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Keeping In Touch Everyday (KITE) project: developing assistive technologies with people with dementia and their carers to promote independence

Louise Robinson, Katie Brittain, Stephen Lindsay Orcid Logo, Dan Jackson, Patrick Olivier

International Psychogeriatrics, Volume: 21, Issue: 03, Start page: 494

Swansea University Author: Stephen Lindsay Orcid Logo

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DOI (Published version): 10.1017/S1041610209008448

Abstract

Background: The role of technology to facilitate independent living for people with dementia is not fully realized, with initial attempts (e.g. tracking devices) being considered unacceptable from a practical and ethical perspective. The aim of this study is to create acceptable and effective protot...

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Published in: International Psychogeriatrics
ISSN: 1041-6102 1741-203X
Published: 2009
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URI: https://cronfa.swan.ac.uk/Record/cronfa13536
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first_indexed 2013-07-23T12:10:29Z
last_indexed 2018-02-09T04:44:21Z
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fullrecord <?xml version="1.0"?><rfc1807><datestamp>2013-10-17T15:14:19.3725549</datestamp><bib-version>v2</bib-version><id>13536</id><entry>2012-12-05</entry><title>Keeping In Touch Everyday (KITE) project: developing assistive technologies with people with dementia and their carers to promote independence</title><swanseaauthors><author><sid>0e6c28093df4874b4263b328d7817e09</sid><ORCID>0000-0001-6063-3676</ORCID><firstname>Stephen</firstname><surname>Lindsay</surname><name>Stephen Lindsay</name><active>true</active><ethesisStudent>false</ethesisStudent></author></swanseaauthors><date>2012-12-05</date><deptcode>SCS</deptcode><abstract>Background: The role of technology to facilitate independent living for people with dementia is not fully realized, with initial attempts (e.g. tracking devices) being considered unacceptable from a practical and ethical perspective. The aim of this study is to create acceptable and effective prototype technologies to facilitate independence for people with dementia through a user-centered design process involving them and their carers.Method: The study comprised a three-stage participatory design process: scoping stage (five focus groups, 10 people with dementia and 11 carers); participatory design stage (five workshops, 22 participants) and prototype development stage (four meetings with two people with dementia and one carer). Focus groups and workshops were digitally recorded, fully transcribed and subjected to constant comparative analysis.Results: People with mild to moderate dementia enjoy a variety of activities both on their own and with their families; however, concerns included getting lost, a loss of confidence with curtailment of usual activities, and carer anxiety. Existing technologies (mobile phones) were used intermittently. Participants felt strongly that future devices should be disguised and be integrated easily into their daily routines. Suggested areas for functional improvement included two-way communications, flexibility of function as the illness progresses, and something to &#x201C;guide&#x201D; them home when out walking or driving. Attention should also be focused on minimizing the size, weight and visibility of devices to reduce stigmatization.Conclusion: Prototypes for two devices (armband and electronic notepad) were developed. The study showed that involving people with dementia in the process of participatory design is feasible and could lead to devices which are more acceptable and relevant to their needs.</abstract><type>Journal Article</type><journal>International Psychogeriatrics</journal><volume>21</volume><journalNumber>03</journalNumber><paginationStart>494</paginationStart><paginationEnd/><publisher/><placeOfPublication/><issnPrint>1041-6102</issnPrint><issnElectronic>1741-203X</issnElectronic><keywords>dementia; assistive technologies; autonomy; participatory design; older people</keywords><publishedDay>31</publishedDay><publishedMonth>12</publishedMonth><publishedYear>2009</publishedYear><publishedDate>2009-12-31</publishedDate><doi>10.1017/S1041610209008448</doi><url/><notes/><college>COLLEGE NANME</college><department>Computer Science</department><CollegeCode>COLLEGE CODE</CollegeCode><DepartmentCode>SCS</DepartmentCode><institution>Swansea University</institution><apcterm/><lastEdited>2013-10-17T15:14:19.3725549</lastEdited><Created>2012-12-05T11:50:47.3539182</Created><path><level id="1">Faculty of Science and Engineering</level><level id="2">School of Mathematics and Computer Science - Computer Science</level></path><authors><author><firstname>Louise</firstname><surname>Robinson</surname><order>1</order></author><author><firstname>Katie</firstname><surname>Brittain</surname><order>2</order></author><author><firstname>Stephen</firstname><surname>Lindsay</surname><orcid>0000-0001-6063-3676</orcid><order>3</order></author><author><firstname>Dan</firstname><surname>Jackson</surname><order>4</order></author><author><firstname>Patrick</firstname><surname>Olivier</surname><order>5</order></author></authors><documents/><OutputDurs/></rfc1807>
