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Living with chronic obstructive pulmonary disease: The experience of patients and their carers. / Heather Antoinette Williams

Swansea University Author: Heather Antoinette Williams

Abstract

This thesis explores the subjective experiences of patients and carers living with chronic obstructive pulmonary disease (COPD), a degenerative respiratory condition. It aims to improve understanding of the illness trajectory experienced by sufferers as they respond to the physical and psychological...

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Published: 2007
Institution: Swansea University
Degree level: Doctoral
Degree name: Ph.D
URI: https://cronfa.swan.ac.uk/Record/cronfa42420
first_indexed 2018-08-02T18:54:40Z
last_indexed 2019-10-21T16:47:47Z
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recordtype RisThesis
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spelling 2018-08-20T17:01:15.6428643 v2 42420 2018-08-02 Living with chronic obstructive pulmonary disease: The experience of patients and their carers. 8e288adc02eee4a5db728ba751779ec9 NULL Heather Antoinette Williams Heather Antoinette Williams true true 2018-08-02 This thesis explores the subjective experiences of patients and carers living with chronic obstructive pulmonary disease (COPD), a degenerative respiratory condition. It aims to improve understanding of the illness trajectory experienced by sufferers as they respond to the physical and psychological impact of COPD on their body, self- identity, relationships and daily living. The illness COPD is poorly recognised by health policy makers, the media, health professionals and patients alike, despite being predicted to become the third leading cause of death worldwide by 2020. Even less is known about the lived experience of COPD as perceived by the individuals themselves. A qualitative approach based on symbolic interactionism was employed to collect and analyse narrative data obtained from a purposive sample of 53 patients with moderate to severe COPD and 15 family carers. Exploration of the illness trajectory through narratives recounted by patients and carers highlighted the impact of COPD on their lives. The study identified conceptual illness phases experienced by patients as: the early days, adapting to changes in self and lifestyle, the daily struggle and living with severe COPD: fears and facing the future. Individuals revealed how they perceived their disabled body, dependency on others, and the cumulative life losses they experienced, together with feelings of vulnerability, as contributing to a sense of altered self and identity. The illness phases were reflected in the role of the relative who moved through the transitional phases from being a caring relative to a care-giving relative, caring through crisis periods, and eventually becoming a full-time carer. The study provides insights into the perceived issues and concerns of patients and carers living with the consequences of COPD. It may provide lessons for health professionals, which will contribute to more appropriate and acceptable healthcare to support patients with COPD and their carers. E-Thesis Medicine.;Nursing. 31 12 2007 2007-12-31 COLLEGE NANME Nursing COLLEGE CODE Swansea University Doctoral Ph.D 2018-08-20T17:01:15.6428643 2018-08-02T16:24:29.1817940 Faculty of Medicine, Health and Life Sciences School of Health and Social Care - Nursing Heather Antoinette Williams NULL 1 0042420-02082018162453.pdf 10798128.pdf 2018-08-02T16:24:53.0030000 Output 12860697 application/pdf E-Thesis true 2018-08-02T16:24:53.0030000 false
title Living with chronic obstructive pulmonary disease: The experience of patients and their carers.
spellingShingle Living with chronic obstructive pulmonary disease: The experience of patients and their carers.
Heather Antoinette Williams
title_short Living with chronic obstructive pulmonary disease: The experience of patients and their carers.
title_full Living with chronic obstructive pulmonary disease: The experience of patients and their carers.
title_fullStr Living with chronic obstructive pulmonary disease: The experience of patients and their carers.
title_full_unstemmed Living with chronic obstructive pulmonary disease: The experience of patients and their carers.
title_sort Living with chronic obstructive pulmonary disease: The experience of patients and their carers.
author_id_str_mv 8e288adc02eee4a5db728ba751779ec9
author_id_fullname_str_mv 8e288adc02eee4a5db728ba751779ec9_***_Heather Antoinette Williams
author Heather Antoinette Williams
author2 Heather Antoinette Williams
format E-Thesis
publishDate 2007
institution Swansea University
college_str Faculty of Medicine, Health and Life Sciences
hierarchytype
hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str School of Health and Social Care - Nursing{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}School of Health and Social Care - Nursing
document_store_str 1
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description This thesis explores the subjective experiences of patients and carers living with chronic obstructive pulmonary disease (COPD), a degenerative respiratory condition. It aims to improve understanding of the illness trajectory experienced by sufferers as they respond to the physical and psychological impact of COPD on their body, self- identity, relationships and daily living. The illness COPD is poorly recognised by health policy makers, the media, health professionals and patients alike, despite being predicted to become the third leading cause of death worldwide by 2020. Even less is known about the lived experience of COPD as perceived by the individuals themselves. A qualitative approach based on symbolic interactionism was employed to collect and analyse narrative data obtained from a purposive sample of 53 patients with moderate to severe COPD and 15 family carers. Exploration of the illness trajectory through narratives recounted by patients and carers highlighted the impact of COPD on their lives. The study identified conceptual illness phases experienced by patients as: the early days, adapting to changes in self and lifestyle, the daily struggle and living with severe COPD: fears and facing the future. Individuals revealed how they perceived their disabled body, dependency on others, and the cumulative life losses they experienced, together with feelings of vulnerability, as contributing to a sense of altered self and identity. The illness phases were reflected in the role of the relative who moved through the transitional phases from being a caring relative to a care-giving relative, caring through crisis periods, and eventually becoming a full-time carer. The study provides insights into the perceived issues and concerns of patients and carers living with the consequences of COPD. It may provide lessons for health professionals, which will contribute to more appropriate and acceptable healthcare to support patients with COPD and their carers.
published_date 2007-12-31T04:24:50Z
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score 11.089386

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