Dementia and Imagination: a mixed-methods protocol for arts and science research

Windle, Gill; Newman, Andrew; Burholt, Vanessa; Woods, Bob; O'Brien, Dave; Baber, Michael; Hounsome, Barry; Parkinson, Clive; Tischler, Victoria

doi:10.1136/bmjopen-2016-011634

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Dementia and Imagination: a mixed-methods protocol for arts and science research

Gill Windle, Andrew Newman, Vanessa Burholt

, Bob Woods, Dave O'Brien, Michael Baber, Barry Hounsome, Clive Parkinson, Victoria Tischler

BMJ Open, Volume: 6, Issue: 11, Start page: e011634

Swansea University Author: Vanessa Burholt

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DOI (Published version): 10.1136/bmjopen-2016-011634

Abstract

Introduction Dementia and Imagination is a multi-disciplinary research collaboration bringing together arts and science to address current evidence limitations around the benefits of art activities in dementia care. It is a large programme of work with a novel combination of methods from health and...

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Published in:	BMJ Open
ISSN:	2044-6055 2044-6055
Published:	2016
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URI:	https://cronfa.swan.ac.uk/Record/cronfa30571
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Quantitative and qualitative data are collected at three time-points to examine the impact on the quality of life of people living with dementia together with the cost-benefit, and the perceptions of those who care for them (N=100 family and professional carers). Repeated-measures systematic observation of wellbeing is applied during the intervention delivery (intervention versus control condition). Qualitative data is collected from a sub-sample at three time-points (N=35 carers/staff and N=35 people living with dementia) to explore changes in social connectedness. Self-reported outcomes during the intervention delivery are obtained (N=100). Focus groups with intervention participants (N=40) explore perceptions of impact. Social network analysis of quantitative and qualitative data from arts and healthcare professionals (N=100) examine changes in perceptions and practice. Ethics and dissemination The study is approved by North Wales research ethics committee – West. The research findings will be shared through a range of activities. International and national academic conferences and events will be attended to present papers and lead symposia. The project has developed an extensive public engagement and communication strategy. Public engagement projects will target a broad range of stakeholders. There is a regularly maintained project website, which is a resource bank for stakeholders and a continuing legacy from the project. A quarterly newsletter is produced. Policy and practice summaries will be developed from the findings. 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spelling	2018-11-13T13:49:39.6702275 v2 30571 2016-10-14 Dementia and Imagination: a mixed-methods protocol for arts and science research cf7fe9863906cd54df5b0a99904d535e 0000-0002-6789-127X Vanessa Burholt Vanessa Burholt true false 2016-10-14 PHAC Introduction Dementia and Imagination is a multi-disciplinary research collaboration bringing together arts and science to address current evidence limitations around the benefits of art activities in dementia care. It is a large programme of work with a novel combination of methods from health and social sciences together with the arts and humanities to address a key societal challenge – supporting the quality of life of the growing number of people living with dementia. This is examined through the following questions; can art improve quality of life and well-being? If it does make a difference, how does it do this - and why? Does it have wider social and community benefits? Methods and analysis Participants are recruited from residential care homes, NHS wards and communities in three locations in England and Wales. A visual arts intervention is developed and delivered as 1 x 2 hour weekly group session for 3 months to N=100 people living with dementia. Quantitative and qualitative data are collected at three time-points to examine the impact on the quality of life of people living with dementia together with the cost-benefit, and the perceptions of those who care for them (N=100 family and professional carers). Repeated-measures systematic observation of wellbeing is applied during the intervention delivery (intervention versus control condition). Qualitative data is collected from a sub-sample at three time-points (N=35 carers/staff and N=35 people living with dementia) to explore changes in social connectedness. Self-reported outcomes during the intervention delivery are obtained (N=100). Focus groups with intervention participants (N=40) explore perceptions of impact. Social network analysis of quantitative and qualitative data from arts and healthcare professionals (N=100) examine changes in perceptions and practice. Ethics and dissemination The study is approved by North Wales research ethics committee – West. The research findings will be shared through a range of activities. International and national academic conferences and events will be attended to present papers and lead symposia. The project has developed an extensive public engagement and communication strategy. Public engagement projects will target a broad range of stakeholders. There is a regularly maintained project website, which is a resource bank for stakeholders and a continuing legacy from the project. A quarterly newsletter is produced. Policy and practice summaries will be developed from the findings. The visual arts intervention protocol will be developed as a practitioners guide and freely available.Strengths and limitations of this study•Dementia and Imagination is the largest arts and dementia research study in the UK.•The development and delivery of the research involves partnerships between universities, community arts organisations, galleries, the NHS and charities.•It combines methods from health and social sciences together with the arts and humanities to address a key societal challenge – supporting the quality of life of the growing number of people living with dementia.