spelling 2013-10-17T15:14:19.3725549 v2 13536 2012-12-05 Keeping In Touch Everyday (KITE) project: developing assistive technologies with people with dementia and their carers to promote independence 0e6c28093df4874b4263b328d7817e09 0000-0001-6063-3676 Stephen Lindsay Stephen Lindsay true false 2012-12-05 SCS Background: The role of technology to facilitate independent living for people with dementia is not fully realized, with initial attempts (e.g. tracking devices) being considered unacceptable from a practical and ethical perspective. The aim of this study is to create acceptable and effective prototype technologies to facilitate independence for people with dementia through a user-centered design process involving them and their carers.Method: The study comprised a three-stage participatory design process: scoping stage (five focus groups, 10 people with dementia and 11 carers); participatory design stage (five workshops, 22 participants) and prototype development stage (four meetings with two people with dementia and one carer). Focus groups and workshops were digitally recorded, fully transcribed and subjected to constant comparative analysis.Results: People with mild to moderate dementia enjoy a variety of activities both on their own and with their families; however, concerns included getting lost, a loss of confidence with curtailment of usual activities, and carer anxiety. Existing technologies (mobile phones) were used intermittently. Participants felt strongly that future devices should be disguised and be integrated easily into their daily routines. Suggested areas for functional improvement included two-way communications, flexibility of function as the illness progresses, and something to “guide” them home when out walking or driving. Attention should also be focused on minimizing the size, weight and visibility of devices to reduce stigmatization.Conclusion: Prototypes for two devices (armband and electronic notepad) were developed. The study showed that involving people with dementia in the process of participatory design is feasible and could lead to devices which are more acceptable and relevant to their needs. Journal Article International Psychogeriatrics 21 03 494 1041-6102 1741-203X dementia; assistive technologies; autonomy; participatory design; older people 31 12 2009 2009-12-31 10.1017/S1041610209008448 COLLEGE NANME Computer Science COLLEGE CODE SCS Swansea University 2013-10-17T15:14:19.3725549 2012-12-05T11:50:47.3539182 Faculty of Science and Engineering School of Mathematics and Computer Science - Computer Science Louise Robinson 1 Katie Brittain 2 Stephen Lindsay 0000-0001-6063-3676 3 Dan Jackson 4 Patrick Olivier 5
title Keeping In Touch Everyday (KITE) project: developing assistive technologies with people with dementia and their carers to promote independence
spellingShingle Keeping In Touch Everyday (KITE) project: developing assistive technologies with people with dementia and their carers to promote independence
Stephen Lindsay
title_short Keeping In Touch Everyday (KITE) project: developing assistive technologies with people with dementia and their carers to promote independence
title_full Keeping In Touch Everyday (KITE) project: developing assistive technologies with people with dementia and their carers to promote independence
title_fullStr Keeping In Touch Everyday (KITE) project: developing assistive technologies with people with dementia and their carers to promote independence
title_full_unstemmed Keeping In Touch Everyday (KITE) project: developing assistive technologies with people with dementia and their carers to promote independence
title_sort Keeping In Touch Everyday (KITE) project: developing assistive technologies with people with dementia and their carers to promote independence
author_id_str_mv 0e6c28093df4874b4263b328d7817e09
author_id_fullname_str_mv 0e6c28093df4874b4263b328d7817e09_***_Stephen Lindsay
author Stephen Lindsay
author2 Louise Robinson
Katie Brittain
Stephen Lindsay
Dan Jackson
Patrick Olivier
format Journal article
container_title International Psychogeriatrics
container_volume 21
container_issue 03
container_start_page 494
publishDate 2009
institution Swansea University
issn 1041-6102
1741-203X
doi_str_mv 10.1017/S1041610209008448
college_str Faculty of Science and Engineering
hierarchytype
hierarchy_top_id facultyofscienceandengineering
hierarchy_top_title Faculty of Science and Engineering
hierarchy_parent_id facultyofscienceandengineering
hierarchy_parent_title Faculty of Science and Engineering
department_str School of Mathematics and Computer Science - Computer Science{{{_:::_}}}Faculty of Science and Engineering{{{_:::_}}}School of Mathematics and Computer Science - Computer Science
document_store_str 0
active_str 0
description Background: The role of technology to facilitate independent living for people with dementia is not fully realized, with initial attempts (e.g. tracking devices) being considered unacceptable from a practical and ethical perspective. The aim of this study is to create acceptable and effective prototype technologies to facilitate independence for people with dementia through a user-centered design process involving them and their carers.Method: The study comprised a three-stage participatory design process: scoping stage (five focus groups, 10 people with dementia and 11 carers); participatory design stage (five workshops, 22 participants) and prototype development stage (four meetings with two people with dementia and one carer). Focus groups and workshops were digitally recorded, fully transcribed and subjected to constant comparative analysis.Results: People with mild to moderate dementia enjoy a variety of activities both on their own and with their families; however, concerns included getting lost, a loss of confidence with curtailment of usual activities, and carer anxiety. Existing technologies (mobile phones) were used intermittently. Participants felt strongly that future devices should be disguised and be integrated easily into their daily routines. Suggested areas for functional improvement included two-way communications, flexibility of function as the illness progresses, and something to “guide” them home when out walking or driving. Attention should also be focused on minimizing the size, weight and visibility of devices to reduce stigmatization.Conclusion: Prototypes for two devices (armband and electronic notepad) were developed. The study showed that involving people with dementia in the process of participatory design is feasible and could lead to devices which are more acceptable and relevant to their needs.
published_date 2009-12-31T03:15:30Z
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