recommendations for future research included user involvement to identify appropriate quality indicators to assess the effectiveness of interventions. Journal Article Journal of Clinical Nursing 31 13-14 1933 1946 Wiley 0962-1067 1365-2702 caregivers, community dwelling, continence, dementia, home care, social care 1 7 2022 2022-07-01 10.1111/jocn.15537 COLLEGE NANME Public Health COLLEGE CODE PHAC Swansea University Health and Care Research Wales Senior Research Leader fund 2022-10-27T15:28:22.3042179 2021-09-23T21:15:59.3886503 Faculty of Medicine, Health and Life Sciences The Centre for Innovative Ageing Vanessa Burholt 0000-0002-6789-127X 1 Johanna Davies 2 Michal Boyd 3 Jane Mullins 4 Zoe Shoemark 5 58061__20991__481f9ac6ee4a414981f0da98fe17b959.pdf A research agenda for promoting continence for PLWD in the community (OFFPRINT).pdf 2021-09-23T21:44:10.1692183 Output 1021165 application/pdf Version of Record true © 2020 The Authors. This is an open access article under the terms of the Creative Commons Attribution-NonCommercial License true eng http://creativecommons.org/licenses/by-nc/4.0/
title A research agenda for promoting continence for people living with dementia in the community: Recommendations based on a critical review and expert‐by‐experience opinion
spellingShingle A research agenda for promoting continence for people living with dementia in the community: Recommendations based on a critical review and expert‐by‐experience opinion
Vanessa Burholt
Jane Mullins
Zoe Shoemark
title_short A research agenda for promoting continence for people living with dementia in the community: Recommendations based on a critical review and expert‐by‐experience opinion
title_full A research agenda for promoting continence for people living with dementia in the community: Recommendations based on a critical review and expert‐by‐experience opinion
title_fullStr A research agenda for promoting continence for people living with dementia in the community: Recommendations based on a critical review and expert‐by‐experience opinion
title_full_unstemmed A research agenda for promoting continence for people living with dementia in the community: Recommendations based on a critical review and expert‐by‐experience opinion
title_sort A research agenda for promoting continence for people living with dementia in the community: Recommendations based on a critical review and expert‐by‐experience opinion
author_id_str_mv cf7fe9863906cd54df5b0a99904d535e
8cf6ea7df3c765aab153019617f3e0ad
a1bcb39e38e95369cbe82d026d72b8e9
author_id_fullname_str_mv cf7fe9863906cd54df5b0a99904d535e_***_Vanessa Burholt
8cf6ea7df3c765aab153019617f3e0ad_***_Jane Mullins
a1bcb39e38e95369cbe82d026d72b8e9_***_Zoe Shoemark
author Vanessa Burholt
Jane Mullins
Zoe Shoemark
author2 Vanessa Burholt
Johanna Davies
Michal Boyd
Jane Mullins
Zoe Shoemark
format Journal article
container_title Journal of Clinical Nursing
container_volume 31
container_issue 13-14
container_start_page 1933
publishDate 2022
institution Swansea University
issn 0962-1067
1365-2702
doi_str_mv 10.1111/jocn.15537
publisher Wiley
college_str Faculty of Medicine, Health and Life Sciences
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hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str The Centre for Innovative Ageing{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}The Centre for Innovative Ageing
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description Aims and objectivesTo identify research undertaken in the last decade addressing continence for people living with dementia (PLWD) in the community. To highlight gaps and develop recommendations for future research, taking into account the experiences and priorities of PLWD, caregivers and healthcare professionals.MethodsA critical review with an Expert Review Group (ERG) comprising researchers, PLWD and facing continence issues, caregivers and other professional stakeholders. Findings are reported in line with the COREQ and Preferred Reporting Items for Systematic reviews and Meta-Analyses extension for Scoping Reviews checklists.BackgroundCaregivers rate the independent use of the toilet as the most important activity for PLWD to retain. However, in 2009 a review identified shortfalls in knowledge and praxis around promoting continence and managing incontinence for PLWD in the community. As absolute numbers of people with dementia are predicted to increase, it is imperative to examine whether these deficits have been addressed.ResultsOf 3,563 records identified, 57 full-text articles were reviewed. The ERG developed a conceptual model to summarise research evidence according to the extent of the challenge (neuropathology and clinicopathology, prevalence and incidence), gateways to continence services, effectiveness of interventions, outcomes and the potential influences of personal resources, socio-cultural factors and environmental contexts.ConclusionsResearch on (in)continence for PLWD in the community is under-developed and has not increased substantially over the last decade. ERG recommendations for future research included user involvement to identify appropriate quality indicators to assess the effectiveness of interventions.
published_date 2022-07-01T04:14:17Z
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