•A limitation is that the study design cannot focus on a more robust test of effectiveness, as this was beyond the remit of the funders Journal Article BMJ Open 6 11 e011634 2044-6055 2044-6055 dementia; quality of life; multi-disciplinary; mixed-methods; art intervention 2 11 2016 2016-11-02 10.1136/bmjopen-2016-011634 COLLEGE NANME Public Health COLLEGE CODE PHAC Swansea University RCUK 2018-11-13T13:49:39.6702275 2016-10-14T09:38:51.8470697 Faculty of Medicine, Health and Life Sciences The Centre for Innovative Ageing Gill Windle 1 Andrew Newman 2 Vanessa Burholt 0000-0002-6789-127X 3 Bob Woods 4 Dave O'Brien 5 Michael Baber 6 Barry Hounsome 7 Clive Parkinson 8 Victoria Tischler 9 0030571-02122016120625.pdf BMJOpen2016Windle.pdf 2016-12-02T12:06:25.0870000 Output 992950 application/pdf Version of Record true 2016-12-02T00:00:00.0000000 This is an Open Access article distributed in accordance with the terms of the Creative Commons Attribution (CC BY 4.0) license, which permits others to distribute, remix, adapt and build upon this work, for commercial use, provided the original work is properly cited. See: http://creativecommons.org/licenses/by/4.0/ true
title	Dementia and Imagination: a mixed-methods protocol for arts and science research
spellingShingle	Dementia and Imagination: a mixed-methods protocol for arts and science research Vanessa Burholt
title_short	Dementia and Imagination: a mixed-methods protocol for arts and science research
title_full	Dementia and Imagination: a mixed-methods protocol for arts and science research
title_fullStr	Dementia and Imagination: a mixed-methods protocol for arts and science research
title_full_unstemmed	Dementia and Imagination: a mixed-methods protocol for arts and science research
title_sort	Dementia and Imagination: a mixed-methods protocol for arts and science research
author_id_str_mv	cf7fe9863906cd54df5b0a99904d535e
author_id_fullname_str_mv	cf7fe9863906cd54df5b0a99904d535e_***_Vanessa Burholt
author	Vanessa Burholt
author2	Gill Windle Andrew Newman Vanessa Burholt Bob Woods Dave O'Brien Michael Baber Barry Hounsome Clive Parkinson Victoria Tischler
format	Journal article
container_title	BMJ Open
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container_issue	11
container_start_page	e011634
publishDate	2016
institution	Swansea University
issn	2044-6055 2044-6055
doi_str_mv	10.1136/bmjopen-2016-011634
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hierarchy_parent_title	Faculty of Medicine, Health and Life Sciences
department_str	The Centre for Innovative Ageing{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}The Centre for Innovative Ageing
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description	Introduction Dementia and Imagination is a multi-disciplinary research collaboration bringing together arts and science to address current evidence limitations around the benefits of art activities in dementia care. It is a large programme of work with a novel combination of methods from health and social sciences together with the arts and humanities to address a key societal challenge – supporting the quality of life of the growing number of people living with dementia. This is examined through the following questions; can art improve quality of life and well-being? If it does make a difference, how does it do this - and why? Does it have wider social and community benefits? Methods and analysis Participants are recruited from residential care homes, NHS wards and communities in three locations in England and Wales. A visual arts intervention is developed and delivered as 1 x 2 hour weekly group session for 3 months to N=100 people living with dementia. Quantitative and qualitative data are collected at three time-points to examine the impact on the quality of life of people living with dementia together with the cost-benefit, and the perceptions of those who care for them (N=100 family and professional carers). Repeated-measures systematic observation of wellbeing is applied during the intervention delivery (intervention versus control condition). Qualitative data is collected from a sub-sample at three time-points (N=35 carers/staff and N=35 people living with dementia) to explore changes in social connectedness. Self-reported outcomes during the intervention delivery are obtained (N=100). Focus groups with intervention participants (N=40) explore perceptions of impact. Social network analysis of quantitative and qualitative data from arts and healthcare professionals (N=100) examine changes in perceptions and practice. Ethics and dissemination The study is approved by North Wales research ethics committee – West. The research findings will be shared through a range of activities. International and national academic conferences and events will be attended to present papers and lead symposia. The project has developed an extensive public engagement and communication strategy. Public engagement projects will target a broad range of stakeholders. There is a regularly maintained project website, which is a resource bank for stakeholders and a continuing legacy from the project. A quarterly newsletter is produced. Policy and practice summaries will be developed from the findings. The visual arts intervention protocol will be developed as a practitioners guide and freely available.Strengths and limitations of this study•Dementia and Imagination is the largest arts and dementia research study in the UK.•The development and delivery of the research involves partnerships between universities, community arts organisations, galleries, the NHS and charities.•It combines methods from health and social sciences together with the arts and humanities to address a key societal challenge – supporting the quality of life of the growing number of people living with dementia.•A limitation is that the study design cannot focus on a more robust test of effectiveness, as this was beyond the remit of the funders
published_date	2016-11-02T03:37:10Z
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Dementia and Imagination: a mixed-methods protocol for arts and science research

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